It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Endometriosis Message Board

  • Osteopenia, Actonel, Endometriosis, scared - really need some advice please

  • Post New Thread   Closed Thread
    Thread Tools Search this Thread
    Old 06-18-2003, 08:24 AM   #1
    moonbeams
    Newbie
     
    moonbeams's Avatar
     
    Join Date: Jun 2003
    Location: UK
    Posts: 2
    moonbeams HB User
    Smile Osteopenia, Actonel, Endometriosis, scared - really need some advice please

    Hello all

    I am 41 and have Endometriosis and osteopenia,
    t score -2.25.

    On and off since 1997 I have been taking drugs for endometriosis which have caused my loss in bone density. I also have family history of osteoporosis.

    i have now been told to take Actonel but looking into it and after reading all the messages about it i am terrified to touch it.

    I take a lot of pain medication including nsaid's (ibuprofen) and Voltrol for the endometriosis but have read that taking these with Actonel can increase stomach problems?

    I have also read that you should consult a doc if you are taking calcium supplements while on Actonel?

    Due to the pain from the Endo i have just started another course of drugs for it,-same as before, (yes it's madness i know, but i need to control the pain) it is a Gnrh called Synarel and am supposed to take the Actonel with this. The doc only let me have the endo drug again if i promise to take the Actonel.

    I was scared about Actonel before but taking the 2 together is very scarey.

    I really don't want to take the Actonel but i don't know what to do, will diet and excercise be enough, my consultant will not be happy if he thinks i haven't taken it, and i won't be happy if my bones crumble, but those side effects sound awful, and far to common.

    If anyone has any advice it would be great to hear from you.

    Thanks


    __________________
    x moonbeam x

     
    Sponsors Lightbulb
       
    Old 06-18-2003, 08:41 AM   #2
    peregrine
    Inactive
     
    Join Date: Mar 2003
    Location: New York
    Posts: 1,448
    peregrine HB User
    Post

    Seems to me that it is more important that you, rather than your consultant, be happy. You do not owe him/her anything (except the fee).

    If I were you I would do a lot of research as well as read threads on this board. You will feel more confident making a decision if you are more informed about your choices.

    All the best!

     
    Old 06-23-2003, 07:55 PM   #3
    Cheryl Ann
    Junior Member
     
    Cheryl Ann's Avatar
     
    Join Date: Mar 2003
    Posts: 45
    Cheryl Ann HB User
    Post

    Hi, I had a bad reaction to the actonal, and know many others that have had problems with it. It is really best that you do what you feel is right for you. If you have a problem with different medications, read everything you can about actonal, and then make your decision. Remember your doctor does not have to go through a reaction, you do. If you are taking a medication that is not recommended to take along with actonel, well don't take the actonel, it just isn't worth the agony. I have severe osteoporosis and am now on Miacalcin nasal spray for it. I am having a few problems with the nasal spray, but they are mild and I need the medication badly. Good luck with your decision.
    __________________
    Cheryl

     
    Old 06-24-2003, 09:16 AM   #4
    LancasterRose
    Newbie
     
    LancasterRose's Avatar
     
    Join Date: Jun 2003
    Location: Lancaster, CA
    Posts: 1
    LancasterRose HB User
    Post

    Can you take once-a-week Fosamax rather than Actonal?

    I have been on Fosamax for about 9 mos. and so far so good. A lady I know who has been on once-a-week Fosamax for 2 years, who has increased her bone density, and who has had no problems with Fosamax said she: 1) drinks a little water BEFORE taking the Fosamax, 2) follows the Fosamax with 2 GLASSES of water, and then 3) waits to eat longer than the recommended 1/2 hour ~ that 1, 1-1/2 to 2 hours is better (she learned at a seminar). So I have done the same. I use the time to get on the Internet, walk a mile on my treadmill, and/or shower and put myself together for the day. (I also wait 2 hours before I take any other medication.)

    Don't be scared. The inserts have all these horrible side effects listed, which may or MAY NOT happen to you. So just go forward. I'm more scared of crumbling bones.

    Pay attention to the proper amount of Calcium you are taking in everyday (either supplement w/Vit. D or in foods--milk, chocolate milk, orange juice w/Calcium, cottage cheese, etc. and sunshine for your "D"). Make sure you get weightbearing exercise every day. (I aim to walk at least 5 days a week/10 miles per week ~ often fall short, but...)

    Wish you the best.


     
    Old 06-25-2003, 08:19 AM   #5
    moonbeams
    Newbie
     
    moonbeams's Avatar
     
    Join Date: Jun 2003
    Location: UK
    Posts: 2
    moonbeams HB User
    Smile

    Thanks for all your replies

    i haven't decided what to do yet. I opted for the Actonel over the fosomax as the side effects didn't look as bad, but i think they are more or less the same from what i have read. i'ts all very scarey.

    I shall keep reading the board and learn as much as i can.

    Thanks again

    Take care
    x moonbeam x
    __________________
    x moonbeam x

     
    Closed Thread

    Related Topics
    Thread Thread Starter Board Replies Last Post
    Actonel for Osteopenia - Advice? deanana Osteoporosis 8 09-05-2007 04:04 PM
    Osteopenia and back pain? elphers Osteoporosis 14 09-07-2006 02:27 PM
    Osteopenia at 36 zephyrqueen Osteoporosis 8 01-05-2006 05:47 AM
    actonel for osteopenia auntgertie Women's Health 1 11-24-2004 02:18 PM
    Osteopenia and Scared annamc Osteoporosis 3 08-01-2004 08:51 PM
    question about osteopenia and evista mommy2girls Osteoporosis 6 02-23-2004 06:01 PM




    Thread Tools Search this Thread
    Search this Thread:

    Advanced Search

    Posting Rules
    You may not post new threads
    You may not post replies
    You may not post attachments
    You may not edit your posts

    BB code is On
    Smilies are On
    [IMG] code is Off
    HTML code is Off
    Trackbacks are Off
    Pingbacks are Off
    Refbacks are Off




    Sign Up Today!

    Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

    I want my free account

    All times are GMT -7. The time now is 09:39 PM.





    © 2020 MH Sub I, LLC dba Internet Brands. All rights reserved.
    Do not copy or redistribute in any form!