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    Old 07-15-2011, 07:20 AM   #1
    Join Date: Jul 2011
    Location: cleveland OH USA
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    acarini HB User
    down syndrome eating issue

    I have an 11month old DS baby. He was eating a small variety of foods and about five weeks ago decided that all he would eat would be cereal bananas and formula (all mixed). This week he has cut back even on that and now is eating very little. He like most DS kids has been through every test (including tummy disorders) and they have come back negative. I have talked to his Dr and she isn't all that concerned; regardless obviously I am. Is there anyone out there who has a special needs child that can give me some advice? Maybe it is just a phase these little ones go through, where they have given up food. He also won't nurse much, he won't drink anything from a bottle or sippy cup. I am limited on food choices because he is very allergic to milk, (whey protein) he actually has epi pens for the allergy its that serious. He does not have teeth and no signs of teeth to be. He doesn't do texture foods yet I am working with the speech therapist regarding that. Now I am so far behind even textures I would be happy if he would eat or drink anything. Yes, I have also tried juices and fruit of all kinds, no luck. Please give me some useful advice.

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    Old 02-06-2012, 11:56 PM   #2
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    Re: down syndrome eating issue

    Hi- I hope your baby is doing better since I just read your post and your baby is probably 18 months old now. My DS child, who is 2 years old, has severe sensory issues. He will eat only eat sweet potatoes and occasionally peas, everything pureed. With some children there are several issues involved- probably you as a mom together with a good team of doctors can figure out what all those issues may be. My son sees a gastroenterologist for his intestinal issues. Although your baby's doctor may not have experience with Down Syndrome, most know to refer you out to other doctors or specialists when they are in doubt. After a gastric emptying study, the GI doctor found out that my son was only emptying out 10% of his stomach, therefore causing him not to want to eat since he feels full. Currently he is taking a medicine for this. Also the dietitician changed him to soymilk and soy formula mixed to a higher calorie amount so he could keep growing while resolving his sensory issues.
    I hope this helps and I hope all is well for you.

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