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Do epileptic seizures ALWAYS have a trigger or do they have some without? Questions.

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Old 09-01-2017, 02:21 PM   #1
Join Date: Sep 2017
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RickStevens HB User
Question Do epileptic seizures ALWAYS have a trigger or do they have some without? Questions.

Is it possible that epileptic seizures ALWAYS have a trigger or do they usually have at least some episodes with unprovoked causes? I also have some other questions.

I know this isn't a suitable replacement for a diagnosis, but I'd like to know what others would think this is?

Back in 2008, when I was 19 (almost 20) I started going through a very stressful time with A LOT of anxiety, OCD and an all around bad mental state. I started having seizures (or possibly syncope/passing out with convulsions). I never had anything like this prior.

I became VERY worried about them, but my mind eventually improved and it seems that since then there were no more seizures for almost a decade. I didn't really worry or think about the episodes anymore.

Eventually, I started having major problems with anxiety, OCD and health worries yet again. Then in July 2017, I started having seizures again, which seemed to coincide with the returning stress.

I tired myself out doing as much research as possible and this sounds more like pseudo-seizures (now called psychogenic non-epileptic seizures) to me caused by anxiety or quite possibly convulsive syncope which seems to be much more common than previously thought.

It seems that if I keep my mind clear (which is VERY hard to do, but possible with enough effort), I don't feel any different than normal. Healthy. But if I find myself focusing on my health concerns or fear of passing out, it seems to happen. If I am lucky enough to focus my attention to something else, it seems to dissipate and I am able to avoid anything happening.

From my research, it seems like everything I read says that you need multiple "unprovoked" seizures to be considered to possibly have epilepsy. I only ever had seizures/convulsive syncope when focusing on worries about something (or worried about having an episode in the first place), or severe anxiety/stress/etc.

I know it can't be determined with absolute certainty without the proper tests (and even then I read about wrong diagnoses), but what is the likelihood of having epilepsy when:

-The seizures/convulsive syncope spells only happen when focusing on worries (or having an episode in the first place), or severe anxiety/stress/etc.

-They were NEVER unprovoked without knowing they're coming on and having time to prepare/sit down. I always lose consciousness. I have no "auras" or anything other than the same feeling you get when about to faint or worried about it. No hallucinations (visual/auditory, or otherwise).

-Started in 2008 at age 19. It is rare to start at that age, as it's usually in very young children and the elderly. However, psychogenic non-epileptic seizures commonly start in young adults.

-Stopped in 2008 with no medication after the worries/anxiety/stress dramatically decreased and I decided not to care or think about it much anymore. It returned in 2017 around the time the worries/anxiety/stress came back along with severe health worries. Also when I went to the Emergency Room after one, I was treated for severe dehydration. I also had a CT, EKG, CBC and all came back normal. The doctor seemed to think it was likely a psychogenic seizure.

-There is no family history of epilepsy, but my mother has been known to pass out from health fears/worries. Same with one of my aunts.

-If squatting on the ground and I quickly stand up, I get severely dizzy and feel like I could pass out. This indicates a tendency for blood pressure to rapidly drop and people who experience this are prone to syncope (in one study, 12% of people who faint have convulsions that mimic seizures).

-Every consecutive episode seems to be less severe/scary than the previous ones, maybe because I fear it less each time until it eventually stops completely? This just screams psychological more than physical.

-I've never accidentally went to the bathroom when I passed out.

-I seem to have a high pulse. One doctor thinks that when I get anxious/panicked, my heart rate goes so fast that my brain doesn't get enough blood (or oxygen), which leads me to pass out with a convulsion.

It seems like this whole situation could be avoided if I keep myself occupied, which seems impossible with neurological or cardiology problems.

Anyone else have a similar experience?

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