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    Old 06-30-2006, 04:33 PM   #1
    kfelcher
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    right temporal lobe

    Hi. I had a partial seizure out of the blue 2 years ago, I was 36 years old. Since then I have been through alot. Up until Wednesday they thought with everything going on that I might have MS. Now, I went to a new neuro specialist and he found 2 areas in question. One being the right temporal lobe, which he stated was epilepsy area( I have only had the one seizure), and then the top of the brain didn't look clear. On the paper the dx was possible Quadrplegia. Oh, and the right temporal lobe. Does anyone have this area affected, and know the outcome of this particular area? I need so many answers, and I'm so frustrated. PLEASE HELP, if you can. THANK YOU.

     
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    Old 06-30-2006, 07:28 PM   #2
    valeriedl
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    Re: right temporal lobe

    I don't know if this is really answering your question but here it goes:

    I started having sez out of the blue about 3 years ago and have horrible memory loss because of them. On my last visit to the neuro I had an MRI done and there were spots on several parts of my brain that the neuro said were caused from the sezs. There is nothing that I can do about them and because of them I have a great bit of memory loss. I don't know if that is what you are dealing with but you could ask your dr about them on your next visit. You could find out if it's something that may heal (and how long it will take), or if it will be something that you will have to live with and what the side effects are.

    Good luck!

     
    Old 07-01-2006, 05:52 PM   #3
    jerrytom
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    Re: right temporal lobe

    The right tepmoral lobe is what it sounds like. It's located by the right side near your temple. It's involved with memory, emotions, language and behavior. It's involved with much of the higher human functions. The thing is you have a right and left temporal lobe. If your right handed, usualy most higher functions are in the left temporal lobe and the opposite for left handed people. I have right temporal lobe epilepsy and had gamma knife surgery 2 years ago. Most people who need it have a temporal lobectomy, a standard surgery. All people with TLE don't need surgery, only the ones who can't get control or who have bad side effects from meds. I hope you find you don't have epilepsy, just some random seizure, and I'll pray for you tonight. Jeff

     
    Old 07-06-2006, 02:55 PM   #4
    kfelcher
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    Re: right temporal lobe

    Thank you both for some help. I haven't been able to get to the computer. Schools out, I have to fight for time now. Again TY

     
    Old 07-06-2006, 06:43 PM   #5
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    Re: right temporal lobe

    Seems like you'd know if it was quadraplegia, since that is paralysis of all four limbs, either partially or completely.....

    I've got right temporal lobe abnormalities on my EEGs, but my MRI was clear. If you've had febrile seizures as a kid, they look for mesiotemporal sclerosis, or some scarring in the mid-temporal area. Many MRI abnormalities don't effect functioning, but may be areas more prone to seizures. They just give the doc an idea of what's going on, and what to do for the seizures.

    If you've had temporal lobe seizures, there may be times when you don't remember them, or have them in your sleep- so there may be additional seizures to the one you have memory of.

    Do you get an aura, or warning? It's really a simple partial seizure, but lets you know that a complex partial seizure is coming.....

     
    Old 07-07-2006, 10:59 AM   #6
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    Re: right temporal lobe

    Just found out yesterday that my EEG abnormality is in the right temporal lobe...(lefties unite!)
    Anyway, auras/simple partial seizures, don't always lead to a complex partial seizure, correct? You can just simply have a SP, is my uncerstanding.

     
    Old 07-07-2006, 12:44 PM   #7
    Sherri5186
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    Re: right temporal lobe

    Yes, you can just have a simple partial,they all do not
    lead to a complex.Good luck.

     
    Old 07-07-2006, 01:02 PM   #8
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    Re: right temporal lobe

    All partial seizures at one time were catigorized the same and called temporal lobe seizures. Most partial seizures focal point is in the temporal lobes. The trouble with preparation for surgery is making sure they are partials and finding which lobe, right or left, the focal point is. If they find you have seizures starting in both temporal lobes, surgery is out. If they find a focal point in one lobe they do more testing to find what funcions are proccessed in that lobe. If your left handed usually the critical functions are in the right lobe, that's the saying, only lefty's are in their right mind. LOL I've read in the past few years that now surgery shouln't be thought of as a last option for people with TLE. If you've tried 2 or 3 meds and still have seizures you should ask about surgery. It sounds really scarey but it's a possible "cure" for TLE. Many people go off meds completely and have no seizures. To me, that'a a miracle! Good luck and you will all be in my prayers tonight. Jeff

     
    Old 07-07-2006, 03:51 PM   #9
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    Re: right temporal lobe

    Seizures can come from any part of the brain, and still be categorized as simple or complex partials, depending on the symptoms- not all areas are visible on EEG, depending on the depth of the seizure locus (location of where symptoms come from). You can have simple partials that only involve a weird feeling in your stomach, or dizziness and be completely aware of them, or you can have seizures that start out as something you're aware of, then progress to complex partials, where your awareness/consciousness is altered or 'gone' (varies), and those can continue on to generalized seizures (the old term was grand mal), where you're unaware, and both sides of the brain are effected- it just depends on your specific symptoms and where in the brain you have trouble. Some people have EEG patterns that are almost identical, but their seizure patterns may be very different....and some people with "normal" EEGs between seizures have very intense generalized seizures. It's so individualized- there are some things that don't change much, like which parts of the brain are mostly responsible for what things/symptoms- much like strokes (not saying seizures lead to strokes) but by looking at the symptoms, a doctor can often tell which part of the brain is effected even before seeing test results....that's why diaries are so important.

     
    Old 07-07-2006, 06:55 PM   #10
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    Re: right temporal lobe

    You are correct that seizures can have a focal point from almost any point inside the human brain but as a general rule, partial seizures start in the temporal lobes. I've had camplex partials for 20 years and never had an aura or "simple partial" seizure. I also had many of my CPs generaliize into tonic clonics. Since starting a triple med therapy, I haven't had a generalized seizure but go into status once a month. All my CPs start in the right temporal lobe. If you read a magazine called Neurology Now, neurosurgeons now recommend if you have partial siezures that can't be controlled after a few different meds, try testing for surgery because they now believe each cluster or status state, some brain damage is done which makes it harder to do anything with the condition. I've had an experimental gamma knife surgery for TLE. 40 people in the US were picked for this NIH study. I read alot and do alot of research on all the subjects that effect me. Yes, neurologists used to call partial seizures "temporal lobe seizures", from Froedtert Medical Hospital Clinics and Medical College's monthly magazine.

    If you go to neurologynow.com I think you can subscribe to the magazine free. I had my epileptologist first get the subscription for me and I renew it every year. It's published every 3 0r 4 months. This issue is dealing with brain imaging.

     
    Old 07-07-2006, 07:00 PM   #11
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    Re: right temporal lobe

    xxxxxxxxxx

    Last edited by IJUSTWANNANO; 09-04-2006 at 02:57 AM.

     
    Old 07-07-2006, 07:22 PM   #12
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    Re: right temporal lobe

    status epilepticus is non-stop seizures, that if not treated will lead to oxygen deprivation to the brain, possibly brain damage, and can lead to death. Generally, meds help- if not, they have other means to stop them before the brain becomes damaged. It's serious, and another reason to know your pattern, have a copy in your wallet, and have anyone who may come with you if you have to go to the ER know where it is...it is a wealth of info for ER staff to know your seizure type/usual course, meds, allergies, other medical problems, etc.

     
    Old 07-07-2006, 07:40 PM   #13
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    Re: right temporal lobe

    My CPS also start in the right fronto/temporal lobe, but I do get auras, which keeps me driving, so I'm thankful for the couple of minutes to pull over if I need to, which I haven't had to do, since I limit my driving out of principal, to appointments, and quick trips to the store. I was diagnosed in 1986, after a 24 hour EEG and CT scan - MRI was awhile later (the best they had back then), that showed problems several times in that 24 hours, that I was oblivious to- mostly because I didn't know to look for the aura- now the feeling is very definitive, and it's been present, I just didn't know what it was- but I've heard of a lot of people not having any warning. For the most part, meds have helped, but I can't get any neuro visits on medicaid, since my neuro wants the whole 120 dollar office fee up front, and I can't do that. If I pay her, I can't pay for meds, so my general doc is doing the best she can, and I've been at this long enough, personally, and with some jobs, that I know when something isn't working, or a dose isn't right. Fortunately, I found a generic assistance place, and a Canadian pharmacy where I can get one of the meds way cheaper than here. Surgery is out of the question- one: MRI shows no definitive area, and two: medicaid. My monthly 'deductible' is insane. Yet, I'm on disability for seizures...the thing that could get me back to normal (besides moving away from a horribly stressful place, and going back to where I was doing so much better- September is the date for that) is out of my price range.

    I have had generalized seizures, and what I believe was non-convulsive status, from the description of what I was told. I also have a long, deep post-ictal sleep, that isn't typical of 'plain' CPS...I'm out of it and until I'm "awake", there's no point in waking me up- speech and gait are a mess, and I'm a total space cadet- but by that time, I can hear, and understand, but it's like being under water. My response time is slow, and that is frustrating, especially when the docs/nurses get impatient. I'm a frequent flyer at the ER, which they don't like either. But I live alone, and if I wake up from one, and feel another aura, I call 911- my address/name comes up on their screen, so all I have to say is "need help-seizures", and wobble to the door to be sure it's unlocked. Usually, they find me on the floor, out of it. So, I think there's some generalization, but not total tonic-clonic- but I don't know, since I'm toast by then. One person who saw one said my arms posture in extension, but didn't say anything about my legs. Also have night seizures- tongue and inside of cheek get chewed up, and incontinence is more likely then. I don't know until I get up in the a.m., and find the chewed areas or wet bed.

    But everyone is so different. I've seen tons of seizures and no two were alike. But each person tended to have a consistent pattern for them. Back to the importance of the diary....

     
    Old 07-08-2006, 05:35 PM   #14
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    Re: right temporal lobe

    Thanx for that link, Jerrytom! And thanks to everyone else for the info. Even tho' it scares the crap outta me.

     
    Old 07-08-2006, 05:52 PM   #15
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    Re: right temporal lobe

    It used to scare me until I got used to the patterns, and had a grasp on what happens. Since I live alone, when I feel the aura, I go to bed, or get on the couch. I can sleep for hours after the parts I don't remember...if I wake up and still have the feeling that it's starting again, I call 911....since the system pulls up my name and address, all I have to say is "need help- seizures", and they know what to tell the EMS guys/gal who are used to me by now.

    In general, I just try to live as normally as possible. There are a few limitations (shower vs bath, being very careful around the gas stove- after I move I'll have electric, thank God- not driving if I feel "off"- a feeling that can start hours before the actual aura, etc). It just takes getting used to your own specific patterns, and dealing with them. I've got a bag for the ER, since they've cut clothes off when I've been extremely unconscious- vs being in and out, and able to help them get my t-shirts off, so they can get the monitor leads on), and have my info in my wallet, and a list of my meds next to my med bottles, so they don't have to take all of them.

    And, being consistent with the meds- that's a biggy. I'm not great with exact times yet (had been on extended release stuff, and just did 12 hour intervals) now, I've got regular stuff, and I've got to be more aware of how I feel- if the autonomic stuff feels funky, that can lead to seizures, so I'm very aware of abnormal heart beats, so I can get my meds....also pay more attention to blood sugar (I'm diabetic, also, but not on meds- just diet controlled-and lost almost 100 pounds). You'll get your own routine down. And you may have to try different combos/doses of meds before you feel 'ok', and you'll know when your body feels more like it should.

     
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