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    Old 11-13-2003, 06:59 AM   #1
    blynn6
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    Question optic nerve swelling

    I have recently been diagnosed with optic nerve swelling (papilla edema) The doctors have not been able to figure out why. I have had numerous test done and all tests have come back normal. Has anyone else had this condition and what are you doctors doing for you?

    Last edited by blynn6; 11-13-2003 at 07:03 AM.

     
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    Old 11-13-2003, 05:06 PM   #2
    californiasunflower
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    Quote:
    Originally Posted by blynn6
    I have recently been diagnosed with optic nerve swelling (papilla edema) The doctors have not been able to figure out why. I have had numerous test done and all tests have come back normal. Has anyone else had this condition and what are you doctors doing for you?

    Hi Blynn!

    I've been treated for Optic Nerve Swelling. Do you have hemorrhaging/inflammation as well? Are your symptoms blurred vision?

    The treatment depends on the diagnosis for the symptom of optic nerve swelling. Did you physicians inform you of what they suspect? I'm sure you gave them your medical history, as well as your family medical history.

    Did some of your tests include a Brain MRI and a spinal tab?

    Research on the Net and see "ONTT treatment" for MS.
    IV Solumedrol, followed by prednisone tablets.

    Last edited by californiasunflower; 12-09-2003 at 04:57 PM.

     
    Old 11-14-2003, 05:58 AM   #3
    blynn6
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    Hi

    I don't have any symptoms at all-no blurred vision-nothing. The swelling was discovered on a routine eye exam. I have undergone a spinal tap-MRI-brain, visual fields and everything was negative. My eye doctor thought that maybe I had that pseudo tumor cerbie(I think I spelt that wrong). But when my pressure was normal on the spinal tap the doctors where dumfounded. I have been to two different eye doctors and one nuerologist-still no one has any idea what is wrong. My neurologist want me to repeat my MRI and also have an MRV just to make sure. Ever since I was told that I have this eye swelling I am afraid that every morning when I wake up I am going to be blind. I am also quite a bit overweight and that is another reason they were leaning toward PTC. So I have to make an appointment with ANOTHER eye doctor to see what her opinion is. It seems like the last month of my life has be consumed by doctor appointments and testing. What have you been doing for th swelling? Thanks for responding back and it is nice to talk with someone who is having the same problem as me.

    Last edited by blynn6; 11-14-2003 at 05:59 AM.

     
    Old 11-14-2003, 12:07 PM   #4
    californiasunflower
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    Hi Blynn!

    The first thought that came to my mind that would probably help you is the prescription drug Diamox Sequel. It is a carbonic anhydrase typically prescribed for mountain climbers to prevent motion sickness and it is great for eye problems! It helps those with high risk for glaucoma too (preventive). Diamox is particularly useful to aid with the eye problem you are presenting with. There are articles on the Net with regards to PTC. I hope this helps you. You may want to ask your Eye MD about Diamox.

    I presented with a horrific optic nerve swelling but my opth (Eye MD) gave me lots of hope by explaining he has seen worst situations resolve with good eye sight!

    Is the new opthalmologist a Retinal Specialist? and/or Neuro-Opthalmologist? That is a good next step-Neuro-ophthalmologist. You'll get more answers about the eye problem and treatment.


    I know how scary this is! It has disrupted my whole world.

    Last edited by californiasunflower; 12-09-2003 at 05:01 PM.

     
    Old 11-15-2003, 12:37 PM   #5
    Murphy
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    Blynn, Most of the time papilledema is found by routine
    exam. Can be simple or serious. Most often w/ no
    symptoms, it's intracranial prssr from hypertension, high
    BP, migraines, or even an ischemic attack. A mini-stroke. A routine MRI showed that on my left brain. It's
    like a vessel burst then sealed. Creepy knowing it's there yet it's quite commom. I need my eyes checked
    soon. Get a hm monitor & ck. BP daily. Get copies of the MRI reports to see if they're telling all. Ask if this
    swelling is old symptom or is now present while you are
    having these tests. Residual signs mean no treatment,
    but look for the cause. Relax & try out google.

     
    Old 03-02-2005, 05:14 PM   #6
    Mika Shuu
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    Re: optic nerve swelling

    I've just recently been diagnosed with papilledema, and this is the only thread I could find to revive on the subject. I have no symptoms at all, and it was discovered during a routine eye exam. I just recently took a deep scan head MRI (which I may have messed up due to my claustrophobia), and I was told by one of my eye doctor's assistants that the main cause of papilledema is a brain tumor. Is this true?

    On a side note, I was on the oral steroid Prednisone for quite some time a few years back, and my blood pressure is high so I'm on prinivil. I'm also on cellcept, and an aspirin everyday. I'm on all these as a treatment for a nephritis I have. I was just wondering if anybody could give me some more information on this papilledema situation.

     
    Old 03-07-2005, 04:03 PM   #7
    californiasunflower
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    Re: optic nerve swelling

    Hi! I think based on your post and history given that it appears your papilledema may be caused by the hi blood pressure. When I was first dx'd with the optic swelling, I was asked the routine questions if I had certain conditions like hypertension, diabetes, lupus, MS, stroke....

    Yes, it is true that a tumor can be a cause of optic nerve swelling and that is why they do the MRI right away to verify the cause. My cause is still unknown and it has been two years now. I was told the cause could be idiopathic. With your history, testing needs to be done to find a cause so are they doing blood tests too?

    I hope since your last post you have received the MRI results and that it is normal.

     
    Old 03-07-2005, 04:14 PM   #8
    Mika Shuu
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    Re: optic nerve swelling

    Thanks for replying californiasunflower, but no, I still haven't gotten the results back from my MRI. Not sure if thats a bad return rate from the hospital I was at or my opthamologist's being delayed. Even with my history they haven't been doing any bloodwork at all, and I agree that seems like a common sense thing to do...

    By the way, what does idiopathic mean?

     
    Old 03-07-2005, 04:49 PM   #9
    californiasunflower
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    Re: optic nerve swelling

    Hi! Idiopathic means the cause remains unknown.

    Is your doc out of the office? If not, I think it would be okay if you called. he hospital should have faxed a copy of the report to the doc's office and his medical assistant can relay the info to you or set up an appt. if the doc prefers to go over it with you.

    My opthalmologist is very diligent in asking me who is treating and/or looking for the cause so I would definitely call your regular doc and set an appt. to let them know of this new development.

    Let us know what you find out!

     
    Old 03-07-2005, 06:53 PM   #10
    Mika Shuu
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    Wink Re: optic nerve swelling

    Thanks again for the help, all of your advice has been great. I was beginning to think that nobody would reply to my postings here. I'll be sure to post about the results when I get some info on them.

     
    Old 03-08-2005, 06:05 PM   #11
    californiasunflower
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    Re: optic nerve swelling

    That's great! I'll look forward to hearing from you. Also, you may find more information on the MS board. Not to alarm you, but there are a lot of posts about optic nerve swelling, particularly, under Optic neuritis (ON). It may not be the same condition, but you can learn about what others experienced and see if it is similar to your situation.

     
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