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lar17 01-24-2019 12:46 AM

Medication issues
 
Hi I have had epilepsy for 42years and have been given medication by different doctors over the years. I have practically been used as a lab rat,and have had so many different side effects that it isn't funny. What my question is, if anyone feels that not just the seizures themselves, but the medications. Have also caused more damage to our bad mood swings? What do you think?

Lainie45 04-26-2019 05:01 PM

Re: Medication issues
 
[QUOTE=lar17;5491771]Hi I have had epilepsy for 42years and have been given medication by different doctors over the years. I have practically been used as a lab rat,and have had so many different side effects that it isn't funny. What my question is, if anyone feels that not just the seizures themselves, but the medications. Have also caused more damage to our bad mood swings? What do you think?[/QUOTE]


Hi. I know it's been a few months since you posted this, but I just saw it. (I don't visit this board that often.)

I've been on anticonvulsants since 1992, since an abrupt attack of 3 tonic-clonic (or grand mal) seizures on Easter that year (not from chocolate, it started before I woke up).

Lately (well, for a while) I have been wondering what the long-term side effects are. I am concerned with my memory and some cognitive issues. I'm not sure about mood swings specifically, but I have definitely had anxiety issues.

I have also recently been diagnosed with Fibromyalgia and Osteoarthritis (multiple joint) and I was told that the Fibro is related to nerves, so I am wondering if the seizures have any influence on that.

Of course, there have been, and still are many other meds since then. It seems to be a domino effect.

Lainie

mr90 09-21-2021 07:33 PM

Re: Medication issues
 
I hear you!!

I have tried 26 medications in 2 years at this point, I feel like a trial and error situation just like when I was a kid and Asthma medications weren’t a thing yet … except when they tested them on me.


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