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    Old 02-28-2007, 08:00 PM   #1
    beaconeer
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    Seizure Questions

    My main questions are:

    1. Can you have epileptic seizures and not be unconscious?
    2. Is a spike high or low in blood pressure indicate something when present with seizures? Any kind of disorder that involves blood pressure issues and seizures?

    I have 2 types of seizures. The ones I most often have involve strange vocal and breathing noises, usually a warning of visual disturbance or smells or strange sensations in my head, and shaking, sometimes minor and sometimes violent, especially of my right side/right arm. During these seizures my awareness is like a flashlight switched on and off very rapidly, and I get overwhelmed by things around me like more than one person talking to me very easily. When I say overwhelmed, I mean it takes a tremendous effort for me to concentrate to keep ahold of what one person is saying to me, and my verbal abilities are greatly diminished. At the climax, my eyes are closed and I cant talk, but I'm not completely unaware of whats happening around me. My recall of what happened can be sketchy at spots and remembering it is difficult, but I'M NOT UNCONSCIOUS.

    The second type I have only had once or twice. I have been having seizures for 6 years, starting from about 6 months after I had a car accident, so once or twice is extremely rare. This one I can only reconstruct from witness accounts, because I fell down COMPLETELY UNCONSCIOUS. This happened during stressful circumstances, but I did not feel distressed at that moment...not at all. Just suddenly I was out, and witnesses said I had minor convulsions while out. It sounds also like it was under a minute, but again I dont know for sure.

    I've been told I have pseudo-seizures, like anxiety attacks. The funny thing is I have never found any correlation from my seizures and times of distress, except for the ones in which I have been fully unconscious, and now the doc is saying those are probably more properly epileptic seizures. So again, I'm being referred back to the neurologist and told I cant drive anymore...

    The one weird thing I have found is that always my blood pressure rapidly changes either spiking up or spiking down when I've been in the emergency room for seizures. Is this usual? Does it mean something?

     
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    Old 03-01-2007, 01:20 PM   #2
    SentenceDoing
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    Re: Seizure Questions

    Quote:
    1. Can you have epileptic seizures and not be unconscious?
    Yes. There are many, many different types of sezures. Some are called "auras" or complex/partial sezures, where you're conscious the whole time, and the seizure is anything from shaking in any part of your body; feeling "off" like you can't walk straight, or concentrate, or form words correctly; smelling strange smells or hearing things that aren't there...or many other things.

    I actually had a gran mal seizure that I was conscious through a lot of. My doctors said that's impossible, but I know what I went through. Someone else on this board also mentioned being awake through gran mal seizures.

     
    Old 03-01-2007, 04:10 PM   #3
    dogmom
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    Re: Seizure Questions

    I was having simple partial seizures and some complex partial seizures for close to three years without knowing what they were, prior to my "big one."

    As was mentioned above, it can include feeling "off" followed by strange smells, sounds or tastes. I had all of that plus a misbehaving (jerking uncontrollably) left hand that progressed to my entire arm. That was a simple partial seizure. I thought I was overtired or something. You remain conscious the entire time. With a complex partial, you have altered consciousness. Once the simple partial generalizes to a complex, you pretty much lose memory of what is going on around you for up to 2-4 minutes. Those are the kind I have most of all. I just stare quietly, my husband says. Then have a killer headache after all is said and done and remember nothing that had transpired.

    When I had my "grand mal," I didn't remember any part of it. Sorry Sentencedoing, but I've never heard of anyone recalling a fragment of their GTC before, as you lose consciousness once the tonic-clonic part kicks in.

    Last edited by dogmom; 03-01-2007 at 04:11 PM.

     
    Old 03-01-2007, 07:29 PM   #4
    soccerschmee14
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    Re: Seizure Questions

    ive been conscious during some of my grand mals and its the scariest thing ever. my neuro said he thought some of them were non-epileptic even w/ my abnormal eeg and stuff, alot in part bc no meds were working. however, i switched doctors and went to an epileptologist(sp??) and he said they were def. real seizures. yea i know alot of ppl say you cant be awake during grand mals but i am sometimes so... it happens, and it sure is scary.

     
    Old 03-02-2007, 09:49 AM   #5
    SentenceDoing
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    Re: Seizure Questions

    Hey, soccerschmee, I was just doing some research on Epilepsy, and I came across something called "Secondarily Generalized Seizure", which sounds like my Gran Mal seiuzure that I remember a lot of.
    It said it starts out as a simple or complex partial seizure, and then becomes more violent and generalized, and can lead to a grand mal. I think this is what happened to me because I was conscious while it progressively got worse until my whole body contracted into a ball and I couldn't breathe, and then I lost consciousness and had a grand mal (I had bitten my tongue, so I know it continued after I passed out).
    So, I didn't know if you knew about these types of seizures, and maybe you're having Secondarily Generalized Seizures rather than full-on grand mals, which would explain for both of us being conscious through most or all of it!

     
    Old 03-02-2007, 11:43 AM   #6
    soccerschmee14
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    Re: Seizure Questions

    i was thinking that they were secondarily generalized as well, but my dr dismissed them for some reason. like in some cases just one arm will convulse(im awake for that part) and then it will go into a full blown grand mal seizure. so i thought that too, but my doc says no. i dont really know why. and then the ones when im conscious for part of it, it all points to secondarily generalized. but maybe bc since i was a kid they were always the typical grand mal ones he just doesnt think they could be changing or a diff kind...i dont know. and would the eeg show a different pattern or something if they were secondary??

     
    Old 03-02-2007, 01:20 PM   #7
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    Wink Re: Seizure Questions

    To simplify things...a partial seizure involves only one side of your brain. Partial onset seizures can be either simple (person is conscious) or complex (person loses conscious or is an altered state of consciousness). Generalized seizures involve the entire brain and consciousness is lost. If you begin by having a partial seizure (one side of the brain) and it spreads to the entire brain, it is called "secondarily generalized". So, you are right to wonder if you are first having a partial seizure that is secondarily generalizing. A good epileptologist or neurologist (who specializes in epilepsy) should be able to tell the differences on your EEG should you experience an event while being monitored. And, because a person with epilepsy has a "hyperexcitable" brain, your seizure conditions may change - especially if you have had them long term (from childhood). Have you had a second opinion? What kind of medications are you taking? Your thought process certainly makes sense since you are well educated about epilepsy. I would seek the advice of another specialist and get the answers that you are looking to find. Partial and Generalized seizures are treated differently, so it would be in your best interest to find out what you are dealing with. I hope you get the answers that you are looking for! Best of luck...

     
    Old 03-02-2007, 02:05 PM   #8
    soccerschmee14
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    Re: Seizure Questions

    ok so i had 2 veegs this past summer and i didnt have any of my big seizures(grand mals, or w/e they are) just some absence ones. i was going to a neurologist who i didnt like very much. he didnt believe in putting ppl on more than one med, but i kept having seizures on all the diff meds he tried. i would have 2-3 grand mals a wk. i was originally on tegretol but he then switched me to topamax, lamictal, zonegran and none of them worked. i threw in there that i thought that they might be secondary but he didnt think so. but the weird part is that i was on tegretol since i was 5 till i was 16 or so and thats for partial seizures. it worked really good. i only had like 10 seizures in 11 yrs, the only reason i switched was bc he thought that tegretol was the wrong med for the type of seizures i have. after the zonegran i was put on depakote. i really didnt want to go on this med bc of the side effects but he basically said this is the last resort...i really didnt like this doc, but apparently he was the best one in austin. so i then decided to switch docs and now i go to an epileptologist in dallas. he has me on topamax and depakote, and he actually listens to what i want. i havent really talked to him about them being secondary yet, ive only seen him a few times. and the meds seem to be working. ive gone the longest i have gone w/o a grand mal in a long time (4 monthes!!!)

     
    Old 03-05-2007, 11:54 AM   #9
    fishertimm
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    Re: Seizure Questions

    Have you found out any more about the pseudo seizures and stress? My wife is having "seizures" every day and was told has partial seizures brought on by anxiety/stress. But when she has them, she is usually relaxed and watching tv. She has very little stress and it is definatly not an anxiety/panic attack. From what I understand, stress lowers your threshold and can bring them on much easier. She had a veeg done, but did not have any seizures the whole week. A month later, she started having them every day. I video taped them and the seizure Dr. looked at it for 5 seconds and said was not epilepsy, was pseudo seizures. Only problem is, nothing is working. I'm not sure if stress is doing it or if she does have epilepsy and they are missing it because wont do another veeg. I know she will have one now since they happen every night like clockwork. They have taken her off all her seizure medication. We are getting another opinion because I feel like they were to quick in their diagnoses. Especially since nothing happened while on the veeg so of coarse it would not be abnormal. Also, these start with her semi conscious and then she looses it. I can tell when coming on because she "slows" down and her eyes will start to twitch and flutter...

    Last edited by fishertimm; 03-05-2007 at 11:59 AM.

     
    Old 03-09-2007, 07:53 PM   #10
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    Re: Seizure Questions

    my parents have taped my seizures before and the dr said they looked concerning...meaning he thought they were not NES, but epilepsy. he says you can sort of tell by the way the hands posture or something?? the part that is weird is that all my seizures would happen during exercise and that type of reflex epilepsy he said is really really rare. so thats why he thought it could be NES. i worked out during my veeg and nothing happened so he kinda wanted to go back to the NES diagnosis for the seizures i have when i run (he thought i might have epilepsy and NES). and about the NES mine werent during much stress either. i think drs are too quick to say its NES if nothing is working so i think your right to get a second opinion.

     
    Old 03-14-2007, 12:52 AM   #11
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    Re: Seizure Questions

    Hi, I am always consious (sp?) during my grandmal seizures, I can tell ppl exactly how I feel after .. what I felt during and if someone talks to me during (which I find comforting) My very first seizure I had I was nursingmy 3 week old daughter .... I remember holding her and my eyes starting rolling up .. like they wanted to roll back in my head... and my right hand started to go for my mouth ( I always try to bite my hand for some reason) I was thinking OMG someone come get my baby! I had no idea what was happening to me! THen the shaking started .... and as was shaking I started making this ...UUHH noise ... and could taste metal and this buzzing feeling althrough my body .... this was all happening at once .... I could tell I just bite my tounge (didn't hurt) but I could feel the warmth from the blood (sorry gross) It seemed like it went on forever ... but was probably only 2 minutes. I blacked out after I felt the blood .... and the next thing I remember is my husband yelling at me that I was laying on my daughter. I thank God all the time he came out to check on me since she was turning blue when he found her. We went to the Dr's and he told me some people have a seizure once it probably wouldn't happen again ... since the MRI's came back w/ nothing .... a week later it happened again .... it started ut the same , but this time hubby was there with me ..... He jumped outta bed scream (bad words lol) and tried to hold me down while he called 911.... again Dr said nothing wrong me its probably stress from having baby thats brought these on .... its in my head! took 2 years and 3 Dr's to finally admit I had epilepsy. If you have an Epilepsy Specialist (not a nero but one that is just for Epilepsy I would see him/her) Mines made the wold of difference!! I've now been seizure free for 4 years!

    Good Luck!

     
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