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Vestibular recovery - How did you do it?


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Old 03-04-2015, 10:36 AM   #1
Shari R
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Question Vestibular recovery - How did you do it?

I have had Vestibular Neuritis for over a year, and would really appreciate answers....

My balance is too reliant on my sight... My memory, recall, concentration, problem solving skills are not good.

What VRT (Vestibular Rehabilitation Therapy) did you do with your eyes closed?

What is the VRT pendulum?

What were some of the final VRT exercises you did before you recovered and did you keep doing them once you recovered?

I feel like I am nearly there, need to know what the final things are that my brain needs to learn....so it can fully compensate.

Last edited by Shari R; 03-08-2015 at 12:33 PM.

 
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Old 09-06-2015, 02:04 PM   #2
Shari R
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Re: Vestibular recovery- How did you do it?

Hi

I am replying to my own question....

The final VRT I did to get my life back, particularly my brain, as I had major brain fog for 1 1/2 years:

**** Stand on balancing mat with 2 big pillows on top of it, with eyes closed, feet together, arms folded for a slow count to 60, twice per day. That is all, no other VRT at all. I did this for 2 months and my brain fog vanished . This is for over a month now, I still continue to do that last VRT every day... as i never want that fog back. My understanding is that my brain is now using my vestibular. When the brain doesn't use the vestibular there is a whole lot missing. For me so much was missing: my personality, even my sense of smell, happy emotions, my vocabulary, my ability to do maths... and so much more. It was like I lost 1 1/2 years of my life, I was standing on the side lines. Now I am back in the race, yes I am walking (not running) my energy is very low, I think that is because my brain is working very hard. My balance is very good

Please remember to let people know what helped you when you recover

Kind regards
Shari

Last edited by Shari R; 09-06-2015 at 02:50 PM.

 
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Old 11-24-2015, 12:06 PM   #3
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Re: Vestibular recovery- How did you do it?

What is a balancing mat?

 
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Old 11-25-2015, 12:16 PM   #4
Shari R
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Smile Re: Vestibular recovery- How did you do it?

Hi

The balancing mat I use is called an Airex Balance Pad. It is important that you cannot feel the ground under it when you stand on it.

I am now unsure if I needed to put 2 pillows on top of it. Probably just on its own is most effective. (But pillows on top could make it easier in the beginning)

I will probably continue standing on it for a very long time.

I have slowly been increasing the number of times I stand on it... The specialist said I should eventually stand on it with my eyes closed, feet together and arms folded 5 times per day ( for a count of 60).

If it makes you feel very unbalanced the day after, reduce the number of times, or length of time you stand on it.

The good news is that I have had no brain fog (vestibular dementia) for a few months now...

Kind regards
Shari

 
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Old 11-26-2015, 04:21 AM   #5
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Re: Vestibular recovery- How did you do it?

Thanks, I will have to look it up.
Elizabeth

 
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Old 07-19-2017, 04:07 AM   #6
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Re: Vestibular recovery- How did you do it?

Quote:
Originally Posted by Shari R View Post
Hi

The balancing mat I use is called an Airex Balance Pad. It is important that you cannot feel the ground under it when you stand on it.

I am now unsure if I needed to put 2 pillows on top of it. Probably just on its own is most effective. (But pillows on top could make it easier in the beginning)

I will probably continue standing on it for a very long time.

I have slowly been increasing the number of times I stand on it... The specialist said I should eventually stand on it with my eyes closed, feet together and arms folded 5 times per day ( for a count of 60).

If it makes you feel very unbalanced the day after, reduce the number of times, or length of time you stand on it.

The good news is that I have had no brain fog (vestibular dementia) for a few months now...

Kind regards
Shari
Hi Shari, I am currently experiencing the brain fog symptoms that you were experiencing, and have been diagnosed with vestibular neuritis for 8 weeks. Like you the dizziness does not bother me as much but the brain fog does. Can I find out did the vrt exercise you do help immediately or did you only feel the brain fog lifted after 2 months?

Did the brain fog come and go during those 2 months?

Thanks

 
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Old 07-19-2017, 01:04 PM   #7
Shari R
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Re: Vestibular recovery - How did you do it?

Hi Keith

I did it for 2 months and then my brain fog vanished, and has never come back. During that 2 months, I did not feel it come and go... But I had been in the fog for about 1 1/2 years, so hopefully it could work sooner for you...

I really hope this helps you, it is very complicated and everyone needs different VRT to fix their issues...

 
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Old 07-19-2017, 03:18 PM   #8
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Re: Vestibular recovery - How did you do it?

Quote:
Originally Posted by Shari R View Post
Hi Keith

I did it for 2 months and then my brain fog vanished, and has never come back. During that 2 months, I did not feel it come and go... But I had been in the fog for about 1 1/2 years, so hopefully it could work sooner for you...

I really hope this helps you, it is very complicated and everyone needs different VRT to fix their issues...
Hi Shari,

Did you have any residual dizziness before you started this VRT? Because I am currently still experiencing some dizziness.

Also how did you know that your brain fog cleared? Did you do any tasks to test your concentration/recall/cognitive ability?

Thank you so much for replying..
Keith

 
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Old 07-19-2017, 03:38 PM   #9
Shari R
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Re: Vestibular recovery - How did you do it?

Hi Keith

It was 2 years ago, so not sure exactly what my dizziness was like... I was ice skating, but not doing any spins... Even now I am careful not too nod a lot, or move my head a lot from side to side when driving. I think its all good now, but I am still careful not to give my brain a hard time...

What sort of dizziness are you still experiencing?

I knew that my brain fog cleared without any tests. It was like I went from black and white, to colour. It was a dramatic change. Over the last 2 years I have seen gradual change, to the place where I am now.

Kind regards
Shari

Last edited by Shari R; 07-19-2017 at 04:02 PM.

 
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Old 07-19-2017, 05:12 PM   #10
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Re: Vestibular recovery - How did you do it?

Quote:
Originally Posted by Shari R View Post
Hi Keith

It was 2 years ago, so not sure exactly what my dizziness was like... I was ice skating, but not doing any spins... Even now I am careful not too nod a lot, or move my head a lot from side to side when driving. I think its all good now, but I am still careful not to give my brain a hard time...

What sort of dizziness are you still experiencing?

I knew that my brain fog cleared without any tests. It was like I went from black and white, to colour. It was a dramatic change. Over the last 2 years I have seen gradual change, to the place where I am now.

Kind regards
Shari
Hi Shari,
I am not experiencing room spinning or anything that will make me fall down, but when I close my eyes or when I walk I can feel a swaying/rocking sensation. Is this similar to you during your recovery?

I'm really hoping to recover from the brain fog like you did, as soon as possible. Did you take any medications during the period when you were doing the VRT?

Did you brain fog clear up by any bit before you started that VRT when you were doing other VRT exercises?

Thanks
Keith

 
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Old 07-19-2017, 06:22 PM   #11
Shari R
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Re: Vestibular recovery - How did you do it?

Hi Keith

I would feel unbalanced, but not fall over. Like I was walking in a boat/ on a cloud...

In the 1 1/2 years of brain fog, I had one day when the brain fog disappeared... no idea why, it gave me hope that my brain was still ok, but then it was very frustrating when the brain fog continued. It was about 6 months later that I started the last VRT exercise and got better.

No other VRT helped my brain fog at all, except the one which made my vestibular work. It seems that the vestibular is very important.

The only medication I took was one Beta Blocker tablet occasionally when in stressful situations...(just to keep my heart rate down)

Kind regards
Shari

 
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Old 07-19-2017, 07:18 PM   #12
KeithY
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Re: Vestibular recovery - How did you do it?

Quote:
Originally Posted by Shari R View Post
Hi Keith

I would feel unbalanced, but not fall over. Like I was walking in a boat/ on a cloud...

In the 1 1/2 years of brain fog, I had one day when the brain fog disappeared... no idea why, it gave me hope that my brain was still ok, but then it was very frustrating when the brain fog continued. It was about 6 months later that I started the last VRT exercise and got better.

No other VRT helped my brain fog at all, except the one which made my vestibular work. It seems that the vestibular is very important.

The only medication I took was one Beta Blocker tablet occasionally when in stressful situations...(just to keep my heart rate down)

Kind regards
Shari
Hi shari,

Was there anything you did that could make the brain fog less intrusive/affect you less?

Keith

 
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Old 07-19-2017, 08:11 PM   #13
Shari R
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Re: Vestibular recovery - How did you do it?

Hi Keith

No, I could not control the brain fog... It was like 'vestibular dementia'. I looked like myself, but I felt like a total fake, because I was only a fraction of myself. The brain fog was constantly there, everyday, all the time.

I believe that if I had not spoken to the specialist and found out what to do, I would still have brain fog. I am so grateful to have my life back.

Sorry, there is no quick fix that I am aware of, but as I say the last VRT that I am still doing everyday, may work quicker for you...

I just looked back in my diary: I was away for about a week during that 2 months, which would probably have slowed down my progress, as I did no VRT while away overseas... I got back on 19th of June 2015, and the fog disappeared on the 22 July 2015, the fog came back on the 26 July for a few days, and then disappears on the 29 July 2015 and never comes back... :-)

Last edited by Shari R; 07-19-2017 at 08:28 PM.

 
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