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  • Weight loss in my brother

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    Old 07-29-2013, 10:33 AM   #1
    Pie Sister
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    Question Weight loss in my brother

    My brother is 29 and has down syndrome. For a few years he was over weight now he is under weight. The weight loss started about a year ago. At first it was just a little weight loss now he is very small. Is this normal for adults with down syndrome or do we need to be worried.

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    Old 07-29-2013, 10:43 AM   #2
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    Re: Weight loss in my brother

    Weight loss is usually very difficult to achieve in persons with DS. I do not recall any person with DS losing weight without being put on a very stringent diet. I would take him to see his doctor, to learn the cause of his weight loss. I hope this helps.

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    Old 08-07-2013, 10:21 PM   #3
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    Re: Weight loss in my brother

    Adults with Down Syndrome can start to lose weight for various reasons. It could be depression, dementia, or possibly the loss of a key person in their life. If it started over a year ago, try to think back what may have happened around that time, like if there was some kind of trauma, etc.
    Its not normal for any person to lose a large amount of weight in a year, unless they are trying to lose weight.
    Also, they should be testing his thyroid and doing blood tests to see if there are any underlying diseases. There are websites that deal specifically with Down Syndrome issues.

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    Old 10-12-2013, 08:39 PM   #4
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    Re: Weight loss in my brother

    Hi. I was searching the internet to find out why my sister, who is an adult with Dowm Syndrome who has lost 30 pounds in one year. I have taken her back and forth to her physician, who seem not to be able to find any reason she should be losing weight at that rate. That was about 2 years ago. She is currently still losing weight, seems like every week. She has gone from a size 14 to a size 4 or smaller. I am so concerned about the weight loss and unable to find any answers on the internet. I was wondering were you able to get an answer to why your brother was losing weight? It may help me. Thanks in advance.

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    Old 10-16-2013, 12:10 PM   #5
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    Re: Weight loss in my brother

    Celiac disease (gluten sensitivity) is much more common in people with Down Syndrome (1 in 14 according to one study, which is much more common than in the general population) . This can lead to weight loss because of the malabsorption of nutrients. It can be treated with a strict gluten-free diet. I would think most physicians that specialize in Down Syndrome patients are probably aware of this link. This could be worth investigating, there is a fairly specific blood tests that can be used to diagnose it.

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