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  • I think Keppra has stolen my husband and ruined my 19 year marriage

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    Old 06-22-2007, 04:41 PM   #31
    Beth800
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    Re: I think Keppra has stolen my husband and ruined my 19 year marriage

    vwbug,

    I'm going to get keppra out of my system asap. I really think keppra is a problem. I'd rather deal with renal failure on dilantin than this keppra. I had a rash on the lamictal so that's why they didn't put me on it right away. No one really knows what the serious lamictal rash looks like...at least not 6 years ago. Be careful to look for rashes on your husband...that would be something to tell the doctor.

    I'm so sorry about your husband's odd thinking. Maybe it will be all over when the keppra is out of his body. I also was wondering about something...has your husband's blood sugar been really evaluated? You know I read that blood sugar problems can lower thresholds dramatically. What if when he had his accidents on the depakote, he was having blood sugar problems? My Uncle was so hard to live with for years. One day he told my Aunt he was going to the doctor...he was sick of feeling crummy and having the horrible headacke. The doctor called an ambulance and had him taken to the hospital. His blood sugar and insulin were so off that he was almost in a coma. All those years, everyone thought he was just so hard to be around. He was actually sick.

    You know, doctors focus on the epilepsy...and so do everyone around us. We are capable of getting other deseases...even cancer. If you're not happy just checking the blood sugar, take him to a specialist to check his thyroid etc. Tell those doctors, "Something is wrong. My husband doesn't think like this. What syndroms ect. can a middle aged man aquire that can mess with his head?" You know his seizures could be a blessing. They could be the very thing letting your family know something is off in your husband's health that if caught early, could save his life.

    I'm sorry he's accusing you of so much. It just isn't fair. I'll tell you, if it is the keppra, he is going to feel so terrible about putting you through so much. Let me know if he's getting any better as you titrate down. I'll let you know about me too. I know I am so tired all the time right now. Maybe the keppra and lamictal together are the problem. Is your husband horribly tired?

    Beth

     
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    Old 06-22-2007, 05:13 PM   #32
    Sherri5186
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    Re: I think Keppra has stolen my husband and ruined my 19 year marriage

    Hi Everyone,

    Reading everyones posts has got me thinking about myself,
    I too am on Keppra and has seen a change in myself,especially
    being paranoid,thinking evryone is always talking about me,etc.
    Also,very short tempered.

    What I am wondering though,is how many milligrams you or your
    loved ones are on? I am only on 250mg. (half a pill) a day.I was
    on 2000mg. a couple a years ago.But,even on just the 250mg. I still
    seem to have those thoughts.

    Any info. will be appreciated.

     
    Old 06-23-2007, 08:19 AM   #33
    vwbug
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    Re: I think Keppra has stolen my husband and ruined my 19 year marriage

    Sherri,
    My husband is on 500 mg twice a day. His neurologist will be taking him off the Keppra very quickly he said, once he is on the full dosage of Lamictal.
    Quote:
    Originally Posted by Sherri5186 View Post
    Hi Everyone,

    Reading everyones posts has got me thinking about myself,
    I too am on Keppra and has seen a change in myself,especially
    being paranoid,thinking evryone is always talking about me,etc.
    Also,very short tempered.

    What I am wondering though,is how many milligrams you or your
    loved ones are on? I am only on 250mg. (half a pill) a day.I was
    on 2000mg. a couple a years ago.But,even on just the 250mg. I still
    seem to have those thoughts.

    Any info. will be appreciated.

     
    Old 06-23-2007, 08:29 AM   #34
    vwbug
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    Re: I think Keppra has stolen my husband and ruined my 19 year marriage

    Beth800,
    These are all great thoughts. We do have my husbands blood tested regularly. He has had other issues recently which the doctors are very careful to monitor. He had a small bout with bladder cancer which has been taken care of, and with the depakote, he was always tested for liver function. Cholesterol and psa's are a big topic at this age, so testing there as well. He is going for a bone scan on Friday. Did you know that Depakote also causes bone loss? This is the first time I had heard that one.
    I can only speak for myself, but I wish I had never heard of Keppra. What a horrible miserable drug. As far as being tired all the time, my husband will fall asleep in his chair at 6-7 pm these days which is very unusual. Supposedly the Lamictal is supposed to have the opposite effect. We will just have to wait and see. I am still in the house, and my husband actually spoke to me yesterday for the first time in 21 days (approx) I am hoping this is the Lamictal light at the end of the tunnel. He is currently on 100 MG a day which his Neuro said was the dosage used to control depression, so hopefully things are getting ready to turn around. I certainly hope so, for his sake as well as mine.
    Good luck with getting off the Keppra.
    Quote:
    Originally Posted by Beth800 View Post
    vwbug,

    I'm going to get keppra out of my system asap. I really think keppra is a problem. I'd rather deal with renal failure on dilantin than this keppra. I had a rash on the lamictal so that's why they didn't put me on it right away. No one really knows what the serious lamictal rash looks like...at least not 6 years ago. Be careful to look for rashes on your husband...that would be something to tell the doctor.

    I'm so sorry about your husband's odd thinking. Maybe it will be all over when the keppra is out of his body. I also was wondering about something...has your husband's blood sugar been really evaluated? You know I read that blood sugar problems can lower thresholds dramatically. What if when he had his accidents on the depakote, he was having blood sugar problems? My Uncle was so hard to live with for years. One day he told my Aunt he was going to the doctor...he was sick of feeling crummy and having the horrible headacke. The doctor called an ambulance and had him taken to the hospital. His blood sugar and insulin were so off that he was almost in a coma. All those years, everyone thought he was just so hard to be around. He was actually sick.

    You know, doctors focus on the epilepsy...and so do everyone around us. We are capable of getting other deseases...even cancer. If you're not happy just checking the blood sugar, take him to a specialist to check his thyroid etc. Tell those doctors, "Something is wrong. My husband doesn't think like this. What syndroms ect. can a middle aged man aquire that can mess with his head?" You know his seizures could be a blessing. They could be the very thing letting your family know something is off in your husband's health that if caught early, could save his life.

    I'm sorry he's accusing you of so much. It just isn't fair. I'll tell you, if it is the keppra, he is going to feel so terrible about putting you through so much. Let me know if he's getting any better as you titrate down. I'll let you know about me too. I know I am so tired all the time right now. Maybe the keppra and lamictal together are the problem. Is your husband horribly tired?

    Beth

     
    Old 06-23-2007, 08:33 AM   #35
    vwbug
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    Re: I think Keppra has stolen my husband and ruined my 19 year marriage

    Ray68,
    I am so sorry that your son has these horrible thoughts on Keppra and Lamictal. May I ask how old your son is? My daughter suffers with depression, and until she found her "magic pill", we dealt with the cutting and the attempted suicides. It was the most horrible experience for me to watch her try and hurt herself.
    You are in my thoughts and prayers.
    Quote:
    Originally Posted by ray68 View Post
    My son has had terrible side effects (personality changes such as irritibility, agression) on both Keppra and now Lamictal, and thoughts of suicide with Lamictal, so please be careful! He tried to walk in front of a car the other day!

     
    Old 06-24-2007, 02:06 PM   #36
    shakin stevens
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    Re: I think Keppra has stolen my husband and ruined my 19 year marriage

    Hi,

    Just seen this post and quickly read through,

    I have been being treated for epilepsy for some years in the UK without success. The reason i am posting here is to let you know my side affects, i have been through most drugs and at this point am settled on KEPPRA 1250/1500 having found that to be my threshold i can vouch for the the paranoia and temper side affects they are sometimes almost overpowering it is only my conscience/self-control that keeps me on track. I am sure the 40mg of clobazam a day helps with that.

    My point is that i have been on the lamictal (levitracitam) journey and that caused me some serious problems. (If you want i can describe my experiences of psychosis.) I am just trying to say that with all of these drugs THERE ARE SIDE EFFECTS and you can jump out of the frying pan and into the fire.


    good luck, joe

     
    Old 06-24-2007, 08:18 PM   #37
    vwbug
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    Re: I think Keppra has stolen my husband and ruined my 19 year marriage

    Hi Joe, thanks for your response. It seems every medication for seizures has some side effects. Anywhere from sleeping all the time to not sleeping at all. I am just completely blown away by the Keppra however. After this week there probably won't be any more posts from me. My husband gave me the ultimatum and I am out of the house, and the relationship. Not much a person can do when they are cast off. I will survive, but I hope my husband can figure out a way to take care of himself when I am gone.
    VWBUG

    Quote:
    Originally Posted by shakin stevens View Post
    Hi,

    Just seen this post and quickly read through,

    I have been being treated for epilepsy for some years in the UK without success. The reason i am posting here is to let you know my side affects, i have been through most drugs and at this point am settled on KEPPRA 1250/1500 having found that to be my threshold i can vouch for the the paranoia and temper side affects they are sometimes almost overpowering it is only my conscience/self-control that keeps me on track. I am sure the 40mg of clobazam a day helps with that.

    My point is that i have been on the lamictal (levitracitam) journey and that caused me some serious problems. (If you want i can describe my experiences of psychosis.) I am just trying to say that with all of these drugs THERE ARE SIDE EFFECTS and you can jump out of the frying pan and into the fire.


    good luck, joe

     
    Old 06-25-2007, 01:57 PM   #38
    Sherri5186
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    Re: I think Keppra has stolen my husband and ruined my 19 year marriage

    vwbug,

    Thank you very much for the reply.

    Just wondering if anyone has felt the side effects while being
    on only 250mg.?

    Thanks again.

     
    Old 07-26-2007, 10:06 AM   #39
    TN Bell
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    Post Re: I think Keppra has stolen my husband and ruined my 19 year marriage

    Jezz, I sure am sorry and also sorry that I don't have anything to tell you. I haven't been taking the Keppra very long but so far it hasn't caused me any symptoms like that. It is such a scarry situation when you are feeling so wierd and cannot find the words to explain to anyone what is happening in your head. My husband and family are wonderful to me but at the same time I feel like I have let them down and myself also and I can't find out anything that could have started this. I sure hope that someone can read your letter and send you in an answer to the problem. Life is precious and just having something like this to happen to us is huge curve. There is so many people that are out there with problems and just dont have a clue as to what is causing them. Just wanted to say hi and hang in there. Good luck!

     
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