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Dancinboots 05-05-2008 03:04 PM

Triesence Steroid Injection
 
Has anyone ever had a triesence steroid injection for cystoid macular edema? I have had surgery for a epiretinal membrane. It didn't seem to help much getting the swelling down. The edema effects the central vision.

Today I had a triesence kenalog steroid injection in the eye to help with the swelling. So far I don't notice any improvement, but I just had it done today. In fact my vision is even more distorted than it was before the injection. Could be it needs to heal up a bit following injection. I am seeing floaters also, but I was told that was from the medication. This whole problem is very discouraging.:confused:

Sharon

sabrina2 08-26-2008 10:47 AM

Re: Triesence Steroid Injection
 
don't know if you're still following this thread, but i just saw your post. i had surgery earlier this year for erm, it was very thick and i have had cme since that has not resolved. at first it was treated with pred forte at varying doses for several months. it helped a little but cme was not resolved and got worse when drug was stopped. i just received intraoccular avastin. so far i have not noticed any signficant change for better or worse. my dr. did not mention the drug you had so i don't know if our conditions are similar. i hope by this time your edema has improved. i know how frustrating it can be.
good luck

Dancinboots 08-27-2008 02:02 PM

Re: Triesence Steroid Injection
 
Hi Sabrina

Sounds like you and I have the same exact problem. Epiretinal membrane (macular pucker) and cystoid macular edema. Here's what I have done so far. In 2006 I had the vitrectomy surgery where they do the membrane peel. After I went on the pred forte just like you. I was told that and it would take several months until I noticed improvement. Well nothing improved and my vision remained the same (poor) in my right eye. My Dr. said I had one of the thickest membranes he had ever seen.

After almost a year with no improvement I was given a steroid injection in my eye and it did nothing for me either. In April was when they tried the triesence steroid injection and that has done nothing either. My doctor said the only thing else they could do was another vitrectomy surgery using the new 25 guage instruments that are supposed to be much finer than the 20 guage.

He seems to think he would have better results peeling back more of the membrane with the finer, smaller guage. I don't fully understand everything he tells me, but I do trust him. He has been one of the top Retina docs in Michigan for the last 10 years. He did tell me that he doesn't think I will ever get my vision back to where it used to be, being that this problem has been ongoing for nearly 7 years before getting treatment.

What he did tell me was that I may gain 3 to 4 lines on the chart, and that would make me very happy at this point. Of course no surgery is without risks but I am not too worried about it since I have been through it before with no complications. All I would hope for would be better results if I decide to do it again. Let's hope we can both get this problem resolved. It is very discouraging to continue to spin your wheels and not get anywhere.

sabrina2 08-27-2008 04:32 PM

Re: Triesence Steroid Injection
 
Hi Dancinboots,

Our cases do seem similar. My surgery was done with the 25 guage instruments and the ILM (internal limiting membrane) was also removed. So at this point no surgery is being recommended.
Good luck,
Sabrina

KGP109 09-11-2008 01:39 PM

Re: Triesence Steroid Injection
 
What is triesence kenalog?? I too have macular edema that is very resistent to treatment. I have had intravitreal kenalog before (which made a miraculous improvement, but the edema has come back a year later)... I've been having Avastin injections the last 5 months with no improvement at all. Please reply.

Dancinboots 09-12-2008 11:44 AM

Re: Triesence Steroid Injection
 
KGP

Triesence steroid injection I believe is just another form of a steroid injection that they try when nothing else has worked. The injection was given right in the middle of the eye instead of off to the side like the kenalog steroid injection. I know my vision was very blurry for a couple of days and I was told it that was from the dye that was used for the injection.

The blurriness went away in a couple of days. But as of now even after vitrectomy surgery 2 years ago to peel back the membrane (which I am told was one of the thickest ones my retina specialist had ever seen) followed by eye drops, and 2 different types of steroid injections, my vision in right eye has not improved. Very discouraging to say the least.

The only thing left for me to try would be another vitrectomy surgery with a new finer 25 guage instrument that supposedely may do a better job peeling back more of the membrane. I am told that the best I could expect would be to gain 3-4 lines on the chart, which would be an improvement from barely being able to read the big E on the chart right now.

I will be seeing my doc at the end of the month to decide whether or not to repeat the surgery. I want first to know what the percentage of success I can except. It will have to be at least a 50-60% chance of improvement before I will agree to go through this again.

Has you doctor ever talked about surgery? Actually the surgery was not big deal. It is an outpatient with very little restrictions afterwards.

Sharon

sabrina2 09-29-2008 02:43 PM

Re: Triesence Steroid Injection
 
To Dancinboots and KGD,

I went for 2nd Avastin shot today and was told that it did not seem to be working for me. Dr. gave me a Kenalog shot instead to see if that works,
It's been 8 months since my surgery for erm and no visual improvement so far.
Keeping my fingers crossed. It helps to hear other's experiences.
Thanks for sharing.
Sabrina


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