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    Old 02-01-2006, 12:11 PM   #1
    Joelle1981
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    Re: Recurrent Corneal Erosion

    Hi, my name is Joelle and I've never posted anything on the internet so I hope I do okay. I was diagnosed with rce in October 2005. I have been desperate for some kind of information on this syndrome considering both eye doctors I've seen know less than you guys (especially Mike!) I am so happy to have other people to talk to about this because it's hard for anyone to understand what I have been going through. At this point I was highly considering seeing a corneal specialist and begging for surgery but so far it seems from this site that surgery is a last resort. I was told by my Dr. to use muro ointment and drops which I have been doing since. Drops 4x a day and ointment at night. I was never told to warm the ointment but I am definitely starting that today! I am also going to try to keep my eyes closed when I wake up which will be hard because when I have an erosion I shoot up out of bed and rip open my eyes. This is long so I will go for now. I look forward to any advice or comments.
    Thanks, Joelle

     
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    Old 02-01-2006, 12:41 PM   #2
    JaneNY
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    Re: Recurrent Corneal Erosion

    Joelle, if you have any type of approximate 'schedule' that your erosions happen (like after a certain amount of hours of sleep), you can try to stay ahead of it by setting a *very* quiet alarm(ie. one that doesn't startle you awake!), to wake up and put more ointment before an erosion occurs. I did this for several months, then realized I was sleeping through the alarm and now sleep through the night. You also want to keep your night drops handy so you can always get them with your eyes closed. I keep them in a tissue box right in front of my alarm.

    Really work on that thing of waking with your eyes closed - you really can do it. Its a shame there aren't too many doctors who even know these management techniques that work. You CAN beat this - I'm erosion free since mid August, after having them every week or two and even every night or two in my worst times. Follow the stuff Mike says - it really works.

     
    Old 02-01-2006, 02:10 PM   #3
    mike1961
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    Re: Recurrent Corneal Erosion

    Joelle1981 - a few things. First, yes we all sympathize with you and know the pain. I'm erosion free for about 19 months now. First, please keep in mind that for some, Muro drops actually make the erosions worse and more likely while doing the opposite for others so pay attention to your body and listen to what works and what does not.

    Regarding the warming the ointment - it's great. Consider warming it either under warm water or if you don't want to get out of bed, put the tube under your armpit for 1-2 minutes and then use a booklight to apply it.

    Many post how it's hard to keep their eyes closed when they have an erosion because they immediately do all kinds of things. The main thing to keep in mind is that 9 times out of 10 people are so used to just popping their eyes open as they awaken and they have not trained themselves to keep their eyes still and learn to awaken with their eyes closed. It's impossible to get an erosion upon awakening without moving your eyelids. So, just keep them still until you apply the drops. Also, if you do get an erosion, try not to panic and keep your eyes closed, still, relaxed and blink as little as possible and apply the drops. Keep them closed while applying drops as often as necessary so as to minimize the erosion otherwise blinking will make the erosion far worse. Stay this way for 15 minutes after the erosion and apply drops with your eyes closed as necessary to ward off the pain. About 30 minutes later after you are starting the day consider applying warm muro ointment to help with any eye irritation during the day. My doctor says I can use muro ointment and artificial tears as often as I want and as much as I want.

    You can learn and train your body to awaken without moving your eyelids - it may help to make an affirmation every night to yourself before going to sleep at night that you will. Some use an eye mask. For me, I find that I just make sure that my eyes are completely closed as much as possible before I go to sleep (sometimes I gently squeeze them closed a few times, but not too hard). Also, don't sleep on your back.

    If you get really frustrated with it all - the next course of action that many prefer is the antibiotic doxycycline which is well tolerated by the body. Usually a 2 month supply of about 100 mg is what I have read that works well. You can always combine that with artificial tears. There are many ways to treat this medically and surgically. The main thing to remember is that many sleep with their eyes slightly open which causes the eyes to dry out. Therefore, when one awakens and their eyelid rubs across their dry eye, it just rips the cells right off. But, if you can get the artificial tears in first and wait 15 seconds or so, your eyes should feel as smooth as silk. Be sure to apply lots of artificial tears - you cannot apply too much and be sure you insert the tip so that it gently touches the corner of your eye so the tears go directly in your eye.

    Keep at it - I know it takes time and is frustrating.
    Best to you,
    Mike

     
    Old 02-02-2006, 06:40 AM   #4
    pal01
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    Smile Re: Recurrent Corneal Erosion

    Hello,

    I have been having problems with my eyes for quite some time. About 3 months ago, I started waking up and having a shooting pain in one or the other of my eyes and felt something tearing. I then would be blind in that eye for almost an entire day. I was terrified of what might be wrong and foolishly put off seeing a doctor about it. My eyes have always felt really dry, but this horrifying sensation of ripping some part of them when I wake up had me turn into an insomniac. I wouldn't go to sleep until I was completely exhausted. About 2 weeks ago I was convinced I had to go see the eye doctor as my eye acted up again and the pain was so intense I couldn't do anything but cry for about 2 hours until it stopped. My sensitivity to light had made me almost a total social recluse as flourescent lighting was everywhere. At the doctors office she was very helpful and empathetic to my pain. She went through careful test after test talking me through what she was doing. Finally she added some orange looking dye to my eyes and shined a bright light in them. When she did my right eye, I almost passed out in the chair from the pain and she was convinced she knew what was wrong: Corneal erosion.

    She explained to me that the reason I was having a problem was the fact that I had oily skin, a miserable genetic trait that has haunted me with bad acne since adolesence and continued to follow me through my mid-30's. I have become almost compulsive in washing my face and hands to try and keep them dry and non-greasy, but nothing really works very well. I even went so far as to become a vegetarian just to cut down on oil and grease intake, but so far no luck. She mentioned that due to the continually oily nature of my skin, it was interferring with the normal water balance in my tears which makes them very susceptable to dry eye and has evolved into corneal erosion. She said there is really not much I can do about the skin condition and it will be most likely with me my whole life, which confirms the dermotologists diagnosis as well.

    She recommended for treatment of my eye problem that I double my daily water intake which is extremely high anyways, but she said I had to drink even more to try and keep my bodies imbalance somewhat under control. She also told me to use Refresh eyedrops every 2 hours while I was awake; one drop in each eye throwing out the capsule after 6 hours as it has no perservatives, it isn't of much use after that period. A nuisance to be sure, but at least my eyes don't burn with drieness all the time like they used to. Also at night I was told to use Refresh P.M. applying a small ribbon of ointment to each eye on the end of a Q-tip just before going to sleep. If it took me longer than 30 minutes to go to sleep, I was to apply more to make sure that my eyes were properly lubricated during the night.

    I was still hesistant to try and sleep, but she was so kind and understanding of my situation I found confidence to give a go as the alternative was blinding pain. It has worked very well as I have had only one minor incident since. She mentioned also that the reason my vision temporarily blurs every time I blink is due to the excess oil from my skin, clouding over the otherwise clear vision I would have. The reason I was blind for a day when I felt the tearing sensation was that I had ripped a layer off my cornea it took about 24 hours to regenerate she said. I had actually torn through several layers on my right eye and as a result I would be blind in it longer. She had no recommendations as to how to permanantly reduce oil production in my body so it wouldn't interfere with my tears that keep my eyes moist, but at least for the moment I have a solution that she offered to me and spending $20.00 every 2 weeks for the eye drops and ointment doesn't seem to be that outrageous of a solution if that is what I must do to keep my eyes healthy.

    If you are concerned about what to do about your corneal erosion, you might try what the doctor recommended for me and hopefully it will work. I am not sure the same method will work for someone with an actual eye injury though, but if you have oily skin or are curious if that might be the cause just look at something blink once or twice and see if you don't notice things slightly out of focus. If they are then it is quite probable that an oily sheen is coating the surface of your eye which might be the root cause of your condition. If you are afraid to see a doctor as I was, all I have to say is that a possible solution to a problem far outweighs just dealing with it on your own out of fear of what might be wrong.

    Peace

     
    Old 02-02-2006, 08:54 AM   #5
    mike1961
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    Re: Recurrent Corneal Erosion

    pal01 - How long have you been erosion free for? I'm glad it's working for you but I have to say I'm somewhat skeptical about some of the things your doctor said. Corneal Erosion is partially due to the cells inability to stick down to the base membrane. It's good to keep hydrated but I'm a little surprised that the doctor would tell you to just drink a lot more water than you already already are. I've heard this can be dangerous because it can cause hyponotremia (lowering the bodies sodium levels). You can certainly increase water intake but you may want to talk to a nutritionist and possibly supplement the water with at least some salt or increase your salt intake. But, I'm not absolutely positive of this so one may want to check it out further. In any event, it still seems most logical to me that since corneal erosion happens when one opens their eyes or moves their eyelids, it's best to add artificial tears right before whenever possible. Also, I've become more of an advocate of ointments like muro 128 during the day instead of artificial tears because it lasts so much longer.

    Mike

     
    Old 02-02-2006, 10:31 AM   #6
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    Re: Recurrent Corneal Erosion

    I forgot to ask - are you seeing an Ophthalmologist or corneal specialist? I'm wondering what kind of doctor you are seeing. You said that your doctor said:

    1. She mentioned also that the reason my vision temporarily blurs every time I blink is due to the excess oil from my skin, clouding over the otherwise clear vision I would have.

    This makes absolutely no sense to me.....It may blur due to either ointment or corneal erosion and has nothing to do with excess skin oil.

    2. The reason I was blind for a day when I felt the tearing sensation was that I had ripped a layer off my cornea it took about 24 hours to regenerate she said.

    Your doctor is wrong. It takes the epithelium months to regenerate. Usually at least 6 months or longer. Where in the world did she get 24 hours from?

    3. She said there is really not much I can do about the skin condition and it will be most likely with me my whole life, which confirms the dermotologists diagnosis as well

    There are lots of treatments for skin conditions. In fact, doxycycline could help both the acne and RCES. Now - for the deep cystic type of acne there's always the wonder drug from the 80's of course (accutane) but that's serious treatment and I have no idea what if any effect that has on RCES.

    Mike

    Last edited by mike1961; 02-02-2006 at 10:39 AM.

     
    Old 02-02-2006, 10:37 AM   #7
    Joelle1981
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    Re: Recurrent Corneal Erosion

    Hi again. Thanks to all who replied to my post. My parent's dog scratched my eye 5 months ago. I was in excruciating pain for a week. My fiancee had to feed and bathe me considering I couldn't open my eyes. I didn't want to get out of bed for anything. About a month after I thought I was "healed" my erosions started. I continued seeing my Doctor and she just rushed me out of the office showing no sympathy or even telling me what was wrong. She told me to use muro 128 ointment and possibly the drops. She also said that if this kept occuring she could scrape my eye. I felt like a crazy woman because I had no idea what was happening. Every time I would get an erosion (which always happens in the middle of the night) I would be in excruciating pain and I was so scared. Finally, I saw another Doctor who diagnosed me with rce. At least then I knew what was wrong. My situation is a little tricky because when the original scratch occured I only had major medical because I had recently quit my job (another horror story) and I had to independently insure myself. So because my rce was caused from my parent's dog I had to file a claim against my parent's home owner's insurance (after advised to do so from my parent's insurance agent). So now I have 2 years to make a settlement with the insurance which I have all ready spent 1,000 on medical bills and prescriptions in the last 5 months. I am sure now that this could plague me for the rest of my life so I'm unsure how the insurance could pay me for a syndrome that will not go away or have to be "managed" until I die. Of course, no amount of money could make what I've gone through any easier. When I get married I will have a better insurance plan but I'm not sure how they will handle my rce because it was a pre-existing condition. I just hope if I have to have surgery in the future (after the 2 year statute possibly) that I am not paying out of my pocket because I'm sure it's not cheap.
    I was successful in keeping my eyes closed while I awoke last night. Once at 1:30 and again at 4:00. What a crazy feeling! I am unsure how this will work for me the next time I get an erosion however because it's almost like my mind screams at me to open my eyes once my eye is sticking to the lid. I literally shoot out of bed and rip open my eyes. I am definitely going to work on this because like Mike says an erosion won't occur if I can master this. Do you squeeze the artificial tears in the corner of the eye while the eyes are closed? Also, at what point to I consider the steroid/antibiotic route. Because as far as I'm concerned I want to do that today if it will stop this. I have missed so much work because I can't drive when this happens. I can't even have light in the house. All I feel like doing is taking drugs to knock me out so I can sleep. Also, I get pounding migraines when the erosions happen and I feel so drained and exhausted like I have been weeping for hours. I lose an entire day or 2 each time this happens.
    Mike, you said the muro can cause erosions. That's all I've used up to this point so I'm not sure if it does or not for me. The drops sting my eye and make it feel dry and the ointment is just a big greasy mess. A lot of times after I use muro my eye feels a little itchy too. I never know when an erosion is going to happen. I could be fine for 2 weeks and then bam! Also, during the day sometimes I blink and it feels like I'm going to have one but it goes away. Well, this is very long so I will get going. Thanks for reading and helping me out. It's wonderful to have other people who understand what this is like.
    Good luck!

     
    Old 02-02-2006, 11:19 AM   #8
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    Re: Recurrent Corneal Erosion

    Long post here....

    You said: "I am sure now that this could plague me for the rest of my life" Actually, there are a few very effective treatments with either medicine or surgical. Some of the best that I have heard include 1) Artificial tears before opening your eyes and you can always use this with other treatments as well. Muro ointments at night also. 2) doxycycline 3) doxycycline & prednisone which as over a 90% cure rate 4) Dehydrex drops. 5) PTK (I've heard if it fails then when done a second time it has a 99% cure rate). 6) corneal transplant....a last resort I must say. I'm sure there are others but those are among the most effective I have heard.

    You said: "I am unsure how this will work for me the next time I get an erosion however because it's almost like my mind screams at me to open my eyes once my eye is sticking to the lid."

    Does this mean it worked for you? First off, I have to say that it's fantastic that you awaken feeling your eye sticking to the lid. That's a good sign because it means you are getting more in tune with your body and not just popping your eyes right open as you awaken. It allows you time to get the drops in. Don't panic...I can remember several months back when sometimes I would awaken when it felt like my eyes were cemented shut to my lid and I would just lay there eyelids still and relaxed to just "feel the feeling." I'm not sure why...perhaps I wanted to know the feeling better so I would awaken the moment the feeling started. One thing is for sure - that feeling no longer scared me at all...I felt totally in control because I knew that as long as I got the artificial tears in and then moved my eyelids I would be just fine.

    You said: "Do you squeeze the artificial tears in the corner of the eye while the eyes are closed?" Yes, lay flat on your back looking towards the ceiling and gently insert the tip IN the corner of your eye right by your nose and squeeze the drops in. Allow gravity to force the drops to flow DOWN across your eye. Let gravity work for you. If you insert at the bottom corner of your eye, the drops will just flow down the side of your face and not soak in your eyes.

    You said: "at what point to I consider the steroid/antibiotic route." The antibiotic (doxycycline) you can probably do anytime. The combo I've heard is very successful in treating this (like over 90%). However, many doctors are hesitant to prescribe the steroid because it can temporarily increase eye pressure. But, I know those on this board have had very good luck with it and you can do an internet search for more info on it. Unfortunately, most doctors are hesitant to prescribe a steroid but some will. Also, many are not even aware that doxycycline or the doxy pred combo is very effective in treating this. As far as when to consider the steroid, that's hard for me to advise anyone on that. Applying artificial tears has worked so well for me. You may want to give that a try and if you are still having trouble talk to your doctor about doxycycline and perhaps then you can ask them about the doxy steroid combo. Personally, I think almost anyone can avoid erosions if they can learn to awaken and apply the tears before moving their eyelids.

    What many are not aware of is that it can take a year or longer to become "healed." But, that means being erosion free for a year. You see, it takes a long time for the epithelium to "thicken" again and one needs to continue to be erosion free so that the cells can build back up again but you can do.

    You said "Mike, you said the muro can cause erosions." No, I said Muro drops (not the ointment) can irritate the eyes and make one more prone to erosions while for others it stops the erosions completely.

    You said: "Also, during the day sometimes I blink and it feels like I'm going to have one but it goes away." If I were you, I would consider to stop using the muro drops during the day and consider using the Muro ointment every four hours during the day. Definitely warm the tube under warm water...it should feel better when applying it to your eyes and it should be a LOT less messy if you warm it first.

    You said: "Thanks for reading and helping me out. It's wonderful to have other people who understand what this is like." Yes - believe me, we do. Many of us have had unsympathetic doctors. I went through 4 before I found one I like. Frankly, I think for whatever reason, many eye doctors have a limited number of treatments they use in their arsenal against RCES and I'm not sure why. I remember my first doctor kept prescribing Muro 128 and that was it. I remember my worst erosion ever in July 2004. It took 10 days until my vision was back to normal. Once I saw him again he told me to go back on Muro 128. I knew that was not enough and I remember feeling terrified to go to sleep and that night I slept really light and the next morning I awakened and I didn't dare open my eyes because I knew what could await me. My eyelid felt glued to my eye. I remember doing nothing for at least 10 minutes because I didn't want to open my eyes. I didn't know what to do. That's when I thought to myself, "maybe if I first put artificial tears in my eyes, I can lubricate them and they will open. It was like magic. I was able to easily open them without my eyelid scraping and disturbing the epithelial cells that are trying to "stick down" the base membrane.

    As you go through the healing process - you may awaken several times (especially in the beginning) where it feels like your eyes are massively cemented shut. Don't panic at all...just go through the motions of applying the artificial tears to your eyes (liberally apply them) and wait 15 seconds and FEEL your eyes lubricate as you apply them and you should be able to open them with no problem at all.

    Best to you and keep us posted,
    Mike

     
    Old 02-02-2006, 11:44 AM   #9
    mike1961
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    Re: Recurrent Corneal Erosion

    I should have mentioned.....you said "I am unsure how this will work for me the next time I get an erosion however because it's almost like my mind screams at me to open my eyes once my eye is sticking to the lid."

    Actually - there won't be a next time if you continue to do it right. Every time you awaken, add artificial tears regardless of whether it feels like your eye is stuck to the lid. Just relax your eye muscles (pretend like your eye muscles don't work at all) and just insert the artificial tears. Don't try to open your eyes and don't squeeze your eyelids closed either...do not use the eye muscles at all...just insert the drops.

    What you need to know is the LONGER you go without an erosion the less often you will be likely to get them and the longer you go, the less severe they will be if you get them than what you have already experienced. If you get one...just try to RELAX, blink as little as possible and immediately insert the artificial tears while keeping your eyes closed and relaxed for at least 15 minutes (no blinking).

    Start by setting a realistic goal of no erosions for 3 months - every night, just tell yourself that you will awaken, eyes closed, still and relaxed...

    Best to you,
    Mike

     
    Old 02-02-2006, 12:43 PM   #10
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    Re: Recurrent Corneal Erosion

    Mike, Thanks so much for all the information. It's so strange to get more information from you than the 3 Doctors I've seen. It's great that you know so much about RCES and that you are helping people.

    I was able to awaken while keeping my eyes closed last night. Yesterday was the first time I stumbled upon this site and like I said, received so much information regarding RCES. I did not however, have an erosion last night. I think I just told myself so much before I went to bed to wake up while keeping my eyes closed that it just happened which is great. My eye felt heavy but when I opened it I was not having an erosion. I am going to practice this and hopefully master it so that next time I have an erosion this method will prevent the tearing of the epithelium. That will be my first step.

    I have prednisone drops that my current Dr. prescribed me. I see a father/son combo and the father prescribed them. The son is who I've seen since and he was confused why his dad prescribed them to me. The father gave them to me after I had a bad erosion. He only said to use them for a couple of days until my eye felt better. That has been a while ago and I only use them the day of an erosion now.

    It is ironic what you mentioned about the muro drops because it seems that my last erosions have occured when I used a drop near bedtime. Lately, and luckily my erosions haven't been as bad as in the past. Hopefully, that's a good sign. Should I use artificial tears during the day just to keep my eyes lubricated or do you only suggest the muro ointment. I did notice a difference after I warmed the ointment. It went in more as a blob instead of a little snake of goo. It does make my eyelid and under my eye greasy and I definitely couldn't wear makeup with it in. How does the ointment lubricate the eye if it is in fact used to dehydrate the eye? Could you put the ointment in and then a bunch of artificial tears in before bed. That way fluid won't accumulate between the basement membrane and the epithelium but the lid would still be moist? Just an idea.

    A lot of people post that they have RCES in both eyes. Am I at risk for my right (good) eye to get this? That would be so horrible if I had it in both eyes.
    Do you think getting a humidifier for my bedroom would be wise? Also, do you recommend fish oil or flaxseed oil pills? What exactly does PTK entail?

    Again, thanks for all of your help.
    Joelle

     
    Old 02-02-2006, 03:03 PM   #11
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    Re: Recurrent Corneal Erosion

    Hello - You said "It's great that you know so much about RCES and that you are helping people. " Well, I don't want to come off as pedogogical and can only relay my own personal experience. Everyone on this board has a lot to offer.

    You said - "I was able to awaken while keeping my eyes closed last night." Were you able to put artificial tears in and feel them in your eyes before opening your eyes?

    You said: "I am going to practice this and hopefully master it so that next time I have an erosion this method will prevent the tearing of the epithelium." This method should prevent erosions and if you do get one then keep your eyes closed, don't blink and add artificial tears. You should really think of the epithelium not so much as "tearing" but rather as "shades of gray" or in other words how "thick" or how "thinned out" it is. The longer you go without an erosion or the LESS severe the erosion the "thicker" the epithelium will become.

    You said - "I have prednisone drops that my current Dr. prescribed me." Should you decide to use them, I would say only do so under a doctor's care. I've read that the standard Doxy/Steroid combo is 2 weeks for the steroid and 2 months on the doxy but I'm not sure of the dosage for the steroid. Check with your MD. Many go on the doxy longer because it's well tolerated by the body but as with any antibiotic women can get yeast infections.

    You said: "That has been a while ago and I only use them the day of an erosion now." The idea is to prevent erosions by adding artificial tears before moving the eyelid when you awaken. But, if you get an erosion you can minimize it by adding lots of artificial tears and keeping your eyes closed and relaxed for 15 minutes. Then once you start your day, you can add a little warmed Muro every 4 hours or so which I believe helps a lot more than artificial tears. Perhaps you should discontinue Muro drops if they are not doing you any good. I stopped using them a long time ago but I still use the ointment all the time at night and once in a while during the day.

    You said - "Should I use artificial tears during the day just to keep my eyes lubricated or do you only suggest the muro ointment. I did notice a difference after I warmed the ointment. It went in more as a blob instead of a little snake of goo."

    I would use the ointment. You may even notice that if you heat it up really warm/hot it almost goes in as a liquid...almost...If you apply around 1/8 - 1/4 inch and then just wipe off the excess you should have no trouble wearing makeup at all.

    You said: "How does the ointment lubricate the eye if it is in fact used to dehydrate the eye?" It sounds like a paradox I know but it works for most. I would use only warm ointment at night and not use artificial tears but definitely use the artificial tears upon awakening. I personally like Refresh Tears.

    You said - "Could you put the ointment in and then a bunch of artificial tears in before bed. That way fluid won't accumulate between the basement membrane and the epithelium but the lid would still be moist? Just an idea." Frankly, I just would not worry too much about fluids and excess dryness and what you do 8 hours before you awaken....I would recommend using an ointment like Muro but after that frankly I believe what you do right before you awaken is what will determine whether you get an erosion. Many of us sleep with our eyes just slightly open which causes the eye to severly dry out. Just add the artificial tears and you will be fine. You can't get an erosion if you don't move your eyelid. If you do get an erosion just keep your eyelid as still as possible and get lots of artificial tears in asap.

    You said - "Am I at risk for my right (good) eye to get this?" It's possible - I think my left eye has had that "dry" feeling about 6 months after my right had the finger poke injury. But, I never had an erosion in my left eye because I now just apply the same techniques that I do to my right eye. It's not bad at all once you learn to manage it.

    You said: "Do you think getting a humidifier for my bedroom would be wise?" It may help but again I think all those other things are just little things and it's the artificial tears that will make all the difference. Regarding the flaxseed, I use it but nowadays I use it more for a "heart healthy" diet since it is suppose to lower cholesterol and stuff like that. If it helps with RCES then great but I don't think it's going to be the "magic bullet."

    You said: "What exactly does PTK entail?" it's surgery with the laser that basically burns off the epithelium so that a new one can grow back. Considering this requires finding a doctor who is really skilled in the process and has done a lot of them. The one benefit that many get out of this is improved vision if they are nearsighted. Just like the benefit of doxycycline (and flaxseed too) is they are also good for acne.

    Personally - I would just start with trying the Muro at night and the artificial tears in the morning. You cannot get an erosion if you keep your eyelid still and add the drops first. This will start the healing process. It takes at least a year to really get healed. It's a process but just continue to avoid the erosions and you will heal. You can always supplement that with doxycycline but I think a steroid may be premature...check with your doctor.

    Keep us posted,
    Mike

     
    Old 02-02-2006, 03:28 PM   #12
    pal01
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    Re: Recurrent Corneal Erosion

    In response to Mike1961's post:

    I am seeing an opthamologist.

    As it was explained to me: oil and water do not mix, when skin oil gets into the mixture of tears coating the eyes surface, it causes blurring of vision. This seemed as reasonable an explanation as any I had heard.

    The cornea, as I was told, has many layers like your skin does. If you are damaging the top layer then it is going to heal relatively fast as your body is constantly regenerating new cells, but if several layers are ripped off at once or within a short period of time, then it is going to take much longer to replace the damaged cells.

    I have my acne under control now, but not the oil production of my body. The only treatments the specialist recommended were medications that put my healthy organs at risk and I would rather be oily than hurt my body just to try and "cure" it.

    As to whether the doctor I saw was "right" it does not matter if she was technically right or not to me in her diagnosis as long as the treatment for the condition was effective, non-invasive and has no side-effects I see nothing wrong with following her advice.

    If I have a reoccurance of the condition and she can offer no further helpful advice then I will see someone else, but for now it works. As a matter of fact, if she had rattled animal bones and chanted over me and it worked I would have been all for that as well as long as it stopped the pain.

    The pain is what concerned me and now it is gone.

    I have always had really dry eyes and regular eye drops never worked. The doctor said it was because of the preservatives interacting badly with the skin oil. The new drops work and unless I forget to use them my eyes aren't dry.

    The corneal erosion blinding pain thing started about 3 months ago. I saw the doctor 2 weeks ago and since I began to follow her advice I have only had one very minor incident that stung my eye slightly but didn't blind me. I can look at bright lights without wincing in pain and everything is beginning to look sharper than it has in a long time.

    When I go to sleep I don't dread what might happen and if I wake up and my eyes do feel dry, I just put more of the ointment in them and go back to sleep peacefully.

    Hopefully it will work for you, if it doesn't then I wish you well in your search for something that does.

     
    Old 02-02-2006, 05:06 PM   #13
    mike1961
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    Re: Recurrent Corneal Erosion

    Pal - I'm glad to hear that what you are doing is working for you. The only thing I can really disagree with is the time it takes for the epithelium to regenerate. it takes several months (even though the pain is gone, it's still thinned out and takes months to thinken up again). Just be aware of your water intake because I have heard that too much can deplete the body's sodium levels.

    Mike

     
    Old 02-03-2006, 10:12 AM   #14
    Joelle1981
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    Re: Recurrent Corneal Erosion

    Mike,
    Thanks for all the information. I am willing to try anything at this point in order to stop erosions. I have not yet purchased artificial tears but I will get them very soon. I will keep posting and hopefully it will be good news. I wish anyone who is struggling with RCES the best of luck.
    Joelle

     
    Old 02-03-2006, 12:52 PM   #15
    JaneNY
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    Re: Recurrent Corneal Erosion

    Joelle, I would like to suggest that you not use makeup around your eyes for now. I'd used eyeliner and shadow forever, and then gave it up when I started getting erosions. I wonder now if the way I'd smudge the line on top of my eyelid contributed to erosions - I have no basis for this, but obviously now, I NEVER smudge or even rub my eyelids. Haven't rubbed my eyes since July 2004. Now occasionally I'll use a little eye pencil on the lower eyelid, and around to the top a little, then maybe a little bit of shadow VERY gently applied, but not often. Having RCE just put a whole new perspective on makeup, and I discovered I looked fine without eye pencil, even though I'd worn it all my life.

    Oh - the eyemask helps me, btw. Helps me keep my eyes closed, plus keeping my room very cool when I sleep, which helps me not roll onto my back, which is not a good position if you tend to erosions.

     
    Closed Thread

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