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Please help!

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Old 02-08-2013, 04:39 PM   #1
Join Date: Feb 2013
Location: Dayton NV
Posts: 4
theguy91 HB User
Please help!


My son Tyus will be 6 years old in March and he has had really loose stools for basically his entire life with a rare exception here or there. It is so bad that he was basically expelled (they sent a letter home from the department of health and human services saying he cannot come to school with loose stool because that indicates that he could possibly be contagious, which is total B.S.) from school in early December.

We have been taking him to specialists and yet we still have no answers. Earlier today we just got back from an endocronologist and his bloodwork ruled out the possibility of celiac disease. At this point we have no idea what is causing this or how to fix it. He eats lots and lots of probiotics in the form of yogurt and still no improvement.

With each passing day where he is not allowed in school and with the developmental services that they offer he is suffering and falling more and more behind where he could be so we are a little desperate to find an answer. At this point, I'm looking for any ideas and or leads at this point, I'm feeling pretty lost as a parent. Seeing a G.I. specialist is next in our plans, but his next available appointment for that is a little ways out.

Seriously, any help is useful at this point. You can email me directly at [email protected]

Last edited by moderator2; 02-08-2013 at 04:48 PM. Reason: please do not post your email address.

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Old 02-11-2013, 03:33 PM   #2
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Join Date: Feb 2012
Location: Washington
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Re: Please help!

My son has the opposite problem from your son, so I don't have much experience with the loose stools. If its been going on since birth than maybe its a structural defect, or maybe he's sensitive to dairy products.
My child drinks only almond milk, rice milk or goat milk. Coconut milk yogurt can be given in place of regular cow's milk yogurt.
I just wanted to address the school situation. As parents of special needs kids, its important that we receive all the intervention services that we can get. But its also important for us to remember that we, the parents, are probably the best teachers our children could have. So don't underestimate your abilities. A lot of the therapies have been taught to me, and so most of them are implemented by me and my family. My son tends to respond better to us anyway, rather than the therapists. You know your child best, and can do much one-on-one with him that will benefit him greatly. So don't think that you can't use this time wisely for your child.
Basically a typical 6 year old needs to know their colors, 1 +1 basic math, and the alphabet. You can teach them to read by reading to them and pointing to the words. I have taught two of my children to read and write before they ever went to school. My child with DS is 3 years old, and I'm already teaching him whole words by writing them down and then going over them with him. He hasn't got it all figured out yet, but he's starting to show some understanding. Just giving them exposure to these things is the main goal. I'm also using a book called Teaching Reading to Children With Down Syndrome, a book I found on the Internet. But I am also taking this time to teach him basic life skills.
While every child's capabilities are different, I feel as parents we can do a lot to help them to reach their potential. Maybe you can ask the teachers what they were teaching him and take it up from there. I know its asking a lot because all the health issues take a lot out of you. But I figure this is the time to instill in our children the things that will benefit them for the rest of their lives. There actually may be things YOU want to teach your child that aren't even being addressed by the teachers.
As you have probably already found out, you are your child's advocate and will need to fight for him. I agree that a child cannot be denied access to services based on a chronic condition, which can be backed up by a doctor's note. But these times can be used as an opportunity for you also, an opportunity for you to teach him what you want. Try not to be overwhelmed, and don't underestimate your child. He may be able to do much more than what everyone gives him credit for.
Enjoy this time with him, and realize that you are his wonderful and wise parent that can teach him things no one else will take the time to teach him.
Best Wishes, K.

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