It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....

Down Syndrome Message Board

down syndrome eating issue

Post New Thread   Reply Reply
LinkBack Thread Tools Search this Thread
Old 07-15-2011, 07:20 AM   #1
Join Date: Jul 2011
Location: cleveland OH USA
Posts: 1
acarini HB User
down syndrome eating issue

I have an 11month old DS baby. He was eating a small variety of foods and about five weeks ago decided that all he would eat would be cereal bananas and formula (all mixed). This week he has cut back even on that and now is eating very little. He like most DS kids has been through every test (including tummy disorders) and they have come back negative. I have talked to his Dr and she isn't all that concerned; regardless obviously I am. Is there anyone out there who has a special needs child that can give me some advice? Maybe it is just a phase these little ones go through, where they have given up food. He also won't nurse much, he won't drink anything from a bottle or sippy cup. I am limited on food choices because he is very allergic to milk, (whey protein) he actually has epi pens for the allergy its that serious. He does not have teeth and no signs of teeth to be. He doesn't do texture foods yet I am working with the speech therapist regarding that. Now I am so far behind even textures I would be happy if he would eat or drink anything. Yes, I have also tried juices and fruit of all kinds, no luck. Please give me some useful advice.

Reply With Quote
Sponsors Lightbulb
Old 02-06-2012, 11:56 PM   #2
Senior Member
Join Date: Feb 2012
Location: Washington
Posts: 237
kanded HB Userkanded HB Userkanded HB Userkanded HB Userkanded HB Userkanded HB Userkanded HB User
Re: down syndrome eating issue

Hi- I hope your baby is doing better since I just read your post and your baby is probably 18 months old now. My DS child, who is 2 years old, has severe sensory issues. He will eat only eat sweet potatoes and occasionally peas, everything pureed. With some children there are several issues involved- probably you as a mom together with a good team of doctors can figure out what all those issues may be. My son sees a gastroenterologist for his intestinal issues. Although your baby's doctor may not have experience with Down Syndrome, most know to refer you out to other doctors or specialists when they are in doubt. After a gastric emptying study, the GI doctor found out that my son was only emptying out 10% of his stomach, therefore causing him not to want to eat since he feels full. Currently he is taking a medicine for this. Also the dietitician changed him to soymilk and soy formula mixed to a higher calorie amount so he could keep growing while resolving his sensory issues.
I hope this helps and I hope all is well for you.

Reply With Quote
Reply Reply

Similar Threads
Thread Thread Starter Board Replies Last Post
27 year old down snydrome with possibilty of having dementia nannajean Down Syndrome 5 02-22-2010 04:18 AM
Down Syndrome and ear tubes Staceyj54 Down Syndrome 7 09-09-2008 07:26 AM
my daughter is 15 years old could this be mosaic down syndrome? donna 1504 Down Syndrome 6 07-10-2008 12:59 PM
Not trained to work with down syndrome. miyu Down Syndrome 6 09-12-2007 02:21 AM
Help with Agressive Down Syndrome Boy Pianobench96 Down Syndrome 3 08-20-2007 09:23 PM
Could this be a sign of Down Syndrome?? Trenton Down Syndrome 5 06-06-2007 08:59 PM
down syndrome help_me_please1 Down Syndrome 8 01-15-2007 08:15 AM
Brother with Down Syndrome Analysis1123 Down Syndrome 17 09-20-2006 05:17 AM
14 Month old Down Syndrome girl with Multiple Seizures hanand Down Syndrome 0 06-13-2001 02:03 PM
Welcoming Babies with Down Syndrome PNW Mom Down Syndrome 0 03-18-2001 02:55 AM

babies, down syndrome issues, feeding, stomach problems with babies

Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off

Sign Up Today!

Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

I want my free account

All times are GMT -7. The time now is 06:32 AM.

Site owned and operated by HealthBoards.comô
© 1998-2018 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!