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So many issues ... I don't know where to start.


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Old 07-22-2016, 09:25 PM   #1
Melwhite84
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So many issues ... I don't know where to start.

I'm freaking out a little. I was diagnosed in May with PCOS and fibroids, however they saw a mass in the sonogram and they couldn't make out what it was. So they sent me for an MRI. In the MRI report it states that the mass was something called a peritoneal inclusion cyst. Basically my left ovary is enclosed in an 8 cm cyst. Also on that enclosed ovary I have a 4.3 cm endometrioma. The report also states that I have deep pelvic endometriosis, an adenomyoma and both ovaries are tethered to my uterus.

I've never had any kind of surgery and I haven't had any children yet. I'm in pain all day every day and pain killers don't help. My birth mother and grandmother had uterine cancer when they were in their late 20s. I'm 32. I guess my biggest concern is that they will find cancer next. It just seems like with every test they find more things that are wrong. I don't really even know what I'm looking for in posting this. Maybe just to know that I'm not alone. None of my friends or my family (I was adopted so I don't know my birth family only the medical history) understand what I'm going through. I'm just exhausted and in pain all the time and it's affecting my life in such a negative way. Any tips or advice would be greatly appreciated.

Last edited by Melwhite84; 07-22-2016 at 09:26 PM.

 
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k742 (07-27-2016)
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Old 07-27-2016, 06:42 AM   #2
k742
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Re: So many issues ... I don't know where to start.

Big hugs to you! I'm sorry you're going through so much all at once! That has to be very overwhelming. I don't have any words of wisdom, except to say that you're not alone, and all the ladies here dealing with PCOS, endo, and other forms of reproductive system issues are a wealth of knowledge and support. Even if you just post to vent, know you're not alone and we're thinking of you!

 
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Old 08-05-2016, 10:31 PM   #3
Jilybean02
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Re: So many issues ... I don't know where to start.

I feel your pain... Literally! I know from experience, it can be all consuming of your life. I would suggest getting to an actual endometriosis specialist ASAP. Especially one knowledgable in robotic-assisted laparoscopy. The robot uses 10X magnification so the surgeon can see endo that can't be seen with a regular scope or the naked eye. I trusted my obgyn and GI doctors for 15 years when they said I had Crohns, then IBS, then gallbladder disease, then pancreatitis, then appendicitis, and I suffered for too long because of it. I was repeatedly told my problem was in my head. It wasn't until I saw an actual dr who specializes in endo that I got real relief. I had lesions all throughout my pelvis and wrapped around my intestines. Not a single test done up to that point saw it, and I had ALL of the tests when I was repeatedly tested and hospitalized for suspected bowel obstructions. The key for me, and most of my endo doctor's patients, is excision of ALL lesions. I also chose to have a total hysterectomy at the age of 32, and don't regret it for a minute. It gave me my life back. Hang in there and keep fighting!

 
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