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  • Life after epilepsy surgery ...

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    Old 02-05-2020, 09:02 PM   #1
    luciyaa's Avatar
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    Exclamation Life after epilepsy surgery ...

    Greetings all,
    I had temporal lobe epilepsy surgery about a year ago and it definitely has not been easy. There really needs to be more info out there about what happens after and not could happen. I have adult onset epi, I didn't get this until my 30's , and not from any injury.. Definitely a life changing thing. After the surgery I have had serious depression and they have been all over the place trying to find something that helps. There are days I just plummet and for no reason and than the next few days its ok... It is so hard dealing with this alone and not having anyone to talk to who gets it..... So has anyone else had the surgery??


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    Old 02-07-2020, 08:25 PM   #2
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    Re: Life after epilepsy surgery....

    I have not had this surgery, but some neurologist told me years ago, I would be a perfect candidate and I highly questioned his word. I would be upset if I were you! Neurologists are quick to tell you this will help and that will help, but I doubt most of their words. They have drugged to me to the hill-years ago-just to try out different medications when I had been on something that I could live with, even though not controlled. I just recently read there is some new device they can plant in the brain that will help, but no one goes on to say the horrors of brain surgery. Keep your chin up, if possible.

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    Old 09-19-2020, 08:54 AM   #3
    Travis from MN
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    Re: Life after epilepsy surgery ...

    Sorry to hear yours didn't work out. I had an anterior temporal lobectomy in the left hemisphere, the area where my seizures originated from. That surgery was back in 2012. My seizures started in 1981 because of a brain tumor.

    Thankfully my surgery was a success. I had a slight hiccup right after because the CSF was not draining properly. Other than that my meds have greatly been reduced. Keppra is down to 1000/day from 5000. The lacosamide is the main worker, so that isn't being adjusted.

    The surgery that really intrigues me is the Laser Ablation. Only a small hole is needed to get in the skull rather than taking off a large section of skull to gain access. MRI guided, recovery is faster for patients as well.


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