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I had Stevens-Johnson syndrome!!

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Old 01-09-2005, 11:46 PM   #1
Join Date: Mar 2004
Posts: 59
wokstar HB User
I had Stevens-Johnson syndrome!!


haven't been here for a while. Thought I should make an appearance again

Wow, I have just discovered that I began to develop Stevens-Johnson syndrome at age of 16 (I am now 22) from an allergic reaction to tegretol. I had the warning signs after 2 weeks. It is a very serious syndrome that can be life threatening. I am so thankful that my mom made the connection and went to my doctor, cause at 16 you don't think too much about that (well i didn't).

My symptoms:

Horrible looking rash all over body
Itchy skin
Many mouth sores
Irritated, red eyes
Sore throat
Dry, cracked lips

I did not think that any of these had anything to do with my tegretol. As I had just began to be a camp counselor at a sleep away camp. I thought i was just getting sick and having environmental allergies. And had a heat rash. But I have now discovered that it was Stevens-Johnson syndrome! If I had continued on the drug it could have done me serious damage.

I am now on lamictal and it is much better. However there is a risk of the syndrome as well. What is funny is that while first taking the drug I was informed that this could happen...and was worried and made use to check for any rashes, and was concerned. Wow, little did i know I had already experienced the early signs of the syndrome!

I encourage everyone to educate themselves on can be serious and can happen. I had a 2% chance on tegretol and got it

I"m glad I could it early

Last edited by wokstar; 01-10-2005 at 12:24 AM.

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Old 06-05-2005, 02:39 AM   #2
Join Date: Jun 2005
Posts: 4
RadRacho HB User
Re: I had Stevens-Johnson syndrome!!

Lamictal is what caused me to get SJS last summer.

PLEASE be careful.

I do agree with you though, people do need to understand what this is.

Old 06-06-2005, 02:30 PM   #3
Senior Veteran
Join Date: Dec 2002
Location: Dayville, Ct. USA
Posts: 765
kayakmom HB User
Re: I had Stevens-Johnson syndrome!!

Thanks for sharing your story. It is important to understand what to watch for!
mom of 2 teens who have battled seiuzres.

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