It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....

Epilepsy Message Board

  • my misdiagnosed epilepsy

  • Post New Thread   Closed Thread
    Thread Tools Search this Thread
    Old 07-22-2004, 12:51 PM   #1
    Senior Member
    maggie39's Avatar
    Join Date: Jun 2003
    Posts: 153
    maggie39 HB User
    my misdiagnosed epilepsy

    Hi everyone. I was misdiagnosed with epilepsy, but now I'm fine, and I want to share this in case one of you is also misdiagnosed.
    About 20 years ago, I was diagnosed with epilepsy. Grand mal kind of seizures. I would get very sick to my stomach, hot, sweaty, short of breath, then unconcious. I would wake up shortly after hitting the floor and while I would still feel pretty sick (often would need to throw up or have diarhea) I was never "confused". People would say I was very pale, usually appeared to be "fainting" but sometimes was described as having a little movement - like twitching, occasionally a "tonic" state with the stiffness and arching back, lots of sweating. At least once I did "cry-out" as I went out.
    I was put on dilantin, but continued to have these events. Finally after 10 (miserable) years on the dilantin, I went off and just didn't take anything. I continued to pass out. Then one day, when one of these events occured, there just happen to be a paramedic there. He said I fainted. When I explained that I had epilepsy and that my seizures just look like fainting, he insisted that he thought I fainted. Since I was never totally convinced of the diagnosis, this prompted me to do a little research on the internet. I found something called "neurocardiogenic syncope" and bingo - symptoms are very similar. I went back to my neurologist (mind you this is the 3rd neurologist who ALL said "epilepsy") and I asked him about my EEG. He said it had some "blips", so I asked him more pointedly about whether there was a "spike wave pattern" indicative of epilepsy, to which the answer was no. At my prompting, he sent me to a cardiologist who felt that it was neurocardiogenic syncope - basically under certain circumstances, my blood pressure drops precipitously and I pass out - if I'm out long enough, some seizure like movements can happen. I've been treated for that and sure enough - after 20 years of passing out 3-6 times per year, I've now gone over 18 months without one episode!!
    Most of you probably really do have epilepsy, but if you have doubts, follow up on those doubts!

    Sponsors Lightbulb
    Closed Thread

    Related Topics
    Thread Thread Starter Board Replies Last Post
    Anyone Misdiagnosed BP & Instead Had Major Depressive Disorder For Years? salty Bipolar Disorder 66 04-21-2009 12:25 PM
    2 year old - night terror or epilepsy???? please help caseymay Epilepsy 6 04-22-2008 04:39 AM
    Question for moms about kids w/epilepsy amyanne1 Epilepsy 3 01-10-2007 02:24 PM
    Juvenile Myoclonic epilepsy fionaa Epilepsy 8 12-02-2005 08:48 AM
    Epilepsy and depression? Please respond. Sanguine Epilepsy 20 08-12-2005 10:27 PM
    my fiancee told me he has epilepsy. thedrummersgirl Epilepsy 4 07-21-2005 01:28 PM
    Childhood Epilepsy Memory Loss baraka Epilepsy 5 12-23-2004 10:20 AM
    Concerned...myoclonic epilepsy or not? isbeautiful Epilepsy 3 03-23-2004 03:45 PM
    epilepsy? i am not so sure LisRho Epilepsy 4 03-19-2004 04:47 AM

    Thread Tools Search this Thread
    Search this Thread:

    Advanced Search

    Posting Rules
    You may not post new threads
    You may not post replies
    You may not post attachments
    You may not edit your posts

    BB code is On
    Smilies are On
    [IMG] code is Off
    HTML code is Off
    Trackbacks are Off
    Pingbacks are Off
    Refbacks are Off

    Sign Up Today!

    Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

    I want my free account

    All times are GMT -7. The time now is 08:16 PM.

    © 2021 MH Sub I, LLC dba Internet Brands. All rights reserved.
    Do not copy or redistribute in any form!