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slvs 12-14-2006 10:40 AM

Topamax ?
I am going off dilantin and about to go on topamax- not very happy about it either. I wanted to take a poll and find out if you lost weight while on it, what was your dosage and how much weight you lost.

Thanks. Happy Holidays.

IMNRVUS 12-14-2006 06:14 PM

Re: Topamax ?
Sorry, I can't help you with topamax info.
I've only taken dilantin.
I've steadily gained some unwanted weight.
How much dilantin do you take and how long have you taken it?
Did you gain some weight?

slvs 12-15-2006 07:05 AM

Re: Topamax ?
I take 400 mg of dilantin. I have put on about 10 pounds since I went on it. My main side effect was/is exhasution. It has gotten better as time has gone on, but 8 years later I just don't have my energy level fully back. (At first my husband couldn't even take me to a movie because as soon as the lights went dim I fell asleep!) Actually to me that's the main reason for my weight gain. I used to work out religiously, but with the seizure meds I am so damn tired.

Good luck.

Travis from MN 12-15-2006 08:18 AM

Re: Topamax ?
You might want to TAPER OFF Dilantin (meaning the 30's) so not to cause problems with a fast drop. Thats what I negoatiated with my Dr when introducing Topa. Basicly a cross-fade. I was on 30 or 60 of Dilantin when I started the Topamax to avoid problems like I had with Zonegran a couple of months prior; we didn't want that to happen again!

As well it DOES take a week for Topa to level out in your system, thats why they only bump you with 25's in the beginning. They don't want to shock your system. Later on they MAY BE able to increase you with a full 100 or 50mg IF NEEDED depending how tollerent your system is.

Anyway, Couple of warnings; Topa above 200/day caused *ME* to have issues with loss of appitite (had to FORCE myself to eat; STILL DO). Also Energy level dropped around 300 or 400mg. I couldn't pull a 10 mile bike run like I did before.

Food aroma's DID trigger the desire to eat (other foods). Otherwise I could easially go a day and not be hungry. So be warned about that. Some foods and soda's will taste DIFFERENT when on Topa.

Best of luck on it.


IMNRVUS 12-15-2006 09:08 AM

Re: Topamax ?
Dilantin does make me a little tired, but if I get enough sleep I'm usually good for most of the day.
Thanks for your info. Good luck to you too!

soccerschmee14 12-16-2006 01:08 PM

Re: Topamax ?
the first time i was on topamax(i think 400mg) it did affect my weight but not by much. i was only on it for 2 wks i think bc it wasnt helping my szs. i noticed, though, in that time that i wasnt hungry often and that i was starting to lose some weight. i am now on topamax again but take it with depakote. depakote makes you gain weight so they kinda cancel each other out and my weight is stayin steady now. im only on 150mg right now though as im increasing to the desired dose. ill prob get to 200 mg and then go from there.

Toolfan 12-17-2006 08:38 PM

Re: Topamax ?
Hi. I was put on Topamax after Zonegran and both doses were 300mg's - I began to loose the weight on Zonegran... You could put my favorite food in front of and I couldn't even force myself to eat it.. I was 136lb.'s I rapidly starting losing weight. I went to my Neuro. an was then put on Topamax and it did the same thing. I am now 105lb's. I could go a whole day or two w/out eating easily. Therefore of coarse my energy level dropped. The best advice I was given was to drink the Carnation Instant Breakfast (which carried all the vitamins & minerals I lacking.) It really helped. I felt full like i just ate. My energy level wasn't so bad. And I was also was advised to take a daily vitamin,BUT NOT the normal vitamins. My body was too weak to handle them - I was actually suggested stongly to take the childrens "Flinstones Vitamins" 2 a day. Also to help with lack of vitamins in my body. I tried to drop my milagrams to 250, but I ended up having (4) Grand Mal's in (2) months. Knowing I had to be on 300 mg's - I absolutley was livid at this side effect & couldn't take it anymore. I went back to my neuro very emotional and upset the weight loss was unbearable. I am 5' 5 1/2'' and I looked like I was anorexic or something. I was ******. I couldn't stand looking at my own body. I was actually beginning to see my ribs. Not okay!! My doc. then put me on Lamictal at 300mg's and I was informed that this side effect was not a part of this particular drug. I will admit that my appetite is a lot better, but it is still difficult to put the weight back on. I really don't see myself ever being back to the weight I was. I am a size (0). I still on occasion will only eat once a day,but at least I am eating again and I still drink the Carnation Instant Breakfast to help me out energy wise and so on. I am very aware that eating only once a day isn't exactly good either,but at least my stomach is now letting me know that I need to eat. If I were you, I would get the hell of this drug and try Lamictal or something else. Don't let it be Zonegran though. That was hell getting on - I felt so sick getting on it and my appetite was gone pretty much right away and when I switched to Topamax - nothing changed as far as that goes. I really hope this helps you out. I also take Klonopin at night to help with the seizures & anxiety, but only a small dose of 1.0mg's it is known to also help with anxiety as well which I found that all these drugs pretty much come along with.
Please consider the information I have told you and get your butt into that doctor of yours and change the seizure med. Get off of Topamax!!!!
Let me know how it goes.
Take good care.

painterguy 03-10-2007 02:55 PM

Re: Topamax ?
I was on topamax for several weeks and lost I think something like 27 lbs. I only weighed 154 at a tall six one so I was skinny. The funny thing is; I was so wacked out on this drug I had no idea I had even lost any weight at all. I definitely became a different person on this drug. Anna Nicole Smith loved it!

ItsMeMike 03-11-2007 12:22 PM

Re: Topamax ?
I take 50 mg of Topamax, since Im on such a small dosage of it, it doesn't affect my eating habits. But I do realize even a small amount Im on affects my memory and the thought process that I want to come through. Some times it will take 5-6 secs to think of a simple word that should have just flowed with the sentence. Zonagran done the same thing.

Not defending ANS but she used it as a Migraine medicine, which is what the FDA approved it for first.

Travis from MN 03-11-2007 04:41 PM

Re: Topamax ?
Mike, the migraine use of it was approved AFTER it's use for seizures I am pretty sure. It was being used "off label" for that prior to official approval by the FDA for that use.

Test numbers (people involved) indicate more (tests) have been done on epilepsy orientated groups than migraine. The test group for headaches in fact used the 50mg (if it was the tablet, that was not that long ago). You can pull up the history on medication adn when it was approved for what treatment. Topa was approved for seizure treatment in 1996. For use (official) to treat migraines came later.


Toolfan 03-13-2007 05:27 PM

Re: Topamax ?
I was on 300mg's of that crap (Topamax) and I was 130lbs. and dropped to 104lbs within oh.... I would say 3 months or so. Get the hell off of it and stay away from Zonegran too. It does the same thing! I finally am on Lamictal and it has no side-affect of appetite supprecancy.
Good Luck!


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