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  • please help, I need my life back.

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    Old 12-06-2014, 05:21 PM   #1
    Kirsty8316's Avatar
    Join Date: Dec 2014
    Location: Hampshire
    Posts: 6
    Kirsty8316 HB User
    Red face please help, I need my life back.

    It started around 6 months ago, when I was 3 months into my eating disorder recovery.
    I woke up one morning and my vision had completely changed, it was heavily static, and it felt as though my eyes couldn't process what I was seeing and everything seemed to far away and out of context. as time went on Things became so much worse.
    I don't know if any of my following symptoms have been caused by my eating disorder?
    I was purging 3 to 5 times a day and heavily abusing laxatives alongside starving for days on end which i feel the need to state incase it has any relation to what is happening to me now.

    I also have had a bad jaw which I believe had been caused by the purging and forcing my jaw open.

    My symptoms are life changing, I've barely been outside in 6 months due to this out of it disoriented feeling along side the weak ness and pain.

    Symptoms are
    Jaw pain/stiffness/crunching/grinding
    Full ears/hearing loss
    occasional tinnitus
    severe Disorientation/dizziness[/LIST]Pain behind eyes
    Migraines that last from 2/7 days
    unable to focus of concentrate
    heavy head/neck
    neck/shoulder pain
    Rapid heart beat
    occasional chest pain
    Faint feeling
    visual floaters
    Oversensitivity to light
    muscle twitches
    some degree of facial numbness mostly around my jaw
    feel drunk/out of it
    heightened anxiety
    Over sleeping
    Deep stares/unaware of surroundings
    forgetting where I am when walking/not feeling there
    Flashing lights in vision/mainly in the dark
    almost blind in the dark
    I feel like I'm in a comatosed state

    My gp hasn't ever seemed concerned even when I've poured my heart out, I've had to go back time after time to get anywhere.
    they've put me on a number of medication to no prevail and I'm currently on none.

    I've had two eye tests I'm only short sighted and wear glasses makes no difference.

    I've been to A&E twice when I've not known what to do.
    first time I was misdiagnosed with labrynthitis and given 500g of amoxicillin for 7 days, which did not help

    I've recently been back and with the help of my partner and friend managed to fight my way threw them, and they're sending me for an MRI scan which I have no received the date of yet.

    Blood tests have been fine apart from a minor low sugar level
    EKG reading where a little high but I was very anxious at the time, they did show little concern but yet again put it down to my anxiety.

    I have a neurologist appointment this month,
    and a maxillofacial appointment next month.

    I'm beyond scared neither can help me.
    I have lost all of my friends
    me and my partners relationship is under a lot of pressure
    I have no income and no money what's so ever.
    I just sit in bed al day un able to do much at all, even going to the loo is a struggle.

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    Old 12-07-2014, 11:32 PM   #2
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    Chellybean18's Avatar
    Join Date: May 2014
    Location: Alabama
    Posts: 172
    Chellybean18 HB UserChellybean18 HB UserChellybean18 HB User
    Re: please help, I need my life back.

    Hi there.
    I know just how you feel. For the last nine months Ive been suffering through very similar symptoms. Sometimes I dont even feel like I am in the world anymore, its horrible. I was also diagnosed with labrynthitis! They started calling mine vestibular neuritis though...Im still not convinced thats what I have but I guess it could be since it can sometimes last months to years with symptoms like this...I dont get much jaw pain though..It could be related to something like tmj maybe? sorry I dont have more answers but just know you aren't alone. I feel daily like my heart is just gonna beat out of my chest with anxiety and fear! Feeling so bad for so long is the worst thing that can happen

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    disorientation, drunk feeling, visual disturbance

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