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Just diagnosed with Epstein-Barr Virus.

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Old 10-04-2011, 01:49 PM   #1
Join Date: Oct 2011
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Just diagnosed with Epstein-Barr Virus.

Hey, I'm new here and confused and worried. I went to my doctor's today to get the results from a blood test because I was feeling really tired and didn't feel good. My doctor told me that I was Epstein-Barr positive, there is no cure, and I will have it for life. I looked at her so confused, I never even heard of this disease! She told me to "google" it. But I insisted on bugging her and she just explained that because of stress, my autoimmune system attacks itself which causes me to be tired and feel sick. So, after I THOUGHT I had an understanding, I go home to google it and I am even more confused and terrified! I read about mono, chronic fatigue, and cancer! What in the world is it that I have? She never said anything about any of those diseases. I'm sure I don't have mono because I don't have a fever or feel that sick. I'm hoping she explained it correctly and I just don't understand it...can someone please tell me what does this mean or should I go to another doctor and figure out what's really wrong?

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Old 10-04-2011, 02:21 PM   #2
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Re: Just diagnosed with Epstein-Barr Virus.

Epstein-bar is the same virus that causes mono when the virus becomes chonic it is also called chronic fatuige and if your dr. ever tells you to look it up INSTEAD of explaining whats going on you should such drs there's alot of false info out the check out the national fibromyalgia and chronic fatige ***

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Old 10-28-2011, 03:56 PM   #3
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Re: Just diagnosed with Epstein-Barr Virus.

I agree with the previous answer in that it sounds like you should find another doctor. I cannot believe she told you to look it up on line.

I have had (well still do as it does remain in the system forever) Epstein Barr virus. This was back in late 1980s. It is the same virus which causes Mono, so it is rather like having mono a second time except mine lasted longer.

But - and what is important here for you, is that if you have ever had mono, you could indeed test positive for EB.

EB does cause fatigue, exhaustion, low grade fever.... Mine started like a very bad flu (just like mono)

See if you can find a communicable disease specialist and have the test you again. Because there is a whole slew of things out there that can cause similar symptoms - including Lyme, Fibro, Chronic fatigue, endocarditis, leukemia...... So you really want to make sure on this one.


Old 12-20-2011, 03:39 PM   #4
Join Date: Dec 2011
Location: Fresno, CA
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Re: Just diagnosed with Epstein-Barr Virus.

LuvAddict -
Yes. I agree with the others.. if you haven't found a good doctor it is definitely time to.
Now that some time has passed, how are you doing? Do you have an update?

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