Re: Confirmed She Does Have Nocturnal Epilepsy
I read this a few days ago but didn't have time to respond then. I have had epilepsy since childhood and have never heard of a diagnosis called sleep epilepsy. However, some do have seizures only during their sleep which is where her doc probably got the term. Mine started that way. We still have epilepsy though and not just sleep epilepsy. That leaves the door open for seizures to occur in the daytime too. My parents did not know I was having seizures in my sleep either, and thus I received no treatment. You have many more and much better options today than my parents did, and you also have the wisdom to have had it checked out. Not treating them allowed it to worsen over time as uncontrolled seizures will. In time, they appeared during the day as well. The roller coaster continued. Considering that some kids outgrow seizures, keeping them at bay is necessary to allow that to happen if it is going to. Her age is important too as is how long this has been going on. Considering all of this as well as the side effects of the meds and their effect on quality of life, please make your decisions re treatment based on all of the issues concerned. Phoebe
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