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bobzie 04-10-2005 02:55 PM

Risks with contraception for DS teenager
Our 16 year old daughter has recently had problems with depression. To help reduce the distress she experiences due to PMS it has been suggested that she take an Oral Contraceptive, continuously, for up to 6 months. Our local physician (with no real experience of DS) has expressed a concern that there maybe an increased risk of thrombosis, above that of non-DS women.

We have tried to find any information regarding this possible problem on the net without success. Is anybody aware of such concerns or have experience of the treatment?

Drafter 04-11-2005 09:13 PM

Re: Risks with contraception for DS teenager
If by 'local physician' you mean a family practicioner, I would go to an obgyn doc next. They know alot more about the female system than family docs. Also, ask them to research a bit on Down syndrome and hormonal controceptives. Most would be happy to do this for you, and know which resources are more reliable.

bobzie 04-12-2005 01:29 AM

Re: Risks with contraception for DS teenager
We had already decided to go down that route anyway but wanted to check that there were no rumours, speculation or research that we should be aware of when it came to posing the right questions.

Our daughter is also Autistic - We had to suggest this diagnosis to the specialists after researching the subject ourselves. There are aspects of her personality which are 'autistic' and some which are not. The Ed Psych had not ascribed these positive signs to ASD but we were able to show him that, overall, the evidence led to Autism. With our evidence in hand, he examined our daughter's case again and agreed that she was Autistic. Not that this made any difference to her educational needs but it did bring a better understanding of her reactions and attitudes to life in general and her social interactions.

Often the specialists, from the family practitioner to the educational psychiatrists, have a busy workload and a large client base. It is not always possible for them to concentrate for too long on one patient or client. Hence, this kind of research by parents and carers can be invaluable in helping the specialists understand the problems, the treatments and the care of our children better.

If nothing else, we have found that asking informed questions can lead to better, fuller explanations by the specialists of the treatments they are prescribing.

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