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Old 05-16-2013, 07:58 AM   #1
Join Date: May 2013
Location: Portland Maine
Posts: 1
wil1L HB User
Question scared

This is my first time posting. I've always kept my epilepsy a secret from anyone I could.
This has been easier at times than others (obviously) but I have always been ashamed of it or thought it made me weak. I guess I still do. I am on dilantin now after years of recreational drug use that for the most part seemed to have helped with seizures or at least made me not care that I was having them or I would say I was having seizures from the drugs.
Now, dilantin isn't working at all and I've been having a lot of seizures plus I think the dilantin is causing a great deal of depression. Although I guess that could be unrelated. I am just trying to gauge what I should be doing. I have no health care so can't afford much. Any advice is welcome.

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Old 05-19-2013, 12:39 PM   #2
Join Date: May 2013
Posts: 2
ravyn34 HB User
Re: scared

First of all DO NOT feel ashamed or keep it a secret. It's nothing bad to hide, there's no reason for it. If anything you should tell people, especially the ones you are around most so they will know what to do if something happens. In my experiences having told somebody has more than helped both me and them. You said you don't have any health care, well more often than not you don't need a ride to the hospital for a seizure. If these people know that, and know how to handle it it will save you I'm sure a butt load of $. Now the "recreational" drug, I'm sure what you mean and it has helped me for many years. Best thing I can suggest is see a neurologist to get proper help. If the meds are causing them or not working, something else might. There's no need to get hurt by taking something that doesn't work. It took years to find something that worked for me. I hope you can manage to find something to work.

Old 06-07-2013, 05:12 AM   #3
Have questions2
Join Date: Jun 2013
Location: tucson az. usa
Posts: 5
Have questions2 HB User
Talking Re: scared

I know it is scary to have epilepsy. You don't need to hide it. The people who love you, and care about you only want to help you. I have told all my friends and loved ones about mine. In this way it helps them not to be scared also. Tell them what to expect so they can help you through it. You would be surprised how many will understand, and be there for you. All of my children know what to look for, and how to help me when I have a seizure. My nine year old told me he feels empowered because he can help me, and not be afraid. There are clinics in all cities that go by your income. Look in your phone book for one. Don't feel ashamed. It's nothing you did wrong! Good luck and God Bless.

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