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Phantosmia?


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Old 08-08-2018, 07:55 AM   #1
Dizzyagain
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Phantosmia?

Over the past year I have had this weird cigarette smell that comes and goes. Sometimes it lasts a minute, an hour...or sometimes for days. The past few days the smell is accompanied by a headache. The headache comes from the back of my head. I do have Degenerative Disk Disease in my neck and lower back. I wonder if this could be the cause. Anyone else have the same issues? Just trying to get idea what could be going on.

I do take gabapentin for back/neck pain

Last edited by Dizzyagain; 08-10-2018 at 09:53 AM.

 
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Old 08-17-2018, 07:48 AM   #2
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Re: Phantosmia?

I went to my family doctor on Tuesday. He said I have a sinus infection. He gave a steroid shot and prescribed Medrol and Augmentin. He said it should clear everything up....but it hasn't. I still have the smell and the headaches

 
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Old 09-21-2018, 08:13 AM   #3
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Re: Phantosmia?

UPDATE - Went to an ENT and he said my sinuses were fine. I do have a deviated septum and a very small polyp in me left maxillary. He said that wouldn't be the cause. He was concerned about the headaches. He's doing a SED test and wants me to have a CAT scan asap. Will let everyone know the results when I get them

I hate having that smell and headaches EVERYDAY!

 
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Old 09-21-2018, 10:42 AM   #4
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Re: Phantosmia?

Hi....it's good you've kept up with an ENT and that you will have further testing.

I can relate to smells....i get the cigarette smell, lighter fluid, burnt food.....have sinus issues, and sometimes it has been inflammation and infection when the smells have continued.

Please keep us updated.

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Old 09-26-2018, 05:32 AM   #5
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Re: Phantosmia?

UPDATE - My ESR was 6. So it was pretty normal. My ENT now wants me to get an MRI w and w/o contrast on Friday. I sure hope they get closer to helping me with my headaches and phantosmia. It's rough having them occur everyday

 
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Old 09-26-2018, 12:39 PM   #6
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Re: Phantosmia?

I can relate to headaches and smells daily, but not to your extent....the smells aren't continual.

It's good you're having an MRI. Please let me know the results.

q

 
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Old 10-03-2018, 06:01 AM   #7
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Re: Phantosmia?

Got the results back from MRI

1. Senescent changes in the brain. Suggested congenital hypoplastic A1 segment of the right anterior cerebral artery

2. Mild paranasal sinus disease

Weird cuz my ENT said I didn't have a sinus infection when I went to his office.
Waiting to hear back from ENT for follow up.

 
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Old 10-03-2018, 01:06 PM   #8
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Re: Phantosmia?

Wow....Interesting. seems inflammation from something continual, especially with your symptoms.
Looking forward to your info from the ENT.
One thing is that it showed something.

Hang tough till answers come,
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Old 10-08-2018, 12:34 PM   #9
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Re: Phantosmia?

My ENT is now sending me to a Neurologist. He said he didn't see anything on my MRI that would explain the symptoms. Hopefully they will have some answers

 
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Old 10-08-2018, 04:25 PM   #10
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Re: Phantosmia?

Oh wow....well, on to the next specialist. Hope the neurologist has more insight.
Please let me know about that appt.
In rhe meantime, hope some symptoms ease a bit so you get a break.

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Old 11-19-2018, 06:34 AM   #11
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Re: Phantosmia?

My phantosmia is gone..for now. Still dealing with the nasty headache that now occupies my left side temple and behind the left eye. My neurologist had me on 25mg indomethacin for 2 weeks. That didn't help. He then put me on 75mg indomethacin ER 1 per day and 25mg indomethacin 3 times a day. Did this for a week....it didn't work either. Thinking I may need to see a Rheumatologist. A friend suggested it could be GCA (Giant Cell Arteritis). Will ask my Neurologist about it today.

 
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Old 11-19-2018, 10:35 AM   #12
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Re: Phantosmia?

Hi...good to hear no more phantom smells, but the thought of GCA is a bit scary.

Men are prone to cluster headaches.....that might be a possibility?

I look forward to your update from the neurologist....have you seen a rheumatologist? If GCA is a thought, then it's many times related to an autoimmune disease.
The other thing...maybe see an opthamologist for indepth check of your retina, etc.

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Old 11-19-2018, 12:26 PM   #13
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Re: Phantosmia?

I just had my eyes checked 6 months and everything was fine w/them. The headaches have been pretty constant and with no pulsating feeling. I am not sensitive to sound or light nor do I get red or drooping eye. My jaw hurts by my ear too. I have tried every OTC meds as I can and none have worked. I will post when I hear from my neurologist.
I was suggested to contact a rheumatologist because I do have a 4.7cm thoracic aortic aneurysm. Just want to rule out GCA

 
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Old 11-20-2018, 07:06 AM   #14
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Re: Phantosmia?

My Neurologist now wants me to take indomethacin 75mg ER 3 times a day for a week.

 
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Old 11-20-2018, 10:18 AM   #15
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Re: Phantosmia?

Your neurologist isn't suggesting what you could have? Is he going to refer you to a Rheumy?

Hope the increase in med helps you....it's difficult when there are no specific answers.

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