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Increased Tegratol not sure what next?

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Old 07-09-2008, 10:39 PM   #1
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Increased Tegratol not sure what next?

I b/f has night epilepsy as a result of a aquired brain injury. In dec 07 he had a major episode that caused total memory loss for 12 days and now is back on tegratol 200mg morning and night and is still averaging a grand mal siezure weekly we went to his neuro this week his has advised going to 300mg twice a day for a month then if that does not work go to 400mg twice a day for a month then if that is not working to 500mg twice a day for a month if it still is not working he want to see us again. He is concerned about this as his seizures are only ever at night but the tegratol makes him very drowsy and he is worried these high levels may trigger day seizures and worse concentration etc....I am concerned because he has had no bloode work done since the big episode in Dec I am just learning about all this as this is a fairly new relationship. Can anyone give us some answers or hope that we might get this under control

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Old 07-10-2008, 06:05 AM   #2
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Re: Increased Tegratol not sure what next?

It is strange that he hasn't had any bloodwork in so long. Usually, the doctors like to regularly check the blood levels of the medications, because there's a guidline to go by as far as the levels in the blood. For me, I had started on generic Dilantin, but my blood levels showed zero was being absorbed into my bloodstream even after a few dosage increases, so then I was started on Tegretol. I take 600 mg twice a day of Tegretol, and get my blood levels tested every six months now that I'm regulated. The doctors have to know this information of how much medication is actually in the bloodsteam because there is a toxicity level they have to stay below, and there are other long-term risks of having levels that are above the suggested high number. So it's seems kind of strange that the doctor is blindly talking about increasing your boyfriend's dosage without knowing what his levels are. Is he seeing a Neurologist, or just a regular MD?
As far as the drowsiness, when he gets on the right dosage, the drowsiness will probably subside in a short time. When I started on Tegretol, I was always very sleepy for about a month until my body adjusted to it.
Good luck!

Old 07-10-2008, 08:39 AM   #3
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Re: Increased Tegratol not sure what next?

Thanks for the feed back he is seeing a neurogilist and is now being refered back to a gp between neurogilist visits this is why we are asking so we know what to ask/expect in the future as 80 per cent of long term memory has been lost he honestly cant remember how any of this goes and in fact is not sure if he saw a neurologist before for the epilepsy or the abi its all a little scary for him and me, so once again thankyou for the feedback.

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