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  • Endometriosis symptoms?

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    Old 11-02-2003, 07:21 PM   #1
    ryanandmaran
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    Question Endometriosis symptoms?

    I recently went to see my doctor about several episodes of severe pain I've been having, and he referred me to a gynecologist to see if I have endometriosis, but my appointment isn't until next week.

    I've been doing some research on endometriosis, but it's not very specific on what the pain is like, and I want to know if that is what is going on with me.

    My pain is pretty awful, and it has happened once a month, since May. It usually comes either right before, during, or right after my period, and begins with a burning, searing pain while I am having a bowel movement. I also get clammy, feverish, and nauseated. This kind of pain lasts about an hour or two, and then is replaced by a tight, cramping pain around my belly button area, which is so bad I usually can't even stand up straight. My abdomen / pelvic area is also very tender to the touch, and I feel kind of mildly sick all over (light head aches, fatigue...) After about 2 or 3 days, the pain is completely gone, and I am fine again for another month.

    I realize endometriosis affects everyone differently, but I'm just wondering if anyone has endometriosis, and if you can share with me how it affects you, what are your symptoms, etc...

    Thanks

     
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    Old 11-03-2003, 01:01 PM   #2
    Lissie
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    I have had ongoing painful endoemtriosis for years now. It's gone now, because I am pregnant, and also had surgery in September. I have at least 2-3 surgeries a year for it.

    The symptoms you explained are not really what I have had. My pain is always on my lower left side at my ovaries. Never got sick, and never felt pain during a bowel movement. If you are feeling pain during a bowel movement, it could be something else... you might want to get that checked out. I was suppressed for 2 years, so I never got a period, but the endometriosis always snuck thru. I do know that for most people, it shows up right at your period, and can last for a couple of days.

    If you suspect you have it, I would call your OB-GYN and maybe get on continuous BC pills to supress it...that's what I did.

    Hope this helps.

    Lissie

     
    Old 11-04-2003, 08:54 AM   #3
    Pootsi
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    I have endometriosis, but didn't suffer much from pain except once in a while during sex, and cramping real bad during my earlier year before, during and after periods.
    Come to find out years later during an ultra sound that I had a large cyst due to endo., which had to be taken out along with one ovary (it was engulped by the cyst) and tube. The other ovary was okay, but it's tube had lesions of endo on it which was cleaned off. There was endo on my sigmoid colon also which was taken cared of. It was even narrowed in that area due to the endo and cyst, which explained why I was constipated all the time.
    I used to be in a endo board, and the most common symptoms I read with woman with endo is lots of pain before during and after periods, like you described, And with bowel movements at that time. Also, with sex.
    The only real way to check is to have a laparascope done, where they go through your belly button under a light anestesia, and they check with a scope, they may also remove what they see.
    It's good if you can find a Gyn. that is experienced with endo and how to remove it. It normally grows back otherwise.
    Also, a form of hormonal meds to help balance you out in there and to help with the pain, like b.c. (mild form).
    Endo grows from estrogen. So a good low estrogen b.c. is good.

     
    Old 11-04-2003, 11:55 AM   #4
    Teakie
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    I too have endo....Your symptoms sound very much like it. The doctors found it wrapped around my bowels, intestine, stomach, and of course ovaries and uterus. So yes, painful bowel movements are a symptom. Is there ever any blood with a bowel movement? Keep an eye on that.

    The only way to know for sure is laposcopic surgery. Are you having fertility problems too?

    I have yet to find a doctor that has made me pain free! and have had 5 surgeries. How old are you?

     
    Old 11-04-2003, 02:15 PM   #5
    ryanandmaran
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    Thank you all for your responses.

    One thing I feel I should clarfiy on is the pain during bowel movement thing. When these attacks first began, the pain didn't begin when I was going to the bathroom. I would just suddenly get this burning, upset stomach feeling, but the pain would be fairly mild, then I would have the cramping feeling--similar to very bad gas or constipation, except I could still have a bowel movement.

    Now, though, the pain always begins when I go to have my first bowel movement of the day, but even after I've done so, the burning searing pain remains for about another hour, and then the cramping pain sets in.

    My episodes are progressively getting worse--and not only that--but since my most recent one on Oct. 30, I have been having a noticeably difficult time going to the bathroom. I've always been easily constipated, but I've noticed in the past few days that I will feel like I need to go to the bathroom, but I have a hard time getting anything out--literally, like it's blocked. I am still able to go about 2 times a day (I take fiber), but it just feels harder to do.

    Sorry if that's all too much information!

    But anyway, to answer your questions, Teakie, I am 25 years old, and I have always been infertile. I say that because I have never used birth control and I have never gotten pregnant. (I know that sounds terribly irresponsible--but it's not like that). Does that seem normal, to be infertile for seven years--if it is from endometriosis--but only have the pain begin six months ago?

    If you see this, Teakie, can you tell me a little more about your situation? Like how long have you had this, what was done about it (besides your many surgeries), how old you are, and if you have kids.

    To everyone who responded to me--I wish you well in being pain free.

     
    Old 11-04-2003, 02:59 PM   #6
    Teakie
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    Ryan&Maran

    I too am fairly young, 28. Everyone is different, but a lot of times people do not find anything out until their early 20's. What are your periods like? Painful, heavy, clotty, no problem. The wierdest thing about endo is that some people with tons of endo can have no pain while others with very little endo have lots of pain. Any low back pain? I don't have too much of a problem with pain during sex, but it is the after ache that bothers me. The ache after releaving a full bladder. The ache after a bowel movement.

    I am at the point today, where I have a burning feeling ALL THE TIME! At times there are shooting pains too.

    The endo can be really sticky or tacky, and it will sometimes stick the ovary to the bowels, etc. basically bounding your orgins together rather than allowing them to have free movement. This was my situation. Are you taking anything that may make you a little more constipated? Pain Killers or anything? I have always been an unfrequent pooper too and still am so I am not good advise for that part. But I do think these symptoms means something is happening weather it is a cyst or a fibroid, I don't know.

    I too believe that I am infertile. I have been married for two years but we have been somewhat trying for 3 (no bc). We have 3 Labs though (they are our children), we have 3 horses, cats, chickens, a regular farm! It keeps my mind off children.

    Let me know if you have anymore questions. When is your doctor appointment? Does anyone in the family have endo? By the way, I have always had really bad periods but I was not diagnosed officially until my first lap in 1998 when I was 24.

    Teakie

     
    Old 11-04-2003, 04:07 PM   #7
    ryanandmaran
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    Teakie,
    You can just call me Maran. (Ryan is my husband's name, and we use ryanandmaran for every screen name).

    My periods are pretty typical. They last about 5-6 days, and before May, when all this started, I had only mild cramps, which easily disappeared with Advil.

    I do sometimes have a little lower back pain, but not when I'm having one of my attacks, so I don't think it has anything to do with it. It's more like, when I'm standing for too long, or I sleep wrong or something.

    I also don't have pain during sex. You talked about an ache after going to the bathroom--what kind of ache?

    I am not taking any pain medications or anything. I really prefer to avoid putting things in my body that don't really need to be there. I'm a nutrition major in college, and I try and eat really well, with lots of vegetables and fiber and stuff, and still, I get constipated so easily! And usually, I'm very healthy, so to be experiencing this kind of regular pain is freaking me out! It's been such a relief to be able to talk to people who know what these symptoms (probably) mean, and can give me advice and support.

    Well, it sure sounds like you have lots of "family", but do you think you'll ever be able to have kids?

     
    Old 11-05-2003, 07:22 AM   #8
    Teakie
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    Good morning Maran,
    The ache that you were asking about....The best way that I can describe it....Okay, remember a night you drank a lot of beer and you had to go number one really really bad but you can't find a bathroom or there is an hour long line, so your bladder is so full! Then after you finally pee you still sort of ache from a full bladder. Ever felt like that? That is the best example I can give about the ache. But my bowels sometimes ache after going to the bathroom (without the drinking example!) and also my insides after sex occasionally. Is there anything natural that you can take that is like a stool softener? Not just a fiber, or is that essentially the same thing?

    Do you remember when I was talking about endo can bound your insides together? When you were talking about the pain in your belly button and not being able to stand up straight it sort of reminded me of that.

    Maran, I have self taught myself alot about endo which has been a lot of help for me. But many times I think I have learned too much, where I have a tendancy to come to conclusions maybe too soon with myself. Sometimes I wonder if the pain wouldn't bother me as much if I wasn't trying to figure out all of the symptoms and what they mean. What I am trying to say is keep an open mind and don't just assume this is endo because some girl with an English and Environmental Studies degree said it sounds like it. But on the other hand I enjoy educating others and talking about it because it heals myself - mentally.

    No, I don't think I can have children, but we are keeping an open mind right now. We are not in a hurry for fertillity medicine yet. Does your stomach ever get hard? When is your appointment? Good luck, keep me informed.

    -Rachel

     
    Old 11-05-2003, 11:53 AM   #9
    ryanandmaran
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    I know just what you mean about coming to conclusions about things without knowing for sure! I know I said I am a healthy person, but I am also a hypochondriac sometimes--like, if I have a little symptom, I will drive myself crazy speculating about all the different diseases I could have--and I will actually convince myself that I have something! It's nervewracking!

    This case is different, though, because 1) this is not just some little symptom, it's a very real pain that I've never had before, and 2) even my doctor, who is supposed to be one of the greatest diagnosticians around, was at first at a loss for what exactly it could be. When I first went in to see him, I wasn't having the pain, and going just by the history of the pain and my symptoms, he said it could be irritable bowel. But I knew it wasn't that. So then I went back to see him when I was having the pain, and he said that based on where the pain was located, he knew it was gynecological, and because of the periodic nature of the attacks, it was most likely endometriosis. His diagnosis, along with my lifelong infertility and everyone on this board telling me they have similar symptoms, leads me to believe that endometriosis is what I have. Plus, it would be a relief for it to be that, and not cancer or something like that.

    My appointment with a gynecologist is Nov. 20. See, when all this started, I didn't even have medical insurance. I never really needed it, and whenever I did need a doctor, I just went to the Student Health Center at school (which is where I saw this doctor, who works at the major hospital in town but volunteers two days a week at the college). So, after all this, I had to go get Medi-Cal, which won't take effect for two more weeks. I'm okay with waiting for my appointment, though. I mean, I want to know for sure what it is, but as long as I have the appointment before my next pain hits. I'll keep you posted on what happens.

    Do you have a degree in English and Environmental Studies? That's interesting. What do you do for a living?

    I also am not in a hurry for kids. I still have three more years left in school. (I started late).

    Nice talking to you!

     
    Old 11-05-2003, 12:06 PM   #10
    ryanandmaran
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    I forgot to tell you--about the ache you feel--I do not feel that. But when I'm having the pain, my stomach feels rigid, tender, and pulsing/cramping.
    Also, you said you are at the point now where you feel the burning pain all the time, and sometimes shooting pains--what do you do about it? How do you handle it?

    Last edited by ryanandmaran; 11-05-2003 at 12:09 PM.

     
    Old 11-05-2003, 02:48 PM   #11
    Teakie
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    Hey girl,
    Good luck with your appointment, I am sorry it is so far away. I know it is hard to wait when you don't feel good and want to know what is going on!

    Yes those were my majors. But I now work for the family construction company! Funny how it works that way....I went to college on an athletic scholarship, at first studies was not my priority!

    I am now seeing a pain specialist for the pain. I am not sure what I think of him yet. I have been taking pain medicine on and off for a while. It is all really frustrating. I don't remember what it feels like to feel normal! Search the web for the Endometriosis Association. They have a great website and a lot of info.

    I have to run. Take care.

     
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