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  • 27 year old down snydrome with possibilty of having dementia

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    Old 11-11-2008, 09:15 AM   #1
    nannajean
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    27 year old down snydrome with possibilty of having dementia

    Hi-I am very depressed-there is a very good chance my daughter is developing dementia-is there anyone out there with this similar problem? Please help!!!!

     
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    Old 11-29-2008, 06:30 AM   #2
    Karren26
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    Re: 27 year old down snydrome with possibilty of having dementia

    Hi, I have posted under the happened at 16 thread. My daughter is having all kids of mental health problems and doctors have told me alot about what happens later and her problems have some hormone issues. What is going on with your daughter?

     
    Old 02-21-2009, 03:24 PM   #3
    GrannyChad
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    Re: 27 year old down snydrome with possibilty of having dementia

    Quote:
    Originally Posted by nannajean View Post
    Hi-I am very depressed-there is a very good chance my daughter is developing dementia-is there anyone out there with this similar problem? Please help!!!!
    I don't know what area you are in but you can google CDDHV if in Victoria and you can follow the links to find where to go to have an assessment done. This is a real possibility with Downs People.

     
    Old 02-22-2009, 06:56 AM   #4
    Nanc
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    Re: 27 year old down snydrome with possibilty of having dementia

    Quote:
    Originally Posted by nannajean View Post
    Hi-I am very depressed-there is a very good chance my daughter is developing dementia-is there anyone out there with this similar problem? Please help!!!!
    What kind of symptoms have you seen in your daughter that makes you think the dimentia? Just being forgetful kinds of issues or is there other things too? I know hormones can really play a big issue in the behaviors.

     
    Old 09-14-2009, 11:19 AM   #5
    sau21
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    Re: 27 year old down snydrome with possibilty of having dementia

    Quote:
    Originally Posted by nannajean View Post
    Hi-I am very depressed-there is a very good chance my daughter is developing dementia-is there anyone out there with this similar problem? Please help!!!!
    I have a daughter also, age 21, having similar problems. We have ran every test under the sun, with nothing showing. I began thinking it might be hormonal also. She stares, no seizures, she has begun rocking, and has never done that, she is in her own little world, the things she once did she no longer does, washing clothes, folding clothes, loving school, keeping her room tidy. She goes in and out, good days, bad days, more bad days than good. But I have noticed her touching more at the bottom, so I am leaning to the hormonal/desires. We placed her on Lexapro and ambien because she was not sleeping. I/2 dose she's up at night, full dose she does not want to get up for school. She falls asleep at school, no sleeping at home. It is mind boggling as what it could be. I also looked up dementia and she shows the symptoms as well as other nuerological like schitzo. I believe someone is out there that has had these same problems that can relate.

     
    Old 02-22-2010, 04:18 AM   #6
    Karren26
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    Re: 27 year old down snydrome with possibilty of having dementia

    t has been a long time coming but we finally truly are sure what has been wrong with Hailey. She was diagnosed three years ago with hypothyroid and blood work was done including the thyroid antibody test. The antibody test was extremely high and was not brought up at that time. As my previous posts the psychosis started about six months after she started on synthroid.

    Long story short two months ago I finally found a hormone doctor that was willing to see her at 14. Well, he did blood work with all female hormones, which we do see him today, but a month ago he said he had no idea how she had a period and that estrogen and progesterone were extremely low. I had noticed this last year breast development had stopped. She is lopsided and looks like they do when they first start growing. The major issue here is that the thyroid antibody test was done and the lab range is 0-60 and Hailey's is 4973.6!! This indicated Hashimoto's but looking into it further there is a Hashimoto's encephalopathy that is rare and causes psychosis, and or neurological problems. Please look this up. There are several cases of Down Syndome and this disease. People like us have it and are diagnosed with dementia and Alzheimers and even autism. It can be life threatening which scared me to death due to the fact that her doctor she had three years ago let the high numbers slide past and this was when she was still high functioning. It is treated with predisone. Hailey will be going to Duke University to see a doctor there that treats this and has done research on Down Syndrome with Hashimoto's Encephalopathy. Most doctors do no know anything about this, her primary is willing to learn as we move forward with this. Please read up and pass on this knowledge to you support groups.

     
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