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Useful tools and How to Them.... what's handy in memory loss

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Old 10-08-2007, 04:03 AM   #1
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Useful tools and How to Them.... what's handy in memory loss

Hi, I've read other posts about memory loss and I'd invite everyone to help me, us, to make a list of what could be useful (how useful they are) and how to use each single tool suggested.

One might think ...... well if you dont know what's a diary for.... well NO I really do not know...... not when its used for medical purpose and wouldn't write certain things that might side track the medical care giver (doc-specialists) or that are of no help to the doctor, specialists and that are personal.

Lets try to see in what tools work, why they are working, how they are working, how to make them useful for us and the doctor-specialist-pdoctor etc...... To write as minimum as possible yet providing all the info needed.

Thanks, it will sure help me and lots of others facing this problem, me first...... missing too much from the far past and recent past is worseing at a scary speed.


Last edited by WhereIsTheLight; 10-08-2007 at 04:23 AM.

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Old 10-08-2007, 02:24 PM   #2
Travis from MN
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Re: Useful tools and How to Them.... what's handy in memory loss

Don't think of it as much as a diary, but as a "journal". You can log in what you want, stray thoughts, events of the day etc. It does not have to be personal, but for example brief entries of the days events and what you thought of to enter.

Often Diaries are personal and not what one shares with others. Journals can be logs and more open to sharing (but not always).

A good example is I'll web log (the term "****" is now used) events such as when I had to deal with the state, or dealing with my Docs. I entered an anniversary note the other year when it was my 25th year I think after my brain surgery.

Another entry was when my MRI came back and the tech misread it and gave me a badly informed reading that was NOT valid. I ended up calling my doc to verify this and he called me back in a few hours... Needless to say I was stressing it out those hours thinking it may be another round of surgery.

So I make some public viewable entries of that nature of events I have gone through or deal with when I am stressed out.

I use month at a glance calandars to log my seizures; great for records and to bring into the clinics.

Not sure if thats a good example of what you were talking about or not.


Old 10-08-2007, 03:31 PM   #3
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Re: Useful tools and How to Them.... what's handy in memory loss

Part of your answer is indeed a good value to what might interest the doctor-neurologist to be aware of. Calandar to keep track of the number of seizure each day.

Dates and nature o a surgery also (its anniversary even though important to a person is of no interest to the neuro unless there is a relapse or to comment its outcome a year..etc..... later)

Date and nature of certain exams is also valuable for them to be aware and keep track of them and their results.

Anything you can think of that might influence or would be of interest for the neuro to know about?

Sleep patter, food habits..... or else? I am guessin blindly here, I have no real idea what they need to know...... that is why i am asking for your help.

I want to keep that 'journal' only at character medical.

Unless stress of special nature might be of any interest to the doctors, here correct me if i am wrong, I wouldn't enter it.

Thanks for your help and add anything again


Old 10-08-2007, 08:56 PM   #4
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Re: Useful tools and How to Them.... what's handy in memory loss

The neuro journal as asked by my neuro years ago should include more specific information if possible like; Times of every attack, who saw u, how they describe them, not skipping a single spell or else the timing might be off. What You were feeling/doing before, during and after every attack to the best of ur knowledge.
It also includes ur everyday experiences and how the spells are aftecting ur everyday, but not to concrete remembering that this is a seizure journal and that u can/should also have a second journal/diary to include these extra things. Any changes in your AEMs dozes, its affect, ur sleepind patterns, ur diets and more...
Keeping a stick notebook on ur fridge, desk and purse also help u if u write on it everyday what bills, appointments, exams, meetings, and erronds u need to do and by when. Looking at it everyday will become a hobby and it will help ur brain to start storing information. If ur not the writting type, they have a new recorder called "my lil reminder" which u carry around in ur key chain, one home and u leave urself notes or others without writting things down (it might cut down time For 20 years these have been a few of my helpers and I know they will help many others.

keep ur personal dairy/notes with all the most important events, of ur life so u can aways go back and remember them, but also most important keep ur neuro journal seperate with all the info i mention above which will help ur neuro with all the info he/she will need to track ur improvement/changes in ur epilepsy seperate as well (this is very important!!)

Last edited by 030free; 10-08-2007 at 09:14 PM. Reason: add

Old 10-09-2007, 08:04 AM   #5
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Re: Useful tools and How to Them.... what's handy in memory loss

Thank you so very much 030free for your valuable inputs.

Wrting down a list not to forget any of them ....... This is great to be able to count on you guys/gals...... seems that the best helpers are our brothers-sisters in illness.

Be well 030free and if something else pops up...... feel free to come back and add to your first list. Thank You!!

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