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Is this Temporal Lobe Epilepsy?

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Old 04-22-2011, 10:32 PM   #1
cinderleah1985's Avatar
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Location: Pottstown PA USA
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cinderleah1985 HB User
Unhappy Is this Temporal Lobe Epilepsy?

Well, I am really scared. I was diagnosed in early 2000 as having severe bipolar disorder, ADHD and post-traumatic stress (due to being abused by relatives). I am not so sure.

1. Severe hallucinations. Full fledged all five senses involved; I would feel a sense of doom, as if something absolutely terrible was about to occur, then sensing a presence in the room. Often if the wind blew the door open and knocked things down, I would think some kind of evil supernatural/paranormal being (ghost, alien, etc) was coming into the room, and a few seconds later I'd feel as if the covers were being pulled away from me. These hallucinations were absolutely terrifying for me, and I still have them.

2. Terrible headaches, as if my brain is about to explode.

3. Frequent crying jags at the smallest things.

4. Severe nausea and vomiting (chronic), especially when lying down.

5. Abnormal, irrational fears, ie drowning, bright lights, or aliens.

6. Gradual inability to walk--if I try to walk more than 5 to 15 minutes I collapse and black out.

7. Dizziness.

8. Frequent blacking-out for up to 3 to 5 minutes, with little or no memory of what I was doing before.

9. Extremes of emotion; I was diagnosed with bipolar disorder at the desire of my mother by a fundamentalist Christian "doctor" in high school, which my current psychiatrist doubts that I have.

I used to think I was a victim of alien abduction, thanks to my mother inundating me with such lore, but now I'm not too sure, since all my symptoms add up to me having a brain problem rather than some bug-eyed monster using me as his secret human playmate. But in all honesty, at this point I think I would rather it be alien visitors instead of TLE, though I am not sure why.

Also I want to know: would the medication for TLE cause me to be a vegetable? I am an intelligent and sociable woman with a high IQ, who really wants to go back to school, but at this point I am so depressed that I want to give up.

Please help, I'm really quite scared.

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Old 04-25-2011, 08:28 PM   #2
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Re: Is this Temporal Lobe Epilepsy?

Epilepsy is very delicate to diagnosis. The only real way is to have an EEG done by (preferably) a neurologist experienced with Epilepsy or an Epilepsy specialist. Some of the symptoms of Temporal Lobe can be missed by doctors unless you are with a skilled professional. Depression is not uncommon among seizure patients, but again no one can make the diagnosis without proper testing.
My advice, go see a neurologist and request a 24 hour EEG. Best of luck and I hope you get answer's to your questions when you are seen.

Last edited by juliak; 04-25-2011 at 08:30 PM.

Old 04-25-2011, 08:33 PM   #3
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Re: Is this Temporal Lobe Epilepsy?

I just noticed your location and you may want to go to Penn or Jefferson Hospitals Epilepsy
Centers. Best of Luck.

Old 04-25-2011, 09:19 PM   #4
Benny A
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Location: Elkin N.C. U.S.A.
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Re: Is this Temporal Lobe Epilepsy?

Hi Just hag in there and keep on trying, You see I too have the problem and I keep dealing with it each day it is all we can do. Bless you and I hope it gets easyer for you as you go along Benny.

Old 05-09-2011, 10:29 PM   #5
Join Date: May 2011
Location: South Africa
Posts: 3
Re: Is this Temporal Lobe Epilepsy?

Hi there, I was diagnosed with Bi-polar disorder and im not quite sure why but we seem to realistically believe these things that you are hallusinating about. My scary part is that i was just diagnosed with Tonic clon Epilepsy. Grand Mal seizures. i dont know if this is all part of the same diagnoses though. I think you should make friends with other people that will help you acknowledge what you have, and learn how to accept these symptoms. My scary reality is that I have never suffered from any fits, a week ago was my first one!!

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