It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....

Epilepsy Message Board

What in the world could this be?

Post New Thread   Closed Thread
LinkBack Thread Tools Search this Thread
Old 07-14-2008, 07:37 AM   #1
Join Date: Jan 2008
Location: Overland Park, Kansas, USA
Posts: 5
payton7299 HB User
What in the world could this be?

I really need some help/advice. This is kind of a long story, so bear with me.

My husband has epilepsy. He had 2 grand mal (before we were married, I did not know him then) while sleeping, both within 2 months of each other. He saw a neurologist, had MRI, EEG, etc. etc., everything checked out normal. He was put on Dilantin. He has been on the same dose of Dilantin for nearly seizures. Then, this past January (2008), my husband had a grand mal seizure in our kitchen. It was terrifying. He managed to hit his head on something on the way down and cut his head open, blood everywhere. I was here and saw the whole thing and truthfully, I was TRAUMATIZED. I was so extremely was the scariest day in my whole life. Watching him have the seizure was like torture to me. It was the first time I had witnessed one. Anyway, the neurologist upped his Dilantin and he's been seizure free since. I live in FEAR, however, that he will have another one. I am terrified that he will have one in our bed or while driving or just anytime. TERRIFIED! I think I now have some kind of phobia of seizures?! It takes me forever to go to sleep at night because I am so afraid he's going to have a seizure.

Anyway, since this all happened, I have been getting these feelings once in awhile. I get this intense fear in my stomach, lightheaded, my heart races and before this I have the thought of, "What if I am having a seizure?". For some reason, I have turned this fear of my husband having a seizure into a fear that I am going to have a seizure...I know it's weird and bizarre. When I get this intense fear, I don't have a seizure. I can talk and function and nothing happens to my body, it's just this intense anxiety and fear and after about a couple minutes, it goes away. I just will it away. But I feel awful for these several minutes. Does this make any sense? This has happened to me probably 5-6 times over about a 3-4 month period. Afterward, I feel okay. No lingering effects at all.

I should also add that my 8 year old daughter has Type I diabetes and I am absolutely TERRIFIED as well that she will have a seizure sometime from low blood sugar. I am also somewhat stressed as I just lost my sister (unexpectedly) last month to an accidental overdose/drug interaction (she's had issues for years).

Anyway, I guess my questions are these: Does what I have sound like anxiety? Panic? A simple partial seizure? Please give me your opinion. Is this something for which I need to seek treatment?

I should also note that I am a very healthy 38 year old woman...I don't drink or take drugs and I exercise, try to eat well. I am not on any type of medication except thyroid medication for an underactive thyroid.

Thanks for anyone who can help.

Sponsors Lightbulb
Old 07-14-2008, 09:23 AM   #2
Join Date: May 2008
Location: England
Posts: 7
EmmieEmmie HB User
Re: What in the world could this be?

I don't think its a simple partial, I think its very likely a specific kind of panic you know, the mind is a VERY powerful thing! Last week, my boyfriend and I were talking about his asthma, and I "suddenly felt like I couldn't breathe"...think a similiar thing is going on here (my chest feels weird just writing it!)'re showing a high level of empathy mixed with panic..I feel for you.

I have epilepsy myself, and I've always thought, "at least I never had to watch the grand mals", so I think I appreciate where you are coming from, my family hated to see it. I only have (heh, only! lol) simple partials right now (deja vus, flashbacks), luckily they are not obvious.

You might find some counselling helps you live with uncertainty and the worry that accompanies your family's health problems.

I have also had panic attacks over fears of ME having a seizure, and its rather like how you describe. Now, a simple partial, however..whole different kettle of fish, to use a cliche!

Old 07-14-2008, 11:39 AM   #3
Join Date: Jan 2008
Location: Overland Park, Kansas, USA
Posts: 5
payton7299 HB User
Re: What in the world could this be?

Thank you so much for reassuring me. The last thing our family needs is for ME to have a medical issue..I have to take care of everyone else!! I probably could use some short term counseling...thanks so much for taking the time to reply.

Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
Help needed to understand what is going on osteoblast Brain Tumors 18 12-19-2008 04:29 PM
Dizziness....what's moving, you or the environment??? Boslee2008 Inner Ear Disorders 8 07-22-2008 08:52 PM
What do you make of this? simplyj Relationship Health 23 11-19-2007 05:33 PM
Alzheimer's and an Arrant Protein (What's the connection?) Sorry..Long gizmolove Alzheimer's Disease & Dementia 31 03-28-2007 12:57 PM
On Friendship and Computers and what it's like to be without one for 5 weeks... DallasAli Addiction & Recovery 8 04-10-2005 09:15 PM
What's a Friend to Do? goody2shuz Relationship Health 221 03-13-2005 01:21 PM
What does this dream mean? Genabeena Depression 31 02-21-2005 04:51 AM
My OCD story...I don't know what to do...please help jp1283 Obsessive Compulsive Disorder (OCD) 3 01-13-2005 11:01 PM
What if you believed this your whole life? Amaru Relationship Health 2 02-26-2004 11:54 AM
Doctors will not diagnose me. What the hell! krissy8317 Chronic Fatigue 9 09-18-2003 10:18 AM

Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off

Sign Up Today!

Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

I want my free account

All times are GMT -7. The time now is 07:57 PM.

Site owned and operated by HealthBoards.comô
© 1998-2018 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!