It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....

Epilepsy Message Board

my daughter switching from dilantin to topamax, need help

Post New Thread   Closed Thread
LinkBack Thread Tools Search this Thread
Old 05-10-2002, 07:57 PM   #1
Join Date: May 2002
Location: raton, nm. usa
Posts: 9
natasiatarot HB User
Cool my daughter switching from dilantin to topamax, need help

my daughter is 17 and has seizures since age 5, not many, not daily, but enough for constant meds and worry. she has been on dilantin because she is allergic to tegretol. she is having complex partial seizures for the past 6 months, since a grand mal in january. the doc is switching to topamax and it sounds like a good thing, but i would like input. does anyone else take it? how is it working for you? and i would also like info on complex partial seizures. i am new to this web site, but have read alot of the postings and it is nice to know that there are others out there with this awful thing called "epilepsy". i will be glad to hear from anyone out there that can help us. she is very upset and i am worried

Sponsors Lightbulb
Old 05-12-2002, 01:58 PM   #2
Senior Member
Join Date: Apr 2002
Location: Springfield, MO USA
Posts: 118
Piano HB User

Hi, I had terrible reactions to Topamax, but then again, I've heard some people call it a "miracle drug." My most bothersome side effects were numb and tingling hands (painful), vomiting 5+ times a day, headaches, b*tchiness, and confusion. There were others, but those were the worst. Some people I've talked to never had issues with it, tho. Good luck and keep us posted.


Old 05-12-2002, 03:14 PM   #3
Join Date: May 2002
Location: raton, nm. usa
Posts: 9
natasiatarot HB User

thank you for replying. i am hoping that she does well, she has been on it for 3 days now, weaning off the dilantin, and the headaches are lessening and so far, knock on wood, no complex partials today. she is still very tired, is resting now. so far so good. thanks again for the reply. nice to know there are others out there

Old 05-13-2002, 03:09 PM   #4
Join Date: May 2002
Location: New Port Richey, Florida USA
Posts: 2
rsorrentini HB User

hello my son is 10 years old now, and he has Lennox-Gastaut Syndrome, he suffers from many types of seizures, he has been on most of the medications, now he is no depakote, neurontin, topamax, and diastat.
we now have him on the topamax in the morning and zonegran in the evening. Topamax makes you lose your appetite, so watch out for that. It has side effects like all medications, but like everyone is different so well the effects of the medications be to your child. Be strong, always ask questions, take notes, remember you are your child best advocate.

Old 05-14-2002, 12:31 PM   #5
Junior Member
Join Date: May 2002
Location: toledo, oh, usa
Posts: 22
PatM HB User

Everyone with epilepsy is different. From my own experiences with complex partial seizures, i would tug at the neck of my shirt or play with my lappel. Durring the seizure, i will be unaware of my actions and i am told that i make a grunting noise. Durring my simple partial seizures i am aware of tugging at my clothing and i am aware that someone may be talking to me but i can not coherently respond to them. i do not make a grunting noise durring the simple partial. my side effects with topamax was an awfull mood swing. others i have spoke at a monthly group meeting in real life have experienced simular side effects. i am now taking dilantin and lamictal. don't forget everyone is different.


Old 05-17-2002, 06:06 PM   #6
Join Date: May 2002
Location: raton, nm. usa
Posts: 9
natasiatarot HB User

thanks so much for your replys. it is very heart warming to know that there are others out there. she is doing much better,headaches are almost completely gone, and only a very few complex partials, YEA!!!!

Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
Switching from Dilantin to Lamictal? wdmoor Epilepsy 7 12-23-2010 07:46 PM
Dilantin didn't work, what to try next ? MikkiMantle Epilepsy 3 04-26-2009 11:22 AM
Thinking of Switching medication. Help! phuenink Epilepsy 6 10-30-2008 01:42 PM
Dilantin Levels bgcg2001 Epilepsy 18 08-10-2008 06:51 AM
My husband is switching meds, how long should he not drive? imaworrier Epilepsy 3 07-03-2008 06:53 AM
Dilantin levels Lee1672 Epilepsy 9 01-03-2008 06:08 PM
generic for dilantin/nightmares pillster Epilepsy 34 03-08-2006 08:36 AM
Dilantin & sleep issues Ann67 Epilepsy 4 02-13-2004 06:23 PM
Switching from Dilantin to Depakote Phantom_309 Epilepsy 3 05-10-2002 06:46 PM

Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off

Sign Up Today!

Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

I want my free account

All times are GMT -7. The time now is 03:57 AM.

Site owned and operated by HealthBoards.comô
© 1998-2018 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!