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  • Intestinal endometriosis-what is the pain like?

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    Old 02-23-2003, 07:01 PM   #1
    dmbfan
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    Post Intestinal endometriosis-what is the pain like?

    I am wondering if anyone has first hand experience with intestinal endometriosis...I've been reading alot about it -they say the symptoms are almost identical to IBS...can anyone elaborate on that?

    I guess I'm curious about endometriosis in general also, what does the pain feel like? When I read that it causes painful periods, I have to ask aren't all periods painful to some extent?

    What I've been reading has gotten me a little nervous when I consider my own abdominal problems..I'm wondering if endo-specificlly intestinal endo., may be my problem..

    Any info would be helpful! Thanks!!

     
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    Old 02-28-2003, 06:56 PM   #2
    appalled
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    I will make this as short as possible...lol.
    I was diagnosed with Endometriosis when I was 17 yrs old. I was told I would not be able to have children. The pain would double me over sometimes, from the hemorraging. Could barely walk from the pain. My periods were irregular...sometimes twice in one month, lasting anywhere from 3 to 7 days, had spotting at any time, and sometimes painful intercourse. Also, sometimes it hurt to have a bowel movement.
    Since the doctors (gyn; fam. doc) told me I could not have children, I did not take the pill...years later, I did get pregnant...what a blessing...even though I almost bled to death, literally. I went back into the hospitol a couple years after I had my daughter for a laproscopy to check on the endometriosis...it had cleared up according to the gynacologist. Still, I could not have any children. I had 8 miscarriages trying to have another child. 7 yrs later, I had a son, high risk pregnancy. Can no longer have babies. I dont know for sure that the endometrosis ever really went away, but if it did, it came back. I do know I have it. I am older now and these are my symptoms: Pelvic pain, irritible bowel syndrome, extremely painful periods every month, sometimes twice in a month always spotting in between periods, migraine headaches, and constantly getting cysts on ovaries. I've lived with it since I was a teenager...I am used to it now.

     
    Old 03-05-2003, 05:34 AM   #3
    RareEndo
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    My Endometriosis was found 5 years after my first c-section and a year after my second one. It wasn't found by the only means of diagnosis which is laparoscopy because of the location. Outside the pelvic cavity in the abdominal wall and abdominal muscle.

    However, if you have had any surgery it may be scar tissue or adhesions causing your bowel symptoms. It may be alot of things. The best thing you can do is see your OB/Gyn and maybe get a referral to a Gastroenterologist.

    The pain with Intestinal Endometriosis is said to be close to the pain in Inflammatory Bowel Diseases. Also it has been said that the pain is sharp, stabbing and more painful than the Endometriosis found in the pelvic cavity.

    I had Diarhea for two and half years. It was when I had a laparoscopy that there was little relief because the adhesions in the Colon were attaching it to the abdoimnal wall (peritoneum etc).

    Now after all this my small intestine is not anatomically in the correct positin due to multiple surgeries (scar tissue, endometriosis, and adhesions) and I need another surgery and more than likely a complete hysterectomy to make room for the mess my insides are in. (That make any sence?)

    Anyway, I hope your feeling better. It's pretty difficult to say what is pain from "Endometriosis" aor "scar tissue" or regular old stomach bugs everyone is different and has Endo in different locations at different stages.

    In June of 2000 a baseball sized Endometrioma was removed from my abdominal wall and part of the muscle as well. I have mesh and tacks repairing the defect left from the excision. It was pure luck that a general surgeon found that one so you can imagin it's difficult at best to not only suspect Endometriosis but get it diagnosed.

    Take Care and God Bless
    Jessica
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    Old 03-05-2003, 06:05 PM   #4
    tinkers
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    These are/were some of my symptom:
    1) constipation then diarrhea (back and forth)
    2) painful sex
    3) abdominal swelling and PAIN
    4) bloating
    5) back ache
    6) periods 3-4 months apart and painful

    I forgot exactly where the Endo was, but thru a laprascopy I had it removed. I feel so much better. I am now on a bcp, Yasmine. My gyno said as long as I am on the pill, my Endo shouldn't return. But if it does, it will be minimal.
    Tink

     
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