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Living with endometriosis at 20.


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Old 05-13-2013, 07:13 PM   #1
kyra87
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Unhappy Living with endometriosis at 20.

Hi my name is Kyra and I will domy best to make my first question short. In April 2013 i was surgically diagnosed with endometriosis. My question for this post is, where do i start with dealing with this? I feel soemotionally drained and confused about everything. I understand the best thing to do is to just learn to deal ( what ive been told by many adults) but I'm only 20. right now it doesnt work that way for me. I dont even know how i would begin to do so. I have the worlds most supportive boyfriend ever and he helps but he doesnt understand where I am comming from and there are some things i just cant talk to him about because hes not going through this. there are A LOT of questions i have to ask so im sorry if this isnt even that clear of a post or a question. i just feel alone and dont know what to do.

 
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Old 05-18-2013, 07:14 AM   #2
kt93
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Re: Living with endometriosis at 20.

Hey!

I know how you feel. I am 19 and was diagnosed last October. You definitely aren't alone. As for what to do I'm not sure. You're lucky your partner is so supportive but I so agree that people have no idea what it's like unless they've experienced it. Did you have the laparoscopy to diagnose? I guess the best way to cope is to manage your symptoms and work out the ways that work best for you. Maybe book an appointment with a GP to discuss it? I hope this has helped, although I'm not sure I answered your question all that great. Just know you aren't alone

 
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Old 05-18-2013, 07:15 AM   #3
kt93
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Re: Living with endometriosis at 20.

Whoops sorry just saw you already said you were surgically diagnosed

 
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Old 06-13-2013, 08:04 PM   #4
Alicia117
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Re: Living with endometriosis at 20.

Hi! I was diagnosed when I was 18. Had surgery when I was 19. Since 2012 Feb, I've been taking the pill(Marvelon) every single day with NO breaks. It's helped, I have no pain at all, but I'm a natural person, and I hate hate hate taking pills for anything. I was like you, I felt alone too. Just do alot of research yourself so you understand what doctors say. Ask a ton of questions! If a doctor says something you don't understand, ask! Ask and ask, that's what I did and I learned alot. Don't let it take over your life. I can't remember anything from when I was diagnosed. I was so focused on it, thinking about it all day all night. I literally can't remember those first few months. Don't let that happen! You can ask me any questions you have and I'll try my best to help.
Good luck!
- Alicia

 
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Old 07-20-2013, 04:34 PM   #5
danixholli
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Re: Living with endometriosis at 20.

I know exactly how you feel! I was diagnosed at age 20 as well. It's really scary. My endo was too bad to take care of surgically, so I had two options: get pregnant, or take the Lupron shot for six months. The only thing to contain endo is to not have a period, sadly. I took the Lupron shot for five months before I decided I was ready for a baby. My gyno told me to have two full periods before my husband & I started trying. I've now been off the shot for a month, & still no signs of my period. I read it takes some people up to 8 months to start again, which sucks if you are wanting to start a family. My advice to you is to take the shot if you aren't wanting a baby anytime soon. It really did help me. The only side effects that I had were BAD hot flashes, & an annoying headache. If you are wanting a baby soon though, go ahead & try to conceive, then take the shot!
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Old 07-29-2013, 10:28 AM   #6
Starissa81
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Re: Living with endometriosis at 20.

Hi, i was diagnosed at 18 and since then have had 3 surgeries when the pain would come back. I have went though 4 doctors and this past feb found one thats specialty is endo. After i first visit with him was was scheduled for robotic surgery. Once he was done and i had my follow up visit he was stunned that I was able to semi deal with the pain i was in and that once he started he found way more growth and adhesions then expected. anyways, i have been on Zolaxex since then and only have 2 more to go. Its a like like lupron which i have been on 2 times before but once treatment stopped i was in pain again. So far i have had no pain problems and i still dont have a period which is fine by me. Im glad you have a boyfriend that is so understanding, mine left me. he couldnt deal with me being in constant pain. All i can say is talk with your doctor on what you can do to help it and go from there and dont be afraid of a second option. I had one tell me i needed to get prego now or have a full hysterectomy, i was 21 at that time. I wish you all the luck and know that it is very common.

 
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confused, endometriosis, pelvic pain, young adult



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