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  • anyone have endometriosis?

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    Old 08-15-2002, 06:59 AM   #1
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    anyone have endometriosis?

    Just wondering if anyone has this? If so, what are your symptoms?

    Angela(23) Richard(29) hubbie
    Married March 5, 2001
    Wishing for a 2003 baby!

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    Old 08-16-2002, 09:19 PM   #2
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    Re: anyone have endometriosis?


    I do have stage 4 endometriosis. I would not have known however I had to have some large cysts removed from my ovaries through laporscopic surgery in May and June of this year. That is how they discovered the endometriosis. I have TERRIBLE periods which I have alway just associated with "bad cramps". I know now that it is because of the endometriosis. I was told that a stage 4 person may not have any pain and a stage 1 person may have unbearable pain. There is no rhyme or reason behind it. So far I have not had any pain at all during the month except at period time. My husband and I got married in 1999 and have been trying to have a baby since then. After my surgery my doctor told me that because of the severity of the endometriosis and scar tissue, we only have a 1% chance of getting pregnant without fertility. We just went through our first IUI and it did not work. <IMG SRC="">
    How did you find out you had endo and do know what stage it is in? I hope it is nothing and you and your husband get pregnant really soon!! Good luck to you!!!

    Old 08-17-2002, 06:20 AM   #3
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    Re: anyone have endometriosis?

    I have it. It can cause serious cramping during your period. I didn't seem to interferr with geting pregnant since I do have two kids. After each kid since they were a c setction my doctor scrapped it all out. It helped the cramps for a while then it came back. Now that we are planning a third it seems impossible. I now have fibroids and cysts. Had them removed through surgery and now on Chlomid to try and get pregnant before anything comes back. It's a race and who knows when or if it will come back. Hope I helped a little. With my endo all my doctors just said oh the cramps you probably have endo they never did anything until I got pregnant and that is how I met my doctor now and he couldn't believe what the other doctors always told me and that they didn't do anything. My cramps have put me in the ER for meds. Now things are better. Still cramp but not too bad.

    Old 08-19-2002, 10:31 AM   #4
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    Re: anyone have endometriosis?

    Hi Kriss,

    That is so encouraging to hear that you have endo and you have 2 kids!!! I have also been to the ER with bad cramps before I knew I had endo.
    I am happy for you!! I hope it happens for us too.

    Old 08-19-2002, 11:30 AM   #5
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    Re: anyone have endometriosis?

    Here is what I posted on another board about this subject:

    OK...this post is going to be long so grab some coffee or something......

    First, let me try to explain as best I can exactly what endomitriosis (hereby known as "endo" cause it's a pain to type the whole word out each time)is. Endometrium cells are the cells that line the uterus each month in preparation for a baby. If there is no baby that month then the endo cells are shed, resulting in menstruation. In some people, and for reasons that are not really know, these cells can also grow outside of the uterus. They are usually limited to other parts of the abdominal cavity....I had endo cells all over my ovaries and I also have some on my bladder, which the doc couldn't remove. But these cells can, in rare cases, grow anyplace and cases have been documented of it showing up in lungs, armpit tissue, etc.

    Endo cells can sometimes grow together and cause adhesions, which sort of bind your abdominal organs together and cause pain and discomfort no matter what time of the month it is. And these cells respond to your hormones no matter where they are...which means that they swell and bleed and shed just like their counterparts in the uterus. This can cause unusually heavy periods and cramps during your period.

    The procedure I had done was called a laporoscopy (not sure it's spelled right). To sum it up, this is where they make a 2 small holes in your abdomen, usually one at the bellybutton and the other one can be anywhere depending on exactly what they are going to do. One hole is for a tiny camera which they use to look around in there to see if there is any endo. If there is any endo they insert a small blade or laser into the other hole to remove the stuff. They put you to sleep to do it, and you have a bit of discomfort for a few days but it's really no big deal (not near as bad as my cramps can get, that's for sure!).

    I believe the treatment you were referring to is a hysterectomy, which is when all the female reproductive organs are removed from the body. This is done if the endo is so extensive that they cannot remove it any other way. Endo can be dangerous if it gets too bad cause it can wrap around intestines, colan, etc. And, of course, a woman with no repoductive organs is not going to be able to have a baby.

    Endo can cause other infertility problems as it can grow on the reproductive organs such as ovaries and fallopian tubes. It is usually one of the things that is looked for when a woman is having problems conceiving. Many woman who have endo do get pregnant, though. It all depends on the severity of the endo and where it is located.

    There are also other is a drug called Lupron (given by injection) which puts you into temporary menopause. The thinking behind this is that endo cells form because of your monthly cycle if you disrupt the hormones you will disrupt the growth of the endo cells. There is alot of controversy about using Lupron....many women have had horrible side effects during treatment and for many years afterwards. And the endo will usually come back as soon as the drug is stopped. I was on it for a few months and as far as I know I had none of the bad side effects, but I don't think it helped my endo either. But you still have to have the laporoscopy first cause as far as I know that is the only way to find out if you have the endo or not.

    Hope this has helped. Do a search on endometriosis on the web and you'll find all sorts of info. And please note that just cause you have bad cramps doesn't mean that you have this disease.....but it is one of the symptoms and many women do have it and don't know it.

    Old 08-21-2002, 10:59 AM   #6
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    Re: anyone have endometriosis?

    The last post summed up most of it. I just wanted to add a few things I have learned recently. I too have endo, I got pregnant with my daughter after I had major surgery to remove a 5inch cyst and to remove endomitriosis. The endo can attach anywhere, sometimes it is sucked up through the fallopian tubes and then continues to grow, it can attach to your heart and basically kill it. The other thing I wanted to mention is they are doing research now because they think it is a autoimmune dissese. That is basically where the body eats or kills its self. Also if you have endo the shell of your eggs may be thin therefore causing dificulty with natural fertilization. I just recently had a lap done to drain another cyst and my dr told me if I had bad endo again I was going to have to go straight to IVF because of the fertilization problem. Thank heavens I only had one small adhesion. Sometimes pregnancy can cure endo and you wont have problems again. I have a friend who was told she would never get preg because her endo was so bad, But she has been pregnant at least 4 times and has 2 healthy babies. I wish you Good Luck. But don't stress about this untill you have a definate answer that you have it.

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