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Experience, strength, or hope ???

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Old 02-15-2003, 08:55 AM   #1
Join Date: Feb 2003
Posts: 1
FLFish HB User
Question Experience, strength, or hope ???

This is my first time to a message board. I've had epilepsy for 26 years. I take dilantin & my seizures have pretty much been under control provided I take care of myself. However lately I've been experiencing some problems & I think that maybe it could be related to my meds. I have been very nervous, twitching in left eye, difficulty sleeping, dull headache, blurred vision. I have been awaking in the middle of the night & having aniexty attacks. In the past 10 days I have had 2 siezures in my sleep. All of this has me very concerned & I'm wondering if anyone else might have experienced any of these symptoms. I have a good job that I don't want to lose. Any experience, strength, or hope would be appreciated.


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Old 02-15-2003, 10:22 AM   #2
Join Date: Feb 2003
Location: elk grove, ca , usa
Posts: 91
violarose HB User

i am not a doctor, alot of people have been complaining about their meds- and wondering if there meds are doing it. i would think twice about it. i am just starting on meds, and my docs say all that is from the seizures itself. so perhaps its your brain causing all that trouble???? it wouldnt hurt to ask your doctor, because those are not fun- what you are having.

Old 02-15-2003, 07:52 PM   #3
Join Date: Jan 2003
Posts: 80
simeone HB User

Hi There

This is just my opinion. Maybe you should check your dilantin levels maybe they are to low are too high.Keep in Touch and Take Care.

Old 02-18-2003, 08:28 AM   #4
Join Date: Feb 2003
Location: Saint Paul, MN USA
Posts: 8
iamnotmagic HB User

i've never gotten my seizures under control but alot of the meds have given me similar symptoms- talk to your neuro and see if they can recommend a good vitamin or try yoga for stress reduction
my mind is an electrical storm...activity, fluidity, movement, excitability, lack of control. life goes on.

Old 02-18-2003, 10:34 AM   #5
Join Date: Feb 2003
Posts: 97
nicola_76_uk HB User

The previous posters have given great advice. I just wanted to say that you're in my thoughts and prayers.

Take care and keep in touch. Nic

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