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Qus on Bicornuate uterus (endometriosis mentioned too)

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Old 03-20-2005, 10:00 AM   #1
Join Date: Mar 2005
Location: England
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Lu_C HB User
Question Qus on Bicornuate uterus (endometriosis mentioned too)


Was wondering if anyone knew stuff about bicornuate uterus'.

I was discovered with one which is split right down to the cervix when I was 14. It was during a laparotomy to remove an endometriotic cyst on my left ovay (I lost the ovary and tube as well).

Previously I'd had a couple of abdominal scans which didn't pic up on the deformity because my womb was too small to show up very well.

My gynae at the time said I wouldn't be able to have surgery to improve the deformed womb because it's too sever, and I was told I'd need IVF if I ever wanted kids (partly because of no longer having my left ovary - aparently the left side of my womb is bigger so they'd want to place the fertilized egg in that side to make sure the baby could survive). Since then I've reason to believe he might not have 100% known what he was talking about.

My problem is, I was told by the last gynae I saw that my bicornuate uterus was probably the cause of me having endometriosis because it would cause retrograde bleeding.
I'm due to see an endo specialist for the first time soon because I need a laparoscopy to see where the endo is at because my periods have resently got unbearable.
I'm worried that they'll get rid of a load of endo and I'll still have painful periods because of my womb and that the pains have got worse resently because I've grown/developed more now and the problem has increased because of that. (I'm 17 now).

I don't know how much more pain people with bicornuate uterus' get compared with normal ones and a lot of my endo symptoms I'm worried are actually down to my womb.

I'm under the impression they only usually operate on this in cases of infertility but I don't know how correct it is that I can't be operated on, and was wondering if it would be stupid to ask if it would help my period pains to be decreased if they tried to correct it a bit? Also maybe if it'd help stop the endo coming back when I've had surgery to remove that.

I hate the idea of living on hormonal tablets for the rest of my life so I might just be clutching at straws in desperation.


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Old 03-22-2005, 12:45 AM   #2
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spongebobgamma HB Userspongebobgamma HB User
Re: Qus on Bicornuate uterus (endometriosis mentioned too)

Lu C,

I also had a bicornuate uterus and endometriosis. I was never told that the bicornuate could cause the endo,, thats very interesting..I was able to have 3 children but I don't think my bicornuate was as severe as yours is. The endometriosis was very bad, but it was left too long without treatment while the Drs were trying to figure out the problem.

My daughter has been trying to get pregnant and was told after a ultrasound that she has a bicornuate uterus. The Dr ordered a HSG test and MRI. They found she had a bicornuate and septrum uterus. Two months ago she had surgery and they removed the septrum. It was a same day surgery. They did not fix the bicornuate, said that would be reconstructive surgery and she should be able to carry a baby.

She does not have endo, but does have the very painfull periods. I wonder too if that the cause of it.

Do a search online, lots of information..I have read of women that are able to carry on one side of their uterus. Hope I have helped, any questions post back..

Old 03-22-2005, 10:22 AM   #3
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NodiGoiterGirl HB User
Re: Qus on Bicornuate uterus (endometriosis mentioned too)

As far as the one ovary thing, I just had mine removed and was told that I would have the same chances as anyone else if I wanted to conceive. No need for IVF because of that.
I wonder if it is different for different people though, I've never had my hormones tested.
Sounds like you have a complicated situation, I sure hope everything goes well for you in the future.

Old 03-22-2005, 12:20 PM   #4
Join Date: Mar 2005
Location: England
Posts: 5
Lu_C HB User
Re: Qus on Bicornuate uterus (endometriosis mentioned too)

The fertility issue isn't just because of only having the one ovary, it's because the ovary I have left is on the side of my small bit of womb so it wouldn't work

Anyway, thanks for the help.

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