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Down Syndrome Message Board

Disabled parent considering Ds adoption


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Old 04-04-2016, 01:27 PM   #1
J Foner
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Location: Chicago, IL, USA
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J Foner HB User
Disabled parent considering Ds adoption

My pregnant wife and I were told this week that our baby (who would be our second) has a 99% likelihood of having Ds (we don't know type). In addition to the normal freakout I assume parents experience, one thing that frightens us is that I myself am severely physically disabled with CFS/ME. On good days, I'd compare my health to a reasonably healthy 65-year-old (i'm actually 35)--I can walk about a mile and do light chores around the house. On bad days, I'm close to bed-bound, and it's often difficult for me even to take care of my non-Ds three-year-old daughter.

So having a child with additional special needs is extremely intimidating. Speaking just in physical terms, how much extra work should I assume it is to take care of a Ds child compared to a non-Ds child, including things like getting to medical or therapist appointments? I realize this may be a question with as many answers as there are people on this board, but I'm curious to hear some opinions or stories. We are looking into adoption as an alternative, but we are still hoping to find a way to keep our son here. How realistic would it be for someone like me to be a primary caregiver for a Ds child? Any advice would be very welcome.

 
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