It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Environmental Disorders Message Board

  • Mold and infrared treatments?

  • Post New Thread   Closed Thread
    Thread Tools Search this Thread
    Old 10-28-2008, 10:59 PM   #1
    patriciaf
    Member
    (female)
     
    patriciaf's Avatar
     
    Join Date: Jan 2008
    Location: Petaluma, CA, US
    Posts: 73
    patriciaf HB User
    Mold and infrared treatments?

    Does anyone with mold issues know about a treatment involving infrared technology? My neuro conferred with a toxicologist friend of his and they have suggested I try this several times a week for a while. I haven't had it done yet and would love to know more from anyone who has any knowledge of such. Apparently I just sit in this particular light for a while. Anyone?

     
    Sponsors Lightbulb
       
    Old 12-13-2008, 06:40 AM   #2
    sharewithme
    Member
    (female)
     
    sharewithme's Avatar
     
    Join Date: Nov 2007
    Location: Southern Eastlands o
    Posts: 98
    sharewithme HB User
    Re: Mold and infrared treatments?

    I've heard of (and been referred for) UVB light treatments. This is the same tyoe of light which is used in operating rooms. It can ber much more involved than sitting in front of the lights though. Did they explain to you what it is supoosed to accomplish for you?

     
    Old 12-15-2008, 09:42 PM   #3
    patriciaf
    Member
    (female)
     
    patriciaf's Avatar
     
    Join Date: Jan 2008
    Location: Petaluma, CA, US
    Posts: 73
    patriciaf HB User
    Re: Mold and infrared treatments?

    Hi Share, Yes, they explained that the infrared light stimulates the cells in order to release toxins. Apparently it does a whole host of other things as well (especially good for inflammation and joint and muscle pain apparently). I have been doing it 2-3 times per week for about a month now and while I think it is too soon to comment on the detox effects, I can say that my circulation is much improved and I always have more energy (and feel good) after each treatment. I'll keep you posted.

     
    Old 12-21-2008, 10:03 AM   #4
    sharewithme
    Member
    (female)
     
    sharewithme's Avatar
     
    Join Date: Nov 2007
    Location: Southern Eastlands o
    Posts: 98
    sharewithme HB User
    Re: Mold and infrared treatments?

    patriciaf:
    Yes, please let me know how this works for you. So tell me, do you just sit in front of the lamps? I am very interested as I am not a candidate for glutathione (get way too sick from any form of it) and vitamin C iv's are expensive and really burn my veins, both are a a serious problem for me. I also react to glycine supplements and am looking for other ways to aid my body to detox itself.
    - Share

     
    Old 12-21-2008, 10:09 PM   #5
    patriciaf
    Member
    (female)
     
    patriciaf's Avatar
     
    Join Date: Jan 2008
    Location: Petaluma, CA, US
    Posts: 73
    patriciaf HB User
    Re: Mold and infrared treatments?

    Hi Share... No, there are no lamps per se. You sit (or lay down) under a half dome that feels like felt on the inside. It gets very warm but you don't see any light. It is a little hard to explain but if you do a search on Far Infrared Hothouse and then click on the link for chimachine you can get a visual and read more about the benefits. There don't appear to be any side effects so if you get a chance to try it, I would love to hear what you think. I am having to take a break over the holidays (between my family time and the doctor taking time off, our schedules just aren't meshing) so I will have to keep you posted on my progress once I get started again.

     
    Old 12-22-2008, 06:37 AM   #6
    sharewithme
    Member
    (female)
     
    sharewithme's Avatar
     
    Join Date: Nov 2007
    Location: Southern Eastlands o
    Posts: 98
    sharewithme HB User
    Re: Mold and infrared treatments?

    Patriciaf:
    I didn't realize what we were talking about. I have been doing saunas with a combo of far infared and electric heat for some time now for detox. I sit in front of the wall mounted far infared units and let them penetrate my back. It has worked for me. All that I have been exposed to by the environmental DR's I have seen induce sweating also. Does yours?
    Share

    Last edited by sharewithme; 12-22-2008 at 06:37 AM.

     
    Old 12-22-2008, 09:46 AM   #7
    patriciaf
    Member
    (female)
     
    patriciaf's Avatar
     
    Join Date: Jan 2008
    Location: Petaluma, CA, US
    Posts: 73
    patriciaf HB User
    Re: Mold and infrared treatments?

    No, no sweating. It doesn't get that warm, but that may be why my doctor suggested this one for me. You see, I developed Sjogrens Syndrome (dryness in all of my organs) out of this mold mess so I have to be careful with the dehydration. You wouldn't believe all the things I do on a daily basis to build moisture in my body. When I add sweating to the mix (i.e. working out, sunbathing, hot climates, etc.) I REALLY have to be prepared (and I still often pay the price). I have read a lot about general saunas for mold and have wanted to go that route, but it is such a catch-22 for me ('go to the desert for the mold'... 'no, go to the Caribbean for the Sjogrens'... aaah).

     
    Old 12-30-2008, 07:34 AM   #8
    sharewithme
    Member
    (female)
     
    sharewithme's Avatar
     
    Join Date: Nov 2007
    Location: Southern Eastlands o
    Posts: 98
    sharewithme HB User
    Re: Mold and infrared treatments?

    patriciaf:
    That is tough, I feel for you. I realize in my last post that I didn't specify what the saunas were helping with. I have been detoxing a fair amount and it is hard to tell what all is coming out although several times the symptoms were obvious to chemicals -- that is what the Dr's tell me. It has helped with first level detox. I am looking into other routes for getting chronic neurotoxins out of fat tissue and the brain which is especially difficult. With mold a particular protocol involves a drug, cholestrymine, which is said to pull the mycotoxins from the body. When it works it is known to be beneficial. I hope to find out more about it soon as many of the more commonly prescribed pathways I have tried for detox are either too expensive or I reacted to them so much, they made me really sick. I am actually allergic to glutathione and glycine so, taking them is out for me.
    Hope far infared helps you. They say it alone, without inducing sweating, is beneficial in several ways. Please let us know what you find out and if it helps!
    Wishing you many days with an ease of symptoms,
    Share

     
    Old 02-07-2009, 08:14 PM   #9
    brendaharper
    Newbie
    (female)
     
    brendaharper's Avatar
     
    Join Date: Feb 2009
    Location: Meridian, Idaho USA
    Posts: 1
    brendaharper HB User
    Re: Mold and infrared treatments?

    I don't use the lights as much as I use the Infrared sauna. I got into mold in May of 2008. It effected my vision caused neurological problems, makes my gut, tong, and gums swell, and causes major migraines, other symptoms as well but those are the worst ones. I believe the infrared sauna saved my life. I use it nearly every day. IF I go more than 36 hours the migraine comes back. It clears my vision helps warm my hands and feet, and helps me think and function better. It has not cured the problem but has made it easier to cope with.

     
    Old 02-08-2009, 03:37 PM   #10
    sharewithme
    Member
    (female)
     
    sharewithme's Avatar
     
    Join Date: Nov 2007
    Location: Southern Eastlands o
    Posts: 98
    sharewithme HB User
    Re: Mold and infrared treatments?

    dear brendaharper:

    That is wonderful to hear and very encouraging. Thank you for sharing your experiences.

    How long do you sit in front of the infared? do you use a single unit? what is the brand that you use?

    I still have problems with brain fog although it has improved. I also have swelling with exposures to certain molds, foods and chemicals and was told by my Dr that this is very serious and must stop. I did a fair amount of food allergy testing in order to figure out what those triggers are and that has helped a lot with thorat and tongue swelling. I now also live in a more arid environemnt and an EI safe house and that too has made a huge difference - no more mold or formaldehyde thank you very much!. Thankfully migraines are no longer common symoptoms for me. I used to have them regualrly. I really feel for you.

    Wishing you ease of body and spirit,
    Share

     
    Old 02-10-2009, 11:17 PM   #11
    patriciaf
    Member
    (female)
     
    patriciaf's Avatar
     
    Join Date: Jan 2008
    Location: Petaluma, CA, US
    Posts: 73
    patriciaf HB User
    Re: Mold and infrared treatments?

    Well ladies, I am afraid I have given up on the infrared treatments. They were helping my energy level at first (a nice byproduct) but I am not really seeing any difference with the mold issues. I bet the sauna would be better, but that is off limits for me with my Sjogrens Syndrome. The one thing I will say that seems to help get rid of the mold is to keep the lymph glands working. I am finding that if I bounce (either by running or getting on one of those sport trampolines) that the lymph actually flushes my system. Lymphatic drainage massages help to move the toxins out as well. Have either of you had any luck with this? Of course I will continue to sweat with regular exercise, but I think the lymph system is my best bet given I can't do full on saunas. What do you think?

     
    Old 02-11-2009, 09:22 AM   #12
    sharewithme
    Member
    (female)
     
    sharewithme's Avatar
     
    Join Date: Nov 2007
    Location: Southern Eastlands o
    Posts: 98
    sharewithme HB User
    Re: Mold and infrared treatments?

    I think all the above is great. Sorry I don't know more about infared but I have ben told they are very good and the clinic where I have been a patient (environmental health center dallas) uses them in their dry heat saunas.

    I have been told that saunas are good for first level detox. Many say better for getting out chemicals than mold.

    Lymph works well for me, I don't have the money to pay someone else so I try to do it on myself. Sometimes it feels like stuff is moving so I persist. I am pretty good at getting rid of sinus congestion and headaches using the same techniques so I am trying to aid my body in every way I can. Especially with detox.

    The woman I went to for lymph drainage (who is very good) says bouncing does not actually work to stimulate thye lymph system. From my own experience I am sure that exercise, especially in sunshine, aids the body in healing so I say if you feel better go for it!

    Infared would be great and I'd do it if I had a way to. Detoxing from your body fat is very difficult to do. Right now I am trying to aid my body in detoxing via the methylation pathway. I am primarily using the supplements I can tolerate in doing this. Found out I am
    b12 deficient and so far taking that in only form I can afford has helped.

    Have you looked at any food allergies yet? That has helped me in keeping my load down (& feeling better to boot!). Also do you know if you have MCS? I do and so far everyone I have met with mold toxicity has it also. Is very common to develop it. If you can eliminiate any chemical toxins that you are sensitive to from your life that helps so much it is incredible. Has really improved my body's ability to focus on detoxing.

    wishing you well,
    Share

     
    Old 02-11-2009, 11:13 AM   #13
    patriciaf
    Member
    (female)
     
    patriciaf's Avatar
     
    Join Date: Jan 2008
    Location: Petaluma, CA, US
    Posts: 73
    patriciaf HB User
    Re: Mold and infrared treatments?

    Hi Share,

    Yes, I have done a really good job eliminating chemicals from my life and you're right, it makes such a difference. I have also been tested twice for allergies (all types, including all the common foods). Everything came back negative, but I have noticed things myself when I eat certain things (tomatoes and chicken for sure cause me reactions). Needless to say, I am not so sure I trust the traditional tests. I do know for sure that I cannot tolerate glutens, so eliminating those has helped tremendously.

    What is the methylation pathway? I don't believe I have heard anything about that.

    Thanks,
    Patricia

     
    Old 02-11-2009, 04:30 PM   #14
    sharewithme
    Member
    (female)
     
    sharewithme's Avatar
     
    Join Date: Nov 2007
    Location: Southern Eastlands o
    Posts: 98
    sharewithme HB User
    Re: Mold and infrared treatments?

    It is my understanding that there are 8 pathways for the body to detox, with methylation being one of them. I am unable to go the route of transsulfuration (glutathione and glycine) as I react very badly to both substances no matter how it is administered. I have yet to try NAC again as I am rebuilding my digestive system from the last go around with glycine. I show many signs of dysfunction in the methylation pathway so I am focusing on that now - like b12 deficiency. Unfortunately I do not have the money for the test - Nutrigenomic Comprehensive Methylation Panel with Methylation Pathway Analysis and so am just doing what is common for boosting the pathway. Not the best way to do it but better than nothing.

    <removed>

    The allergy testing I had done is provocation neutralization which is done one item at a time. The DR I go to pays close attention to ALL my symptoms not just the wheal response. It has proven to be very helpful for me. I think its great that you are so aware of your body and are not discounting your experiences just because your DR told you to.

    My experience is that the only DR's who really understand EI are specialists. All others, no matter how well meaning simplky do not have the knowledge necessary to treat properly as it can be complicated.

    Also have you ruled out LYme disease? It is common with EI and must be addressed if you have it.

    Hope that is helpful,
    Share

    Last edited by mod-anon; 02-11-2009 at 08:47 PM. Reason: do not instruct members to do outside searches

     
    Old 02-28-2009, 08:29 PM   #15
    patriciaf
    Member
    (female)
     
    patriciaf's Avatar
     
    Join Date: Jan 2008
    Location: Petaluma, CA, US
    Posts: 73
    patriciaf HB User
    Re: Mold and infrared treatments?

    Hi Share,

    I appreciate your wisdom so very much! Yes, I have been tested for Lyme so many times I have lost count. It is funny how all the doctors will tell you there is no possibility of Lyme in California but they will send you for testing anyway. One of them finally sent me to THE one lab where EVERYBODY comes back positive (Igenix) and even there I was only borderline. Needless to say, that has been ruled out.

    But you are soooo onto something when you talk of detoxing... whether it be chemicals or mold/fungus or junk food or metals or whatever. I am pretty confident at this point that my issues originated from mold poisoning. I had a most brilliant (and rare) doctor who was helping me with that; he even told me that it would take about two years to clear/detox my system and lo and behold if it wasn't almost exactly two years that I started to finally feel better.

    Unfortunately I developed Myasthenia Gravis and Sjogrens Syndrome because of the fungal infection (which is fairly common apparently... to develop autoimmune disorders not only from nasty viral infections but from fungal infections as well) but even those are better now that I am supported with medication (and maintaining a detox program). I cannot tell you how much better I am doing and how much better I know my own body. I have gotten really good at what foods to avoid, which chemicals to avoid, how much exercise to get, how to keep my lymph glands working efficiently, etc. Of course, I will have to be careful with the autoimmune stuff from here on out but I haven't been to an emergency room since last summer and my heart rate hasn't dropped into the 30's in almost a year!!

    As for doctors, well, don't get me started on their insecurities. Who knew?! I mean, yes, the workings of the body are cryptic and mysterious. So why can't doctors admit that their knowledge is limited? There is no shame in that. But instead of admitting that there is really very little known about the workings of the human body, they often deflect their limitations by insisting there is nothing wrong with you! Can you imagine?!! Telling someone who lives in their body everyday that they are hallucinating!! It really boggles my mind that they think we will buy it. It makes me sad for them. Everyone talks about how you have to be your own best advocate, but I don't even think that puts you in the best frame of mind (too defensive). I think the best focus is truly remembering how limited doctors are. By remembering that, YOU can better support them, which will better enable THEM to help you.

    At any rate, this is all to say that I am very grateful for where I am at now. And I couldn't have gotten here without all of the wisdom shared on boards like this. I would be lying if I said it has all been worth it (I would really rather be ignorant still). My favorite quote came from a wonderful (and humble) and helpful doctor. He said, 'some people get to go through their whole lives without being bothered by the medical profession.' HOW LUCKY ARE THEY?!!

    Thanks, Share, for your wisdom and your willingness to share your experience. I am sure I am not the only one whom you have steered down a successful path.

    patricia

     
    Closed Thread

    Related Topics
    Thread Thread Starter Board Replies Last Post
    Does anyone who has sensitivity to mold spores have teeth that hurt? tiredsoul Environmental Disorders 29 10-08-2011 07:20 AM
    Oxygen Therapy, Glutathione push & UVB light treatments for Mold Exposures? sharewithme Environmental Disorders 8 02-10-2010 05:15 PM
    Toxic mold and nuerological problems Caseymkay Environmental Disorders 15 01-30-2010 09:13 AM
    rental home has mold and I have nowhere to go and the landlord is not helping islaneni78 Environmental Disorders 5 06-02-2009 08:15 AM
    Mold problems suggi Environmental Disorders 67 12-16-2007 02:58 PM
    very sick...toxic mold???? klj700 Environmental Disorders 11 10-17-2007 08:02 PM
    Treatment of Mold Allergies symptoms after moving.. great88 Allergies 4 03-14-2007 12:18 AM
    toxic mold lil'missdiagnosis Environmental Disorders 54 10-23-2005 02:33 PM




    Thread Tools Search this Thread
    Search this Thread:

    Advanced Search

    Posting Rules
    You may not post new threads
    You may not post replies
    You may not post attachments
    You may not edit your posts

    BB code is On
    Smilies are On
    [IMG] code is Off
    HTML code is Off
    Trackbacks are Off
    Pingbacks are Off
    Refbacks are Off




    Sign Up Today!

    Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

    I want my free account

    All times are GMT -7. The time now is 01:08 PM.





    © 2020 MH Sub I, LLC dba Internet Brands. All rights reserved.
    Do not copy or redistribute in any form!