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Endometriosis question..

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Old 11-29-2008, 03:24 PM   #1
Join Date: Nov 2008
Location: Monmouth County, NJ, USA
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cmb86 HB User
Question Endometriosis question..

Now 2 years ago when I was 20 I discovered a small lump under the skin in my groin. At first I thought nothing of it - couldn't even actually see it, just felt it. Then when that time of the month came around I was in such terrible pain I could barely walk at times. My regular doctor was no help at all so I went to my ob-gyn. He never mentioned it could be endo (found out later because my lump was in a weird spot.. he said it is generally just in the abdomen?) and I actually think he thought it was cancer because he sent me to a surgeon immediately who was supposed to remove it and do a biopsy. So I went, had the surgery, and woke up to find out that it was endo.

After this was all said and done my ob-gyn basically never said a word about it to me! When I questioned him about the chances of infertility and whatnot he just told me to stay on my BC and to worry about that when the time comes and I want a child. And he never really gave me much information about it whatsoever.

So, for those of you that have dealt with endo or know someone who has, shouldn't more have been done? Should I find another doctor who will actually test me out and see how extensive my endo is?

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Old 12-01-2008, 11:38 AM   #2
Join Date: Dec 2003
Location: a state that borders canada
Posts: 396
weasel HB User
Re: Endometriosis question..

Hi! I just wanted to tell you that it was similar for me when I was 20-22. No one tok me seriously about my painful periods (SEVERE, dibilitating pain) and they stuck me on bc, and now that I am married and potentially want to have a child they take me seriously. hopefully there isnt too much damage. I havent been diagnosed, but i as well as my doctor suspect endo. Make them take you seriously.

Old 12-08-2008, 05:43 PM   #3
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Join Date: Nov 2007
Location: Needham,MA
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shisslak HB Usershisslak HB Usershisslak HB Usershisslak HB Usershisslak HB Usershisslak HB Usershisslak HB User
Re: Endometriosis question..

Hi cmb86

Do not think that your doctor is not taking you seriously. The reason for the BC Pill is to give you a lighter flow. This has been known to help the symptoms of endometriosis. Another treatment plan is to place you on a medication that generally makes you sterile. My doctor hesistated to put me on this because I was only in my early 20's. The third option is to do laser surgery, which doctors will do to help you get pregnant if that in fact is your problem. They wait to do the laser surgery because it is only a temporary solution. The endometriosis only grows back. Once you decide to become pregnant, the doctor will typically let you try on your own for a few months, depending on your age. They will then do a radiology procedure called a hystrosalpenogram. This is a procedure where to doctor will insert a thin tube into your uterus and inject a contrast dye. They will then take a couple of pictures to see if the contrast flows all the way through the tubes and into the ovaries. This test lets them know if there are any blockages. They will also try you on some medications before they will resort to surgery.
When you have decided to try getting pregnant, talk with your doctor to see how long he/she thinks you should wait before they begin to see if the endometriosis is the problem.
You could also asked to be referred to a infirtility specialist.
In terms of the discomfort you are experiencing, try asking your doctor to prescibe a medication called toradol. I took this at the beginning of my cycle and for the next two days to help ease the pains and it really worked.

Last edited by shisslak; 12-08-2008 at 05:48 PM.

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