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    Old 06-25-2006, 11:50 AM   #46
    Eagle
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    Cool Marian the Librarian

    Oh dear. Well, one eye sounds like a better idea than both eyes, double the risk, and younger rather than at my age, almost 20 yrs older and diabetic. I'm sure you'll want to keep an eye out for new developments. I signed up for a newsletter from MDSupport.com, and tried to sign up for a piacket containing a magnetic amsler grid but the number that has to be validated didn't come, unless it's the password number, which I already changed to my usual forums password. So I won't know for about a month whether I'm getting that stuff. If you try it, remember to add them to your address book before filling out the form and clicking. They said it might go into your spam folder. It didn't for me, and backspacing to do it all again doesn't work. You just get once chance.

    Removing any kind of lens implant would be more difficult than folding it and putting it in, I would think, or would they break it up and vacuum the acrylic out?

    I asked at a pharmacy yesterday when I was picking up a prescription refill if they have LUCENTIS yet, and he said maybe next week.

    I'm thinking of calling or writing my retina (macula) specialist to ask about it and to ask if my new blind spot can wait until my regularly scheduled appointment, some time in July or August. They have a van service, but it's scheduled way ahead, and going there by taxi is $60, plus I'm simply tired.

    For quite a while, I've been trying to clean my glasses in that spot, just looked like I had a smudge on my glasses, but on the 13th day after the second cataract removal, it made a black spot on the Amsler (?) grid, gone the next morning and just gray the afternoon of the 14th day. Vision comes and goes after any procedure, I remember from my retinopathy ones, but at church this morning I had to give up the thought of singing along. Used to play organ in dark sanctuaries, until all this came to a head. It sneaks up on you.

    I've been doing a lot of web research instead of just trusting, since my first cataract. Sure wish I'd started sooner. A five-minute procedure doesn't sound very serious, but I read that a few people actually have died from it!

    Also learned that the phaco-emulsification cataract removal is not as hard on the patient as the all-in-one-piece that I had with the larger incision, some squeezing, etc. Instead of having the yag, I THINK I'd just have them replace the old-fashioned mono-focus lenses, seem to have lost so much vision, meaning just near vision I guess.

    You're right that there will be new developments. My surgeon has only been practicing for about 8 yrs, and I'm guessing they may not have been doing the multi-focals when he started, so that he may be reluctant, though he seems bright and very personable, is training younger people.

    He didn't ask me what I do, (read rather complicated music on a piano or organ music rack or one of those black stands, arranging, and art, which looks a little like Monet did it. He had eye trouble, you know.) How's a patient supposed to know what lens they need? But with my macula degeneration still progressing, and all my scar tissue, I think I needed the more expensive ones, in addition to supplemental glasses as you said you use. This new drug is just once a month, to start, like some new arthritis or osteoporosis pill. I haven't memorized all the info yet. Think the dosage may increase after a couple of months. You'll keep us posted about your mother, if she tries it, and how she does, right?

    I wasn't very nervous before my last cataract surgery, since I'd been thru it before, but really am now. He's only in the ofc in my city on Tuesdays and I don't know if I should move my appointment up so as to ask him whether I should delay getting back to the retina specialist. She probably couldn't see the spot through the cataract before.

    I remember my late aunt having all this trouble, and I didn't pay too much attention, assumed it was all under the control of qualified people, and knew I didn't know anything to help. Families don't know how to support us, I now realize she probably realized. I'm not good company right now either, I know, didn't really want to go out among people this morning, had to force myself, took some tylenol, hurting all over, because I'd missed a couple of weeks already. They say some of the corticosteriod drops can get into your system. Did you feel bad for a while?

    Did you happen to see "Music Man", with a character called Marian the Librarian, played by Shirley Jones? As usual, thanks much for your input, good ideas. My smiley is a blind person, dark glasses. I'll renew my faith that things have to get better. Don't worry.

    Just read in one of the tabloids about a man who uses his beard hair like a cat's whiskers. Right, like babies with two heads.

    Last edited by Eagle; 06-25-2006 at 12:20 PM.

     
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    Old 06-25-2006, 12:25 PM   #47
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    From Someone Who's Been There

    Quote:
    Originally Posted by seriousperson
    .............

    Actually, I have 3 prescriptions of glasses even with the multi-focal implants. It sounds like you might be feeling disappointed about the results.

    I was very upset about my results for at least the first 3 months.

    But as the brain learns to interpret the new visual information, and as your ability to see steadily (but slowly) improves, you will be able to appreciate the results.
    Posting this quote for posterity ,for newcomers who may be feeling disappointed and worried the first three months. At the beginning of them it looks like a long road ahead but it's nice to have someone who's been there! It's also encouraging that you mentioned there will be more advances within ten years to make the multi-focals also obsolete. Hey, probably even sooner than that! I had anxiety at church because sanctuaries are often so dark, I can't tell who people are, unless they're doing some job that makes them stand out, and may not even say hello to someone I'm supposed to know, maybe just needed to relax more about it. That was just the first time since my last cataract surgery. Maybe I'll get used to it again. Things seem better this Monday morning.

    Last edited by Eagle; 06-26-2006 at 05:27 AM.

     
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    Old 06-27-2006, 05:19 PM   #48
    Cher2005
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    Re: cataract surgery

    Bless you Eagle and try to remain calm. The worst thing is to get all sorts of anxiety , it will ultimately make your vision blurrier, I think,
    I got a cortisone injection in my good eye about 3 weeks ago and it has helped me considerably. I know it won't last but right now I feel so much calmer and more normal. My vision had gottewn so blurry I was getting panicky.
    I will still need the cataract surgery in my good eye once it comes to a head. I am scared about this, very. It is my only good eye. But I try not to think about it until it has to happen. I am so scared it will wreck my vision for at least a long time and maybe for good, who knows?
    Have you considered a victrectomy for the scar tissue? I had quite a bit from the many lasers I have had, plus the progression of macular edema. Anyway it has made my eye feel much better if not improved the vision that very much. The doctor is thinking about injecting my poor eye with cortisone to see if it will help.
    Another advance will be an injection (perhaps an implant) that will deliver the cortisone for at least 6 months. I am looking forward to that since doc does not like injecting the eye too often.
    I know there is a new injectable drug that helps macular degeneration. If I were you I would definitely ask your doctor. Anything we can do to keep this horrid disease at bay is good.

     
    Old 06-27-2006, 06:08 PM   #49
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    Re: Marian the Librarian

    Quote:
    Originally Posted by Eagle
    ... I'm sure you'll want to keep an eye out for new developments. ...
    No pun intended?


    Quote:
    Originally Posted by Eagle
    ... Removing any kind of lens implant would be more difficult than folding it and putting it in, I would think, or would they break it up and vacuum the acrylic out?
    I don't know about removing an implant, but putting another one in is supposed to be tricky.


    Quote:
    Originally Posted by Eagle
    ... at church this morning I had to give up the thought of singing along. Used to play organ in dark sanctuaries, until all this came to a head. It sneaks up on you.
    Some of these abilities may come back to you. We've learned to compensate over the years for poor vision; now we just have to learn to use those kinds of skills in new ways. For nearly 40 years I was virtually blind in any darkness without my glasses, but I learned to find my way to bathrooms, and even outhouses in the middle of the night. Now I feel proud of myself because I can select brown shoes instead of black by touch in a dimly lit closet rather than turning the light on. I guess I'm easily amused. LOL


    Quote:
    Originally Posted by Eagle
    ... I've been doing a lot of web research instead of just trusting, since my first cataract. Sure wish I'd started sooner....
    I think I know what you mean. After the first eye I felt something very much like the buyer's remorse I felt when I bought a used car that cost almost as much as a new car.


    Quote:
    Originally Posted by Eagle
    ... Instead of having the yag, I THINK I'd just have them replace the old-fashioned mono-focus lenses, seem to have lost so much vision, meaning just near vision I guess.
    Once your post-surgery vision stabilizes and you get some appropriate reading glasses, it won't be so bad, especially when you have good daylight.


    Quote:
    Originally Posted by Eagle
    ... He didn't ask me what I do, (read rather complicated music on a piano or organ music rack or one of those black stands, arranging, and art...
    That's one of the things that still makes my blood boil. He actually did ask what I did. But after I mentioned one or two things, he moved on to other questions. I never even got a chance to mention finely detailed realistic art work.


    Quote:
    Originally Posted by Eagle
    ... How's a patient supposed to know what lens they need? But with my macula degeneration still progressing, and all my scar tissue, I think I needed the more expensive ones, in addition to supplemental glasses as you said you use.
    The more expensive lenses may not have been better for you. It's much easier to get an accurate eyeglass prescription to supplement the single-vision implants. I can function without glasses, but I need them to be really productive or to read anything longer than the cholesterol and fat content on a food label. And because of my fancy lenses, the glasses can only do so much. But I'm compensating quite well now.


    Quote:
    Originally Posted by Eagle
    ... I remember my late aunt having all this trouble, and I didn't pay too much attention, assumed it was all under the control of qualified people, and knew I didn't know anything to help. Families don't know how to support us...
    Partly that's because we are really still trailblazers. The medical professionals don't know how to support us either. I was really wanting to write something or do something to help others having this procedure, since the doctors seemed so clueless. I did offer to talk to people in my doctor's practice, and he actually did refer one patient to me for pre-surgery coaching about what to expect. But he hasn't since. Perhaps he could get into legal troubles that way. So, I'm happy to be able to answer questions to the best of my ability on this message board. I think the Apostle Paul is to have said something about being glad when you go through troubles because you will be able to help others through the same kinds of problems.


    Quote:
    Originally Posted by Eagle
    ... Did you feel bad for a while?
    Yes, but not overly bad, considering everything. It does get better.


    Quote:
    Originally Posted by Eagle
    ... Did you happen to see "Music Man", with a character called Marian the Librarian, played by Shirley Jones?
    My memory of it is rather dim, but I'm a bit like her.

     
    Old 06-27-2006, 06:15 PM   #50
    seriousperson
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    Re: cataract surgery

    Quote:
    Originally Posted by Cher2005
    ...The worst thing is to get all sorts of anxiety...
    It's not so much getting the anxiety as it is not coping with the anxiety, I think.

    Quote:
    Originally Posted by Cher2005
    ...I will still need the cataract surgery in my good eye once it comes to a head. I am scared about this, very. It is my only good eye. But I try not to think about it until it has to happen. I am so scared it will wreck my vision for at least a long time and maybe for good, who knows?...
    Take your time. No rush. I know doctors can be very conservative when deciding to do cataract surgery on a person whose vision is already compromised in other ways.

     
    Old 06-28-2006, 03:46 AM   #51
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    Thanks, Everyone

    It's so nice to be able to discuss with people who've been there.

    If it was the apostle Paul who said something like be glad when you've been through something you can then help others with, I'm glad to hear that. When I tell my grown kids anything, I always say something like "In case you guys ever go through this, you may as well know in advance", words to that effect.

    Yesterday I printed out part of an article stating/speculating as SeriousPerson said, that there will be improvements in even the multi-focal lenses in about six years.

    Fortunately for me, I have a friend in her seventies who also just had cataracts removed, so we talk a lot. Our families are naturally not too interested. She still sounds tired too.

    Thanks so much for the encouragement, everyone.

    Sure hope I don't drag everyone down.

    Cher, yes, I had one Kennalog injection right into the eyeball, won't know for a month or two what my retina specialist may do next. Someone said somewhere in this forum that steroids did something, negative, which I forget, which may be why she didn't ever do another. I remember the spider-web floaters that didn't go away for about ten days. Have had those again after the cataract surgery.

    Vitrectomy for scarring? I know she wrote to the opthalmologist that I wasn't a candidate for that, and I would guess it's because I have to avoid salt to prevent macula edema, swelling, which makes me see large ink blots, and they use a salt solution during the healing. Could make myself sound really hopeless and it'd probably make everyone feel bad, so maybe I should stop talking about it until I see if I'll find the right glasses that will help. I'm sure most people don't think what if I get kidnapped and they take away my glasses, that I'd need for my escape, and like that, improbable worst case scenarios. Yeah, remorse, as I believe SeriousPerson said, I think I ignorantly made an inadequate deal, trusted the pro's would know best. You do art too?

    Marion the Librarian had a sign in her window in the movie that said "Piano Given". Not piano lessons given. I forget the actor's name who taught "the think system".

    Knew the implants might not improve my near vision, but didn't think about losing what I had, along with my natural lenses, never heard anyone complain about it. Now I find that distance vision may not be any better with multi-focals than with mono, but near vision would be better.

    I'm sorry to worry you about it, folks, and maybe she, the retina specialist, will have something in mind, including the new medicine for macula's. You mean LUCENTIS? I'm rather excited about that, and taking some I-caps the opthalmologists recommend that sometimes help.

    Last edited by Eagle; 06-28-2006 at 05:43 AM.

     
    Old 06-29-2006, 06:00 PM   #52
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    Re: cataract surgery

    Eagle, It's okay to mourn the loss of your near vision. At least it's okay in my book. I know I did. And I had to tell myself it was okay and natural to feel that way because not too many people (except maybe here) thought it was okay.
    It's a very confusing time, because you're also feeling totally blessed with being able to see far without glasses -- which makes you then feel guilty about being sad over your inability to see details up close.

    I've had nightmares and daydreams about losing my glasses and being totally lost. It does help to recall those dreams and realize now that wouldn't happen. Last weekend I was out on a pier looking down over Lake Michigan and smiled to realize I didn't have to worry about my glasses falling off into the water, leaving me legally blind. I could legally drive without glasses (though I'd rather not).

    Yes, I was pretty depressed about not being able to thread a needle until I finally got some reading glasses that actually worked with my astigmatism and different eye implants. I think the real low point was when I sat in church and wanted to sketch a flower in an arrangement on the alter, but couldn't see the paper well enough to draw.
    But now I can.

    So don't feel guilty about being sad right now.
    But keep in mind it will get better.

     
    Old 06-29-2006, 06:44 PM   #53
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    Re: cataract surgery

    Hi Seriousperson and Eagle

    Mind if I jump in with some questions ? I have posted a new thread and thanks for replying Seriousperson.

    With existing macular conditions (mine are weakened and I have some scarring), was it recommended that you had extended use of the anti-inflammatory eye drops ? My surgeon has not recommended this, however my previous retinal specialist (in my last city) did say that is what he would do, when the time came for the cataract surgery. My main concern is swelling of the maculars again. Reading things on the internet is sometimes NOT a good thing ! I should just be listening to my surgeon who is also a very well respected Macula Specialist and not thinking too much about the "what ifs" !! I have started noticing a couple of floaters again, but I do recognise them as being existing, older, faded ones which I had before. My brain needs to forget them again too.

    I liked what you said Seriousperson, about remembering the end results. I have spent most of the past 10 days inside, until I get the second eye done (mainly because all my kids have been sick and I have had to stay home to look after them !!) and I can't drive yet, but when I am outside I am amazed at the clarity of my distance vision in comparison to beforehand. I was a -16 and I don't know what that equates to on the 20/20 chart but I know that 20/800 is -6 !!! So I was waaaaaay off the chart. My brain is doing alot of adjusting. Even with contact lenses, there was alot of irregularity in vision.

     
    Old 06-29-2006, 07:11 PM   #54
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    Valuable Posts

    Thanks much, Serious. Probably others will also be helped by your encouragements, not just myself.

    I really did finally have more energy today, and I hear you about the fear of losing glasses and being lost! I have that feeling too. Or not being able to find exactly the right ones for me. You do hang them around your neck, right? One of those fancy strings with beads broke a couple of days ago. The string ones are safer, I guess.

    I'm in SE Michigan, can't see any of the lakes from here but Erie is not far.

    Last edited by Eagle; 06-29-2006 at 07:12 PM.

     
    Old 07-01-2006, 03:04 PM   #55
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    Re: Valuable Posts

    Quote:
    Originally Posted by Eagle
    ...You do hang them around your neck, right? ....
    Yep!
    My optician (the same one that let me replace the post-cataract surgery lenses 4 times for free) recommends the eyeglass chains with a single loop or ring through which one of the glasses' temple pieces hooks.
    I don't think I'm explaining that very well, but perhaps you've seen it?
    He says the more common type with the 2 rubber tips tends to cause the glasses to get tweaked--which means the customers are always returning for an adjustment, for which my optician doesn't charge.

    I use a simple silver necklace chain with a very small ring that was made by my father (he no longer makes jewelry) for my oldest daughter when she was small. It was passed on to her sisters, and then back to me. So it's very special. It gives me a warm fuzzy feeling about my glasses, which we all here know is a good thing.

    By the way, when I have them around my neck when I'm driving the car, I'm always careful to put the seat belt shoulder strap under the glasses so they don't get scratched or bent.

     
    Old 07-01-2006, 05:10 PM   #56
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    Single Loop, Only Hooked to One Ear Piece?

    Wow, do you ever have all the answers. I can't imagine it, unless they used to use them in English movies (?) Maybe I've seen them that way.

    Since I've been using reading glass for about 26 years, I do know how the ear pieces can get loose, or even break, a lot. In 1980 I had some prescription bifocals, but couldn't get used to wearing them all the time, lost them in a real estate class where we sat at desks. So right then I decided to just use the much-cheaper otc reading glasses.

    Everyone having a nice holiday weekend? I hope.

    Just got a new supply of my stress vitamins with zinc, and I'm feeling better, looking forward to the holiday. There will be a patriotic concert on public TV. I forget which day and what time, as they'll probably announce it a few more times.

    Thanks as usual for all the information. How's your halo's?

    Last edited by Eagle; 07-01-2006 at 05:11 PM.

     
    Old 07-02-2006, 08:30 PM   #57
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    Re: cataract surgery

    Seriousperson,

    Don"t know if you remember me. Orangecrate from TN. I had my surgery just before you and had the Crystalens put in my right eye. Well it was a year in march and it is okay. I wore glasses since I was eight and got this done at 59. I still reach up for my glasses every once in awhile. Go back to the Dr. in Oct. My left eye still has a cataract that I think is starting to get worse. Any ways I don't have to wear glasses to drive or read and working on the computer is the best. When I took my eye test for driving I could not see all the letters on the screen. I told her the Dr. said to tell them I had monovision. Finaly someone else that knew something said it was okay and the only restriction was to have mirrors on both sides. Not too many cars that come without them!! I can read real good but my left eye is still doing all the work. I can read out of my right eye but the print is soooo small and I have to hold it away from my face about 15inches and I can still read it. But if I bring it closer it is blurred. With both eyes it is great. Dr. said he may put Restore or another brand in when the time comes. He said it may be a couple of years. I worry about not being able to read close when the other eye is done. See what he says in Oct. I have not been on this site for a long time.


     
    Old 07-02-2006, 09:10 PM   #58
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    Re: cataract surgery

    Orangecrate!
    Sounds like you're doing very well.
    And it sounds like your experience with the crystalens is like mine.
    I too had the concern about not being able to see close after the second surgery, so my doctor gave me the Restor in the second eye.
    You can read in this thread and others about how that's been working for me, but if you're 2 years out from getting your other eye done, you might not want to bother. Although it might be good to compare what I've experienced with what others will experience with the ReZoom or the Tecnis or other types that are not even on the market yet.

    You are doing much better with only one eye done than I did or some of the others who have been posting here. I don't recall, but I'm guessing your left eye is not much worse than a -3.0 for nearsightedness. I was a -6 and it really bothered me. But maybe you're just more adaptable, or don't need to see all distances clearly to do your work.

    I am doing much better now that I have bifocals with the top half for the computer and the bottom half for reading. I take them off or look over the top for distance, or I wear my "driving" glasses that correct the astigmatism.

    I don't know why I have astigmatism. That is, I don't know if it's just something that doesn't get fixed by the lens implants, or if it's something caused by poor pre-op measurements for the implants.

    Anyway, it's good to "see" you and good to see everything much more clearly, whether with glasses or without.

    Halos are only troublesome when driving at night.

    OH. I almost forgot. Did you get a YAG done?

     
    Old 07-02-2006, 09:32 PM   #59
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    Re: Marian the Librarian

    Quote:
    Originally Posted by Eagle
    ... You'll keep us posted about your mother, if she tries it, and how she does, right? ...
    I was just sending my mom an article on Lucentis and noticed this towards the end:
    ...Genentech is committed to assisting eligible patients in accessing our
    therapies for approved indications, regardless of their ability to pay. Although
    Genentech's products are covered by most government and private insurance,
    Genentech established the Genentech(R) Access to Care Foundation (GATCF) in 1990
    for its marketed products, and donates free product to eligible uninsured
    patients in the United States,...
    It also said that in the trials of the drug, people's vision improved by 3 lines on the chart.

     
    Old 07-02-2006, 11:22 PM   #60
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    Re: cataract surgery

    Well, my surgery is scheduled for the 19th at 6:30 am. I've filled out all the paperwork and everything is set to go. I'm having the Rezoom lens placed in my left eye. I think I'm more worried about after the surgery then the actual surgery. Right now my left eye is blind. I can barely distinguish between light and dark and my depth perception is really off. My left eye was throbbing for about a week. I think it was because my eyes were really straining. I still get really bad headaches and my eyes tire really easy if I spend much time on the computer or reading. I only drive 15 minutes home from work at night time and always the same road. I won't drive anywhere else once dusk hits. I've been having double vision/ghosting at night if I drive with both eyes open. So I have to drive with my left eye closed at night. That makes for a VERY long drive. My right eye is exhausted by the time I get home. I definetely have to get this done soon. My left eye just feels sore all the time and my right eye is straining so much that the vision is actually a bit worse in it now. I hope that's the reason it's worse. The other option is that the cataract in it is getting worse. I really worry that it will progress as fast as my left eye did, literally overnight. I went to bed on a Wednesday night able to see with a little blurriness and the halos at night, to waking up on Thursday unable to see out of that eye. I look in the mirror and I can actually see the cataract. Yuck. I definetely was a bit freaked out that it happened so quick. So, as I said, I'm a bit worried that my other eye will do the same thing before "bad" eye has healed and adjusted.
    I have been a bit surprised at how much my depth perception is off with this. I went to sit in a chair the other day and barely made it, just catching the edgeof it. I thought I was far back enough. Today I almost hurt myself. I was walking down the stairs and thought I was at the bottom. Needless to say there was another step or two and I fell flat on my face. Luckily I didn't hurt my feet, or anything else for that matter.
    The 19th can't come soon enough. I just hope all goes well and I have a miracously fast recovery (perfect vision at all distances overnight ). I have to take a week off from work (I have to lift over 50 lbs.), so I'm hoping I'll be able to see well enough when I go back, and that I can drive myself home from work. I guess after the surgery my next big challenge will be to get glasses that will work for the "new" eye and my very near-sighted right eye (contacts are not an option). Hopefully I'll be able to save up for the next eye surgery quickly and not have to worry about glasses. AHHH, dare to dream.
    Debi

    Last edited by my2sorefeet; 07-02-2006 at 11:28 PM.

     
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