It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Eye & Vision Message Board

  • Optic Neuritis - I'm so scared!

  • Post New Thread   Closed Thread
    Thread Tools Search this Thread
    Old 01-06-2005, 05:00 AM   #1
    bindsanator
    Junior Member
    (female)
     
    bindsanator's Avatar
     
    Join Date: Nov 2004
    Location: london, england
    Posts: 18
    bindsanator HB User
    Optic Neuritis - I'm so scared!

    Hi everyone,

    About one year ago i started to develop blurry vision. it is concentrated in my left eye and makes seeing very difficult. the blurryness comes and goes and it somehow related to motion, or walking, what i think they call ulhoff's syndrome.

    I keep getting the brushoff from drs until i started seeing this neuro-opthamologist who finally said it was optic neuritis/neurosis. when i asked him about it being MS related, he said it was very unlikely considering my lack of other symptoms.

    Does anyone else have any experience of this without it being related to MS? I don't think i have other symptoms, but when you are scared and something else happens, you begin to expect the worse and sort of manufacture symptoms?

    I am really, really scared about the possibility of MS. and I don't want to go blind. i already lost some of my hearing a couple of years ago and i thought that would be it! but its not...now this!!! i am going a bit mad. #

    can anyone tell me anything about optic neuritis? please, i am desperate for info, and everytime i search the topic online all i get is MS pages. as i am not trying to freak myself out completely, i am not reading the other ones.

    thank you so much.

     
    Sponsors Lightbulb
       
    Old 01-06-2005, 05:56 AM   #2
    Torre
    Inactive
     
    Join Date: Apr 2003
    Posts: 612
    Torre HB User
    Re: Optic Neuritis - I'm so scared!

    Hiya: There are a few rate conditions where botht the hearing and sight are affected. Was there a clear reason for your hearing loss?

    Torre

     
    Old 01-07-2005, 06:11 AM   #3
    bindsanator
    Junior Member
    (female)
     
    bindsanator's Avatar
     
    Join Date: Nov 2004
    Location: london, england
    Posts: 18
    bindsanator HB User
    Re: Optic Neuritis - I'm so scared!

    I lost about 2/3 of my hearing and got tinnitus in june 2002 and they said it was due to this stupid rare disease called "sudden deafness syndrome". that singer jill scott had it too. but they managed to get some of my hearing back through a serious course of steroids. but that was ages ago, so it doesn't make a whole lot of sense to me.

    thanks.

     
    Old 01-08-2005, 09:54 AM   #4
    purple2067
    Senior Veteran
    (female)
     
    purple2067's Avatar
     
    Join Date: Aug 2002
    Location: Staten Island, NY USA
    Posts: 2,223
    purple2067 HB Userpurple2067 HB Userpurple2067 HB User
    Re: Optic Neuritis - I'm so scared!

    Quote:
    Originally Posted by bindsanator

    I keep getting the brushoff from drs until i started seeing this neuro-opthamologist who finally said it was optic neuritis/neurosis. when i asked him about it being MS related, he said it was very unlikely considering my lack of other symptoms.
    Tell your doctor that is a bunch of baloney. Often times, Optic Neuritis is the very first symptom of MS. I had no other symptoms either.

    I had blurred vision in my right eye and immediately went to the ophthalmologist who did a visual field test and told me that I had O.N. He asked me if any other people in my family have MS and I told him no. He said that most times when you have optic neuritis, it is the very first sign of MS. He encouraged me to go for an MRI but I didn't want to listen to him. I didn't go see a neurologist until I developed numbness in my face and mouth. He thought there was nothing wrong with me but at my insistance sent me for an MRI of the brain. I had several lesions and was immediately diagnosed with MS. I left that idiot neurologist and went to see an MS specialist.


    The best way to rule out MS is to go for an MRI of the brain.

     
    Old 01-08-2005, 09:55 AM   #5
    purple2067
    Senior Veteran
    (female)
     
    purple2067's Avatar
     
    Join Date: Aug 2002
    Location: Staten Island, NY USA
    Posts: 2,223
    purple2067 HB Userpurple2067 HB Userpurple2067 HB User
    Re: Optic Neuritis - I'm so scared!

    Oh, steroids can be used for optic neuritis too. Do it now, before you lose your vision permanently.

     
    Old 01-10-2005, 04:15 AM   #6
    bindsanator
    Junior Member
    (female)
     
    bindsanator's Avatar
     
    Join Date: Nov 2004
    Location: london, england
    Posts: 18
    bindsanator HB User
    Re: Optic Neuritis - I'm so scared!

    thanks for the advice - i am going for an MRI at the end of the month, so perhaps that will sort some stuff out. but i wont see the neuro-opthamologist until march (thats the UK meidcal system for you...), so i have until then to wait. if itgets worse i will go back to the eye hospital, but i am going to wait until my work health benefits kick in at the end of the month so that i am covered for anything nasty.

    did your vision get really bad, i.e. couldn't see at all anymore, or just faded and misty like mine? its definitely only in my left eye, and wouldn't be so bad if it didn't get so blurry when i walked or took a shower. do you know if that part, uhlhoff's syndrome, ever goes away? argh!!!!!

     
    Old 01-11-2005, 06:18 PM   #7
    purple2067
    Senior Veteran
    (female)
     
    purple2067's Avatar
     
    Join Date: Aug 2002
    Location: Staten Island, NY USA
    Posts: 2,223
    purple2067 HB Userpurple2067 HB Userpurple2067 HB User
    Re: Optic Neuritis - I'm so scared!

    My optic neuritis went away on its own within a month. I never lost complete vision in my right eye. My vision was just very faded and blurry. It was difficult for me to notice differences in shades of colors. After I failed my visual field test, my ophthalmologist sat me down and made me look at this book of numbers. The numbers were inside of circles that were made up of colored dots of different shades (different shades of green on one page, red on the next, etc...) And the number was another different shade of that color. I couldn't make out the numbers. All I saw were the dots.

    It took about a month, but somehow, by a great miracle, I have 100% of my vision back.

    They do use systemic steroids such as Solu-Medrol to treat optic neuritis, even in people who don't have MS. They have a very good success rate, but I'm not sure how much it would help you since you have had this for so long already. I'm surprised your doctors didn't put you on it when it didn't start to go away on its own within a few weeks. Mine told me that he was giving it two weeks, and if I didn't notice an improvement he was putting me in the hospital on IV steroids, and that would force me to see a neurologist.

    Steroids reduce the inflammation in the nerves, which would help the optic neuritis, since that is an inflammation of the optic nerve.

    Good luck!

    Elyse

     
    Old 01-13-2005, 07:30 AM   #8
    bindsanator
    Junior Member
    (female)
     
    bindsanator's Avatar
     
    Join Date: Nov 2004
    Location: london, england
    Posts: 18
    bindsanator HB User
    Re: Optic Neuritis - I'm so scared!

    thanks for the advice.

    I dont think i'll ever get all of my vision back (ie perfect vision) but i think it should be ok if only the blurriness went away.

    its a shame my doctor has to be a putz. he did say though that next time i saw him we could discuss treatment, so perhaps not all hope is lost.

    again, thanks for the info.

    cheers,
    lindsay.

     
    Old 01-13-2005, 03:57 PM   #9
    purple2067
    Senior Veteran
    (female)
     
    purple2067's Avatar
     
    Join Date: Aug 2002
    Location: Staten Island, NY USA
    Posts: 2,223
    purple2067 HB Userpurple2067 HB Userpurple2067 HB User
    Re: Optic Neuritis - I'm so scared!

    I am lucky to have a really really wonderful ophthalmologist. The thing with optic neuritis is that if you treat it early enough, it can be reversible. I hope for your sake that your doctor hasn't waited too long. I have always wondered if the healthcare system in the UK is better than the one we have in the U.S, because healthcare is so expensive here and there are so many uninsured people. But it such a shame that you have to wait so long for appointments and that the doctors are so bogged down with patients. Do you get to choose your own doctor, or do you have to go to whoever they send you to?

     
    Old 01-17-2005, 04:54 AM   #10
    bindsanator
    Junior Member
    (female)
     
    bindsanator's Avatar
     
    Join Date: Nov 2004
    Location: london, england
    Posts: 18
    bindsanator HB User
    Re: Optic Neuritis - I'm so scared!

    i'd probably say that the health system is better in the US, only if one is paying for it. then you get a consumer-client type relationship. otherwise, here, it is a socialist type system, so care is slow, slow slow...i'm from canada and we have a similar system to the british, but it seems to work a lot more quickly, albeit never as fast as you would want it to.

     
    Closed Thread

    Related Topics
    Thread Thread Starter Board Replies Last Post
    could it have been optic neuritis? jen0777 Multiple Sclerosis 5 03-03-2011 06:26 AM
    Optic Neuritis - Gets better, then it gets worse mirrorreality Multiple Sclerosis 11 05-20-2009 05:16 AM
    Optic Neuritis Question JustLisa Multiple Sclerosis 7 05-27-2008 08:32 AM
    Optic neuritis .... wirewoman Eye & Vision 3 04-16-2008 11:37 PM
    question re optic neuritis Gracie88 Multiple Sclerosis 3 05-01-2007 10:10 AM
    M.S., pregnancy, children, optic neuritis-questions! goodsea Multiple Sclerosis 2 06-29-2006 05:49 AM
    optic neuritis lynnt8437 Eye & Vision 6 04-21-2006 10:47 AM
    Optic Neuritis? revlcb Multiple Sclerosis 9 05-23-2005 02:34 AM
    Optic Neuritis redwing074 Multiple Sclerosis 6 07-03-2004 07:07 PM




    Thread Tools Search this Thread
    Search this Thread:

    Advanced Search

    Posting Rules
    You may not post new threads
    You may not post replies
    You may not post attachments
    You may not edit your posts

    BB code is On
    Smilies are On
    [IMG] code is Off
    HTML code is Off
    Trackbacks are Off
    Pingbacks are Off
    Refbacks are Off




    Sign Up Today!

    Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

    I want my free account

    All times are GMT -7. The time now is 09:50 PM.





    © 2021 MH Sub I, LLC dba Internet Brands. All rights reserved.
    Do not copy or redistribute in any form!