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downs boy 12 years old

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Old 09-19-2007, 09:17 PM   #1
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Join Date: Sep 2007
Location: williamsville, mo. united states
Posts: 10
sandygriffin74 HB User
downs boy 12 years old

my son was born when i was 20 years old and even in 1995 the doctor suggested placement. i was scared to death by his prognosis i was told that he would never walk or talk in fact the doctors said that he would be lucky to get to a 3 to 6 month old level ever. they were very wrong. bob my son was late in his development but he does almost everything now. when he was born we were faced with some health issues and he had to stay in the nicu for 24 days. during that time he was was diagnosed with hirschsprungs disease (an intestinal disorder that cause a blockage) he had to have a colostomy bag until he was 8 mos. he was also born witha 9 oz cystic hygroma on his left arm and shoulder. that had to be removed also when he was 19 days old that was the 2nd surgery (the colostomy was done at 7 days old). at 24 days he was released and i was left totally alone with him and all my fears oh and his 4 year old sister. my family is still very unsupportive of my raising bob. in fact i dont even speak to them any more his own father said that he couldnt be his son cause no one else in his family was retarded. i said fine and have been a single mother since. bob will never be potty trained because of the hirschsprungs disease but he does most everything else. he did a commando crawl for a long time then one day around his 3rd birthday he noticed his shadow and got up to follw it he's been walking since then. i was so releaved because i was 9 months pregnant at the time. he now walks talks runs and plays with the other kids in his school. so most everything i was told he would never do he is doing. he is a joy to be around always happy and loving. he cares about other people more than most adults i've met. i never knew that one child could be so compassionate. the way i see it is the family that won't have anything to do with him is really loosing out on a wonderful experience. his favorite things are sponge bob and shrek. he loves pizza and burgers. and like most boys he loves to irritate his sisters. ( hes the middle and the only boy.) he loves playing pretend and dress up i know that is not a boy game but i was told he would never have an imagination so i let him play. i believe his didters will grow into better people for having him as a brother and growing up being made to understand not everyone is like them. don't get me wrong not every day is a picnic he has his moments. he is very head strong and opinionated. and recently he has entered puberty and gotten aggressive when someone invades his space. he no longer wants to go any where and if we make him he punches or kicks us. we are trying to find help for him and us but most doctors say he'll get over it. like i said not every day is a picnic but is it ever with any kid. his older sister is almost 17 and her days are less and less fun for me any more. i'm told she'll grow out of it too. (i hope so) even now i would not trade the last 12 years for anything. even with the hospital stays and surgeries bob has been a blessing to all that have known him. he has a way of touching people like no one else and those who meet him never forget him. i go tto the store and get stopped by strangers saying hey your bob's mom aren't you. it's been a while since iwas just sandy. thank you for reading my story and i hope all of you going down the same road have a safe and blessed trip.

god bless

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