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  • Ear/Neck pain, not TMJ and not cervical spine

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    Old 10-02-2017, 07:36 AM   #1
    Join Date: Oct 2017
    Posts: 2
    els97 HB User
    Ear/Neck pain, not TMJ and not cervical spine

    F, 35yoa, active lifestyle.

    I am going to my PCP again but looking for any thoughts. I will make a timeline to make this easier to understand.

    November 2016: Get tested and diagnosed with carpal tunnel in both hands. Also told I have a C7 issue. Start acupuncture.

    December 2016: I get a horrible sinus infection that lasts into February. I had not been sick in over 2 years at that point. Had a Balloon Sinuplasty December 2014 with fantastic results. I had had sinus and allergy issues for 29+ years and this seemed to almost cure me.

    January-February 2017: I take 2 rounds of antibiotics and have been in acupuncture for 3 months. My ENT does every test he can do including CT scan. He finds nothing. Thinks it is my teeth. Go to 2 dentists-no TMJ. My neck is finally starting to feel better.

    June -August 2017: Neck pain and ear pain starts again intermittently. Gets worse end of July. Get an MRI and see hand specialist. No C7 issues and CTS is not worse, no treatment needed. Stopped acupuncture in June because of neck pain and it wasn't helping (plus really expensive). For about a week, it feels like something is stuck in the left side of my throat.

    September 2017: Neck and ear pain with a full feeling and like something is stuck in my throat. This is all on the left side, always has been. Difficult to turn my head to the right side. Right ear is starting to feel full. My CTS is worse on the left and I have horrible Sciatica related pain (started about 6 years ago). Also have difficulty swallowing at times and lips feeling numb. Throughout this whole ordeal, I've had 3-4 bouts of dizziness that last no more than 5 minutes except for once when I had to leave work and I threw up. I am nauseous when the pain gets really bad. I can no longer sleep on my left side because my arm is painful when I do and goes numb very easily (whole arm, even when wearing wrist guards).

    I have seen: PCP, ENT, Hand Specialist, Neurologists, Dentists, Acupuncturist.

    I can handle pain and being uncomfortable but this is starting to weigh on me. If it would matter, I have an essential tremor in both hands but the left is exponentially worse. Used to be intermittent, now constant. Right can only be detected from nerve test. Told there is no sign of Parkinson's by Hand Specialist and Neurologist.

    Had 2 MRI's with contrast yesterday with no results. Being sent back to ENT this week.

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    Old 10-04-2017, 05:11 PM   #2
    Join Date: Jun 2017
    Location: Indianapolis
    Posts: 31
    Sally013 HB User
    Re: Ear/Neck pain, not TMJ and not cervical spine

    What type of dentist did you see for TMJ? You really need to see an orofacial pain specialist or neuromuscular dentist. They will spend 2-3 hours doing an exam. My only symptoms were ear fullness, popping, cracking and a pulling sensation in front of my right ear. I can open my mouth fully and do not have any joint pain. Mine is all muscular.

    I also have a lot of high neck pain and pain in the back of my head. My jaw quivers and if I try to smile the left side of my lips twitch. I also have left sided tremors. Everything I've tread said all of this can be TMJ related but I'm afraid I have essential tremors or parkinsons. I am getting an EMG this month (June EMG was inconclusive) and seeing my neurologist again in Nov.

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    Old 10-05-2017, 08:27 AM   #3
    Join Date: Oct 2017
    Posts: 2
    els97 HB User
    Re: Ear/Neck pain, not TMJ and not cervical spine

    I am going to an ENT today and hopefully an Orthopedist soon.

    Last edited by Administrator; 10-05-2017 at 08:38 PM.

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