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AJ765 04-27-2015 03:59 PM

Chronic (8 Years) Nasal Congestion
 
I have had severe nasal congestion for roughly 8 years now. I've tried a ton of medical treatments with different ENT's and had a few procedures. In 2007, I had a septoplasty. Breathing got better for a little while then went back to being bad. In 2012, I had rhinoplasty where they shaved down the turbinates a little and widened the nose a little as well. Things were a little better for a couple weeks then back to being bad. In 2014, I found a great ENT office that is solely nose specialists who are very accomplished in their field. In 2014, I had a radio frequency turbinate reduction in office procedure. Again it improved a little then went back to normal. Finally a few weeks ago I had an in office procedure where they pushed the turbinates toward the septum a bit. No real relief. The last thing that happened was getting a CT scan of the sinuses to see if there are problems further up in the nose. My next appointment to look at the CT scan is in a couple of days.

My doctors have talked about not wanting to take too much of the turbinates off because the nose can get super dry and make congestion even worse, and of course you can't put tissue back.

If the CT scan doesn't reveal something then I am sort of at a loss. I've tried so much and don't understand why I still can't breathe through my nose. Also this has been pretty debilitating and keeps me from sleeping much at all.

Has anyone had a similar experience? Any thoughts on all of this?

care4 04-28-2015 02:59 AM

Re: Chronic (8 Years) Nasal Congestion
 
same here, I'm suffering from congestions over 5-6 years. And similar to your story, I had a turbinate reduction, which didn't do much at all.
They right about not wanting to take more of the turbinates, you can end up with more problems.

Did you have an allergy test?
Mine showed that I am allergic to dust mites, which is true, however I figured out that the congestions has noting to do with dust mites.
My ENT thought dust mites thrive in hot humid weather and he advised me to move away from the cost and the hot humid weather.

I spent months o/seas and it got much better. Therefore that theory about dust mites is incorrect, there are dust mites everywhere, and if I was so allergic to them I would have had the same problem there too. But no, it was good.

Now I live nowhere near the coast and in much cooler climate. But still I get congested. Not as bad as it was, but it just comes out of the blue and after a day or two settles down again. But at night time one side always gets congested, when I sleep on my side the lower side. And in the morning is usually congested too and takes a while till it clear up. And doesn't always, so I keep pseudofed at home.

Now what I figured out, is that it must be non allergic rhinitis, also called vasomotor rhinitis. Basically it means that the cause is not known. For some unknown reason, the blood vessels lost the ability to constrict. It's more likely a nerve damage in the nose, than allergy or anything else. That's why all those natural treatments, sprays don't work.

It's a horrible illness, but doctor's rather think it's just some annoying thing, not a big deal. But it is for us, I know how you feel.
Breathing is the most basic thing, and having that congestion for so long is agonising.

You might want to figure out first if you have the same problem when you move away from that place. For some people it is just allergy and moving away can solve it. What sort of place do you live? city? country? coast? cold? hot?

I also noticed that weather change is not good, windy, rainy humid, they all seem to effect my sinuses.

Do you take anything like pseudoeffedrine? I think this is the only thing which is reasonably ok to take and doesn't have a rebound effect. At least not like the sprays.

care4 04-28-2015 03:03 AM

Re: Chronic (8 Years) Nasal Congestion
 
same here, I'm suffering from congestions over 5-6 years. And similar to your story, I had a turbinate reduction, which didn't do much at all.
They right about not wanting to take more of the turbinates, you can end up with more problems.

Did you have an allergy test?
Mine showed that I am allergic to dust mites, which is true, however I figured out that the congestions has noting to do with dust mites.
My ENT thought dust mites thrive in hot humid weather and he advised me to move away from the cost and the hot humid weather.

I spent months o/seas and it got much better. Therefore that theory about dust mites is incorrect, there are dust mites everywhere, and if I was so allergic to them I would have had the same problem there too. But no, it was good.

Now I live nowhere near the coast and in much cooler climate. But still I get congested. Not as bad as it was, but it just comes out of the blue and after a day or two settles down again. But at night time one side always gets congested, when I sleep on my side the lower side. And in the morning is usually congested too and takes a while till it clear up. And doesn't always, so I keep pseudofed at home.

Now what I figured out, is that it must be non allergic rhinitis, also called vasomotor rhinitis. Basically it means that the cause is not known. For some unknown reason, the blood vessels lost the ability to constrict. It's more likely a nerve damage in the nose, than allergy or anything else. That's why all those natural treatments, sprays don't work.

It's a horrible illness, but doctor's rather think it's just some annoying thing, not a big deal. But it is for us, I know how you feel.
Breathing is the most basic thing, and having that congestion for so long is agonising.

You might want to figure out first if you have the same problem when you move away from that place. For some people it is just allergy and moving away can solve it. What sort of place do you live? city? country? coast? cold? hot?

I also noticed that weather change is not good, windy, rainy humid, they all seem to effect my sinuses.

Do you take anything like pseudoeffedrine? I think this is the only thing which is reasonably ok to take and doesn't have a rebound effect. At least not like the sprays.

Did you get checked out for thyroid? it can also cause congestions. Swollen adenoids?
Also, have you tried changing your diet? GERD is something which can also cause it.
Your ENT probably checked these out, but just in case, double check.

You mentioned you'll get a CT done. Haven't they done it already before all those procedures??

starlight294 04-28-2015 09:49 PM

Re: Chronic (8 Years) Nasal Congestion
 
Do you have dizziness or balance problems with your sinus issues

care4 04-29-2015 01:28 AM

Re: Chronic (8 Years) Nasal Congestion
 
[QUOTE=starlight294;5360111]Do you have dizziness or balance problems with your sinus issues[/QUOTE]

No never, tiredness sometimes, but that could be from thyroid.
Do you suffer from dizziness and balance probs?

I'm surprised you went through so much procedures and surgeries. Your case is a perfect example and deterrent to trust ENTs.
When I went to see another ENT - it was about a year after my surgery, this guys wanted to correct my deviated septum - which according to the 1st ENT is very straight, also this guy wanted to cut from the inferior turbinates. He charged me $ 350 for this fantastic consultation, but thanks god I didn't go along with his advice. Now I can see from your case where I would have ended up.

Have you done these procedures private or public?
If private it would have costed a fortune


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