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  • My story - Viaga, Levitra, Cialis, loss of vision, blurry vision, NAION, HELP...

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    Old 07-22-2005, 09:29 AM   #1
    bob-o
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    My story - Viaga, Levitra, Cialis, loss of vision, blurry vision, NAION, HELP...

    July 2005 --- I am 54 male, Type II diabetic and have a stent in my heart (March 2004)---

    It all began…

    March of 2004 - I suffered a heart attack (stent installed in my heart). At that point I was placed on several medications including Toprol XL, Zetia, Lipitor and Aspirin.

    March 2004 - Knowing that the Toprol is a beta-blocker and might cause sexual dysfunction I asked my Cardiologist if I should be worried about sexual dysfunction while taking Toprol he said “don’t worry about that because we have medicines to help with that”.

    April 2004 - I was at my primary care physicians office for my annual physical and I told him I would like to get a script for Cialis, Without hesitation he wrote me a scrip. I am also Type II diabetic (blood sugars rarely run over 200 and are usually in the 120-150 range). I had noticed my vision was a little blurry after the heart attack but I just could not identify what was causing this problem (now I think it was from the Toprol). I went to the various web sites of the drugs I was taking but I could find any mention of blurry vision being a side effect of any of these drugs. By this time intermittently I was taking Cialis. I noticed at times my vision would become extremely blurry but I had no idea that the additional blurriness might be caused from the Cialis. I thought the worsening blurriness might be a blood sugar issue and again none of these drugs had had warnings about blurred vision.

    September 2004 – Due to continued blurry vision I went to my (first) Ophthalmologist to have my eyes examined I told her what drugs I was taking and that I was having a lot of trouble with blurred vision. She said everything looked OK to her and she gave me some eye drops for dry eyes! But I have never had dry eyes!

    November 2004 - Still suffering from worsening blurred vision (at times my vision would become much more blurry, I would get tunnel vision and everything would become very dark like I was wearing a couple of pairs of sun glasses at the same time) I went to different (second) Ophthalmologist and told him I had severe blurred vision and that I was taking all these various medicines and that I have I medical history of heart disease and I am diabetic. He looked at my eyes and said everything looked OK to him and he dismissed my vision problem and said for me to come back in six months!

    February 2005 - I saw my primary care physician (internist) for my annual physical and during the physical I told him I was still having trouble with my vision. He said as part of my blood work they would test my blood sugars to see if they were elevated (no mention of a drug interaction problem). Later his office phoned me and said my blood sugars were within a normal range. Still suffering from blurred vision and at times still encountering these episodes when my vision became tunnel vision like I just did not know what to do!

    May 27th 2005 - I was watching the national news on TV and they said the FDA had received reports of some men losing their vision from taking impotence drugs like Viagra, Levitra and Cialis and these men usually had a history of heart disease and diabetes. I immediately stopped taking all my medicines and some of the blurriness went away in several days. After this initial blurriness went away (I think because I stopped taking the Toprol) now I notice that I have lost a significant amount of my vision. I find when I am driving my car I have trouble reading large freeway signs until I am nearly under them and I have trouble see peoples faces (the faces are dark) and at home during the day I find myself turning on all the lights in my house just so I can see things a little better. I find I have a lot of trouble seeing items that are dark colors like black. For example when tying my black shoe laces in the morning, while getting ready to go to work, my black shoe laces visually blend into my black shoes! Both my eyes are affected but my left eye is much worse!

    June 2005 - I did see the same (second) ophthalmologist that I had seen in November 2004 and he seemed very dismissive about my vision problem but he did order a MRI which showed no problem with my eyes. Then he said from me to get back with him in six weeks because he was going to be on vacation in Australia!

    July 2005 - I went to new (third) Ophthalmologist that specializes in the retina and he could not see any problem with my eyes. He did take my vision problem seriously and he has referred me to an (fourth) Ophthalmologist who is a neurologist and I have an appointment to see him in mid-August 2005.

    Currently, I am so traumatized with my loss of vision I am not taking ANY drugs (I have not taken any drugs since early-June). I am only taking vitamin B, a multi-vitamin and several baby aspirin per day.

    Has anyone else encountered a similar problem with their vision?

    Does anyone have any suggestions or remedies that might help me regain my vision?

    Does anyone have a similar story?

    If you have or think you have NAION would you please describe your eye sight issues?

    Last edited by bob-o; 07-30-2005 at 07:22 AM.

     
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    Old 07-22-2005, 02:40 PM   #2
    dakels
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    Re: My story - Viaga, Levitra, Cialis, loss of vision, blurry vision, NAION, HELP...

    I am so sory to hear about your problem. You seem to be on the right course of action by stopping your elective medications and consulting other specialists.

    Many doctors may not be aware of your problems as it is only recently coming to light that visual problems such as NAION may be a possible devastating side effect of these erectile dysfuction drugs (tadalafil, sildenafil, etc). New medical/optomological journal releases are only recently surfacing about the association between these drugs and NAION. It seems to be rare but there is a solid base of cases being reported. There are also other known associated risk factors such as diabetes and men over 50+ so it's hard to pinpoint your problem exactly. Beta blockers are also known to incur vision problems as well, but not to the extent of NAION.

    I think your appointment with an optomologist/neurologist is going to be key. While only an extremely small percentage of patients are reported to experience this problem, NAION, as you are most likely aware, is a very serious matter which can result in permanent damage to your vision, and sometimes partial or complete blindness in extreme cases. Hopefully they will find more apparent signs of a problem such as edema or disc distortions. I'm sorry i couldnt be more helpful. I hope you stay the course until some sort of diagnosis is concluded.

    good luck.

    Last edited by Administrator; 08-15-2011 at 06:15 PM.

     
    Old 07-22-2005, 05:26 PM   #3
    Cher2005
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    Re: My story - Viaga, Levitra, Cialis, loss of vision, blurry vision, NAION, HELP...

    Since last November my vision has been very blurry to say the least. The retinal specialist I went to said I had to get my sugars under control (type 2 diabetes) I have done this and still the eyes continue to worsen. It is very scary especially the darkening you have mentioned. AND the inability to see into peoples faces. It has gotten so bad that it's hard to put on my makeup and see my own face clearly in the mirror.
    I recently had triple bypass and that has seemed to make my vision even worse. I think it was all the testing with dyes and injections and also the anesthesia.
    But I am now on new Blood pressure meds. and I wonder if they are affecting my vision too. The whole thing is so scary and with so many different doctors precribing meds. I wonder if they acrually do all work together.
    I'm wondering if you don't have more of a problem with your diabetes than you think. My retinal specialist says that and high blood pressure are the worst offenders in damaging eyesight.

     
    Old 07-22-2005, 05:53 PM   #4
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    Re: My story - Viaga, Levitra, Cialis, loss of vision, blurry vision, NAION, HELP...

    I have read that some people lose their visison due to Viagra and other types of meds. One fella had a stroke in his eye, leaving him blind in that eye. Many men have horrible headaches for several days after taking the med.

    My husband got Viagra but I refused for him to take it and now he is greatful after learning what damage it can do.

    Remember, Viagra and the other meds were used for hypertension many years ago, they are vasodilators, but, I am sure it was a lower dose than the one shot pill for the purpose it is used for now.

    Last edited by Misty800; 07-22-2005 at 05:55 PM.

     
    Old 07-22-2005, 06:53 PM   #5
    qwerty75
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    Re: My story - Viaga, Levitra, Cialis, loss of vision, blurry vision, NAION, HELP...

    The risk of NAION as a side effect with these meds (Viagra, Cialis, etc) hasn't been established. The studies that were done have been inconclusive as to whether or not these drugs actually increased the risk of developing NAION.

    If in fact you did suffer NAION, the loss of vision would be permanent. NAION is basically a stroke of the optic nerve.

    Didn't any of the ophthalmologists make you take a visual field test?

     
    Old 07-23-2005, 05:49 AM   #6
    Torre
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    Re: My story - Viaga, Levitra, Cialis, loss of vision, blurry vision, NAION, HELP...

    Excellent posts so far. Just another idea-- A person who's had a heart attack and needed to have a stent inserted could have some blockage and reduced blood flow in the arteries going to the head/eyes.

    The other thing is--Bob you said you were taking several baby aspirins a day. Is that the prescribed dosage? Or did you up the dosage when you took yourself off the other meds? I'm asking because my husband, who has three stents, takes ONE baby aspirin a day.

    Torre

     
    Old 07-23-2005, 08:03 AM   #7
    bob-o
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    Re: My story - Viaga, Levitra, Cialis, loss of vision, blurry vision, NAION, HELP...

    Hi Torre

    Thank you from the reply

    My doctor prescribed dosage is one adult aspirin per day (adult aspirin is around 325mg) but I found that the adult aspirin upset my stomach so I have been taking a baby 61mg aspirin twice a day seemed to work OK.

    “A person who's had a heart attack and needed to have a stent inserted could have some blockage and reduced blood flow in the arteries going to the head/eyes.” That is a valid thought

    I do not seem to have circulation problems… I am never light headed and I do not have any heart palpations. I guess I have class 1 congestive heart failure (CHF)

    Last edited by Administrator; 08-15-2011 at 06:16 PM.

     
    Old 07-23-2005, 08:07 AM   #8
    bob-o
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    Re: My story - Viaga, Levitra, Cialis, loss of vision, blurry vision, NAION, HELP...

    Hi Cher2005

    What are your blood sugars levels daily? What meds are you on?

     
    Old 07-23-2005, 08:18 AM   #9
    bob-o
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    Re: My story - Viaga, Levitra, Cialis, loss of vision, blurry vision, NAION, HELP...

    Hi Querty75

    "Didn't any of the ophthalmologists make you take a visual field test?"

    Yes, in June the (second) ophthalmologist finally did a visual field test and found significant field loss in my left eye and some loss in the right eye! My eyes have always been fine until I began encountering the blurred vision.

    By the way the (second) ophthalmologist never told me to stop taking my meds and he was very dismissive when I told him I thought vision problem might be meds related

     
    Old 07-23-2005, 11:21 AM   #10
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    Re: My story - Viaga, Levitra, Cialis, loss of vision, blurry vision, NAION, HELP...

    My morning fasting BS number is 80-95. 2 hours after eating the numbers run from 108-150, sometimes higher if I eat too many carbs. During and right after my surgery, the numbers were higher and they were giving me insulin injections in the hospital. But 4 weeks post operative I am leveling out and BS is getting very stable again. Especially if I walk awhile after a heavier meal. Amazing what just a little exercise will do!
    I am on glucotrol (7.5 xl) per day taken in the morning. So I'm doing pretty well with the diabetes. Just wish the vision would cooperate. My ever changing vision scares me silly.
    I have also had a few laser treatments to treat the retinal vessels which leave scarring and little blind spots, but they are necessary. Oh and I had a steroid injection into the eye to try and stabilize the retina. Doc says that results aren't achieved for at least a couple of months.

    Last edited by Administrator; 08-15-2011 at 06:17 PM.

     
    Old 07-23-2005, 11:29 AM   #11
    Cher2005
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    Re: My story - Viaga, Levitra, Cialis, loss of vision, blurry vision, NAION, HELP...

    Torre.... I wonder if my triple bypass surgery will ultimately help my eyes? The blood flow has to be so much better now. My doctor told me the principle blood flow to the eye comes from the brain via the retinal artery which travels along the same line from the brain with the optic nerve.
    I'm going to also have to have my carotid arteries cleaned out so I'm assuming my eyes will be receiving a lot more oxygyn and good blood flow. Sounds right anyway.

     
    Old 07-23-2005, 06:47 PM   #12
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    Re: My story - Viaga, Levitra, Cialis, loss of vision, blurry vision, NAION, HELP...

    Bob,

    I'm glad you finally got a visual field test done. Do you remember where the field loss occured? Visual field loss towards the 'bottom' of your vision, or towards the 'top' of your vision is usally indicative of NAION. If that's what caused it, the field loss is permanent. I hope you can still do a lot of activities though (driving, reading, etc.) that are important. Your brain/eyes should be able to adapt to the loss and you will probably not notice the field loss as much or as often as time passes.

    Your other ophthalmologist shouldn't have dismissed your thoughts about the meds causing your vision problems. What a creep.

    I hope things work out for the best with your vision.

    Last edited by Administrator; 08-15-2011 at 06:18 PM.

     
    Old 07-25-2005, 01:55 PM   #13
    bob-o
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    Re: My story - Viaga, Levitra, Cialis, loss of vision, blurry vision, NAION, HELP...

    Quote:
    Originally Posted by qwerty75
    Bob,

    I'm glad you finally got a visual field test done. Do you remember where the field loss occured? Visual field loss towards the 'bottom' of your vision, or towards the 'top' of your vision is usally indicative of NAION. If that's what caused it, the field loss is permanent. I hope you can still do a lot of activities though (driving, reading, etc.) that are important. Your brain/eyes should be able to adapt to the loss and you will probably not notice the field loss as much or as often as time passes.

    Your other ophthalmologist shouldn't have dismissed your thoughts about the meds causing your vision problems. What a creep.

    I hope things work out for the best with your vision.

    Hi Qwerty75

    Thank you for all the information and support. The vision loss has occurred from November 2004 through the end of May 2005. My vision loss in the left eye is the entire upper left quadrant and in the right eye it is a large percentage of the upper right quadrant. I am having a lot of difficulty with driving, reading, etc. Not really sure what else I can do at this point except wait for my August 18th 2005 eye appointment with the ophthalmologist /neurologist? I am scarred to take any medicines at this point!

    Last edited by bob-o; 07-25-2005 at 04:06 PM.

     
    Old 07-25-2005, 02:03 PM   #14
    bob-o
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    Re: My story - Viaga, Levitra, Cialis, loss of vision, blurry vision, NAION, HELP...

    Hi Cher2005

    From my limited experience, your blood sugars don’t sound like they are high enough to cause blurred vision. To get more attention to your problem you might want to start a new thread detailing your problem. You might get a little more exposure on this site. One thing I am learning from this is that if you go to one doctor and they can not identify your vision problem them keep going to other doctors until you find an answer!!!

    Last edited by Administrator; 08-15-2011 at 06:18 PM.

     
    Old 07-25-2005, 04:05 PM   #15
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    Re: My story - Viaga, Levitra, Cialis, loss of vision, blurry vision, NAION, HELP...

    My blood sugar numbers are good now but they went haywire for quite a while until I got them under control starting last Nov. I was under the mistaken impression I had my diabetes almost cured with diet and exercise 10 years ago. I let the checkups go, thinking I was OK, not understanding it was a progressive disease.
    In the meantime, my eyes suffered a terrible fate. Too long with sugars out of control left retinal damage.
    As much as I now control my sugars and am right on top of things, I guess the damage has been done nd it is hard to stabilize at this point.

     
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