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    Old 11-03-2004, 05:25 PM   #31
    CSLewis
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    Re: Meibomian gland dysfunction

    Hi Amy (again) - I just realized I didn't answer all your questions. Sorry about that! As for the warm compresses and lid massages - I'd try to do them at least 4x/day(?). I know how hard it is to try to do them when you're at work, etc. So just do them when you can. I'd be really careful, though. At one point, I realized that doing so many compresses was actually starting to bug my eyes. So I started to pull back a little and not do them so often. Finally, I got to the point where I didn't need to do them anymore. I just massage my eyes a little bit when I'm in the shower now, and that seems to be enough for my eyes at this point.

    Jen

     
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    Old 11-03-2004, 05:27 PM   #32
    calibug
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    Re: Meibomian gland dysfunction

    JSR, glad we all have at least each other to vent to. Boy, it sure would be great if you went into opthalmology. Imagine the empathy you could have towards your patients!! I say don't let yourself get discouraged over this....fight through the discomfort/pain and get your degrees. One day, you may looking back at this as just a bad period you went through. Just take one day at a time.

    By the way, what is GPC?

    Yes, hard to believe some doctors. I remember asking this doctor later if I should have stayed on the doxycycline and he said yes. I then told him that his nurse told me only to take it for a month and the refills were for future flare-ups. He covered for her, I guess, and said that well, a month should have worked. That is just not true from what I understand. I really believe this stuff got worse because of his mistakes and my being misinformed. Maybe not... but I'm sure it didn't help.

    Oh well. Got to stay in the present...Hang in there. Sure hope things get under control soon for you!

     
    Old 11-03-2004, 09:01 PM   #33
    tris
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    Re: Meibomian gland dysfunction

    Hi Amy and other guys,
    I think I need to join this board for qutie a while.

    Amy, How can you notice that you eyelids are thicken? Can you notice that by yrself?

    My major symptoms are
    1 Sticky feeling when you blink
    2 eye irritation, mostly white part of the eyes
    3 Clicking sound when you blink (Sometime)
    4 REDness upon wake up
    5 Something is in yr eyes 24 hrs

    Do you guys have this kind of problem?
    I had punctual plugs in my lower tear ducts, which last for three months. They are going to dissolve soon. I should not have the plugs in, since I think my problem got worse since the plugs. Do you guys agree?

    Now I just start doxycycline and again, Lotemax for two weeks. Will you think Lotemax will help? I used it before but only 5 days, so the new doctor gave me to use it for two weeks. After seeing too many doctors, I don't believe them that much. They just don't care about my problem.

    Thanks

     
    Old 11-03-2004, 09:32 PM   #34
    ajneedhams
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    Re: Meibomian gland dysfunction

    Hi Jen-
    Thanks for your response. I actually had two pretty good days (not perfect, but not bad). I saw my opth today for a 1 mon re-ck and he of course wants me to continue the doxy but slack up on the lid massaging. Interesting. Said he thinks it might be irritating my eyes and to keep my hands away from my eyes more often. He said to keep up the compresses and lid scrubs though. I guess I'll shoot for 2-3 times a day on those. Thank you for your feedback. I know what you mean about missing your "white" eyes. Pink/ reddened eyes are definitely an ugly part of ocular rosacea.

    Tris-

    I have all of those symptoms you mentioned. I haven't noticed the clicking when I blink in awhile, but i did at my very dryest state a few months ago. That was most noticable for me upon awakening.

    You asked about my eyelid thickening. Lately, particularly upon awakening, my bottom lids are especially swollen. The tissue is thicker with a puffiness all the way to the ring under my eyes. My dermatologist noticed the classic signs of blepharitis as well. Mornings also give me red eyelid margins. They usually get a bit better by mid day though.

    I'm not impressed by punctum plugs. I had temporary ones awhile back and I felt my eyes were MORE irritated.

    I think the Lotimax will not hurt you and may shrink down some swelling and inflammation in the short term. Let us know how you do.

    Amy

     
    Old 11-05-2004, 12:58 PM   #35
    lulu04
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    Re: Meibomian gland dysfunction

    Hi Jen! Thanks for your response to my questions. I'm glad to hear the blood vessels have become less pronounced; I hope that mine will also lessen someday. I'm really encouraged by your results, and have new determination to keep up the whole pain-in-the-neck routine (compresses, massages, scrubs, doxy). I hope you'll keep checking back on the boards; we really need the support of someone who's made it through this!

    Tris: I have the same symptoms as you listed. I always thought the clicking sound was strange; anyone have any ideas as to the reason for this? It happens occasionally, not all the time.

    Also, when I am doing my lid massages, there is sometimes a kind of squeaky noise when I press on the upper lids. Anyone else experience this? Still, I do not have anything actually coming out of the glands (not that I can see, anyway).

    One more note for people who have nausea/etc with doxy: there is a coated version of doxy called Doryx, which is supposed to be easier on the stomach. That's what I've been taking, and I haven't yet experienced any such side effects.

    Bye for now--hang in there everyone, and have a great weekend!

     
    Old 11-05-2004, 08:26 PM   #36
    tris
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    Re: Meibomian gland dysfunction

    Thanks Lulu and Amy,
    I had this problem because of lasik. I afraid to do lid scrub because it might move my corneal. Mostly, I just do warm compress. When you do warm compress, Do yr eyes get red? My eyes get really red for a while after warm compress. I don't like to see my eyes get red, so I only do warm compress twice a day. Do you guys rub the eyes when the washcloth on? Do you think we are going to have this problem forever? Someday, I am so frustrated and miss my life so much. I want to feel normal eyes again. Just want to wake up one day and don't have to look at my eyes. Don't need to put any drops in it. It is my dream!!!!

     
    Old 11-07-2004, 05:36 PM   #37
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    Re: Meibomian gland dysfunction

    tris, welcome to the boards. I've been suffering with severe dry eyes due to lack of tears, as well as MGD for 3 years. Don't get discouraged. I have had considerable improvement since my problem first began. My doctor cauterized all 4 of my tear ducts, which is helping to preserve the small amount of tears that I do have.

    My MGD however, is much, much harder to treat. The thing that helps me the most is hot compresses.

    Just a quick update on my condition: I went back to the doctor last week to make sure the corneal surface on my left eye was healing. It has. But now I am on another anti-biotic because I have a bad bacterial infection in both eyes. It is slowly going away, and at least I don't have any more green stuff dripping out of my eyes. This is all due to the darn dryness. I get so frustrated sometimes, I just want to throw all of my eyedrops out the window!

     
    Old 04-14-2005, 01:10 PM   #38
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    Re: Meibomian gland dysfunction

    i was curious... does everyone who has MGD have bilateral inflammation? or inflammation of the whole eye? even if its just slight inflammation...

     
    Old 05-09-2005, 11:44 AM   #39
    casinogal
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    Re: Meibomian gland dysfunction

    Hi,
    My MGD is just the lids. However, this affects my whole eye and it feels very dry. I guess this is because there is little oil to mix with the tears and the eyes don't get lubricated properly.
    BB

     
    Old 01-22-2007, 04:39 PM   #40
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    Post Re: Meibomian gland dysfunction

    Hi everyone. I am brand new to this site and am so thankful to have found it. I have been suffering with rosacea bleph for years and just recently found a doctor who diagnosed it. I am no youngster, 67 years old, and find in my entire life, this is one of the worst ailments I have had. I had catarac surgery 2-1/2 years ago and it seems since then, the problem has become full blown. Finally was diagnosed with bleph, not sure which about 6 months ago. But until I found this site I thought I was the only one with this problem. I even thought I might be allergic to the lens implants.

    At first my current dr. had me doing compresses and scrubs at night and using steroids. The steroids made my eye pressure shoot up so high I was having blank spots in my vision. Went off the steroids and tried a lot of different drops but none worked. Finally he just put me on doxy a week ago. Am taking 100 mgs. twice a day for a month then will be on once a day for 2 more months, of course depending on results. So far, no change and I am really in a world of hurt. My eyes burn almost constantly and also itch a lot. When I look in the mirror it seems my eyes have sunk into my head. I look like a zombie.

    Can anyone tell me about massaging the eyelids? My doctor didn't tell me anything about that. How is it done and how long? Also how long do you keep your warm compresses on and do they have to be moist heat or can I use a heated flax pack? Also, how do they express the eyelids. Do you just squeeze the lids?

    I was told to use baby shampoo for scrubbing the lids but I bought some Ocusoft and it seems to be more gently on my eyes. Baby shampoo does burn.

    Again, I am so glad to have found this forum as I really thought I was alone in this. Any help anyone can give will be so appreciated. Thanks

     
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