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getting it all out (long!)

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Old 06-09-2002, 08:56 AM   #1
Join Date: Jun 2002
Posts: 4
stretch HB User
Post getting it all out (long!)

Me- WM, 43, married, father of 10-year old son.

Wed.-Returned from a short vacation last week and after riding in A/C vehicle for 8 hours, I unloaded the car in 90-degree heat, then drove my hot vehicle to A/C grocery for provisions, back to hot car to drive to in-laws to pick-up our mail. I felt a little dizzy while walking to their door but rationalized it was the temperature differentials and didn't give it much thought. That's when I fainted. Found myself in shrubs next to the front porch. I felt embarrassed but none the less stood up and let myself in, got the mail and drove home.

Thurs.-Called my doc and explained what happened and he asked me to come on in. He suspected a vaso-vagal response but for safety sake scheduled an EEG for last Friday.

Fri.-Went to Neurologist had EEG. The EEG tech said afterward that she didn't think I should drive home but would check with the Neurologist. He said my GP should make that call since I technically wasn't his patient. While removing the sensors from my scalp, the tech regaled me with the story of her brother who had recently had brain surgery to remove a tumor from his brain stem. She said he was doing well but still blind in the left eye (very reassuring story to be telling someone who has just been told they probably shouldn't be driving because their EEG results were "abnormal".) I drive back to my GP and meet him and he tells me no more driving until CAT scan this Wed. Then, I suppose it is up to the Neurologist as to what happens.

I'm scared to death.

My sister had a brain tumor in 1954 at the age of 6. She dealt with epilepsy her whole life until her accidental death in 1989. I remember her rough times growing up, being teased, being sheltered by parents that loved her so very much. She felt slighted, put upon, different. She just wanted to be like everyone else.

Silly, but after only a couple days of this experience I can see many things she complained about oh so clearly. I never really knew, and that makes me sad. I know I am very fortunate and should be grateful for what I have, but I can't help feeling angry about it at this point. I am abundantly aware that only time will give me some perspective on this but the waiting is always the hardest part.

I will apologize for the rambling, but I always feel better when I can write it all out.

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Old 06-09-2002, 10:24 AM   #2
Beth's Mom
Join Date: May 2002
Location: Ohio
Posts: 92
Beth's Mom HB User

How refreshing to hear a guy write so openly and honestly of his feelings. Stay with this board as there are some very nice people here who have been through it all. Am sorry to hear about your sister but glad that she was at least able to give you some insight. Some medical people are so callous to the fears others experience as they live with medical conditions on the job daily (the woman with the brother who had brain surgery).
We will be curious to know how you do. Keep checking back. We can all learn from each other.
God Bless.

Old 06-10-2002, 08:45 AM   #3
Join Date: Apr 2002
Location: VT USA
Posts: 446
Krazykcio HB User

Dear Stretch,
I am so sorry for your pain. I am 47, and had my first seizure 9 months ago (followed by a few more.) I am supposed to get my lisence back in late July. Having a seizure disorder has been life changing for me and my family. The EEG Technician I dealt with was the total opposite of yours. He was kind, but with each question I asked he would say, "I'm not qualified to answer'll need to speak to the Neurologist." I'm sorry your Tech. was so "open" with you. I suggest you mention it to the Doc., since it was totally inappropriate. I wish you luck in finding the answers you seek. Hope you are doing well. Kathy
When Mamma ain't happy ain't noone happy!

Old 06-13-2002, 12:34 AM   #4
Join Date: May 2001
Location: Chicago,Il
Posts: 98
pacemaker HB User

Hey Stretch:
I think everbody that post on this board is there
to support each other. I had my first seizure at
age 49 just out of the blue I guess I have been
lucky I haven't had a seizure in about 2 yrs.
We are all there for you !!!!!

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