Hi all. I have not been on the boards here for quite sometime, as I wasn't sure if it was making my depression/anxiety worse. My husband is now starting his 5th week of chemo/radiation. He gets continuous 5fu infusion through the port along with radiation and a big blast of oxilpatinum and avastin 1 every 2 weeks. We are in the process of looking at surgeons for removal/resection. We are going to USC to a Dr. Beart who is supposed to be "the man" with this type of surgery. Unfortunately, he doesn't contract with any insurance companies....
But, we are still going to see him for a opinion.
My husband is miserable, pretty much just stays in bed. He told me today that he feels like he's dying---no energy and he said he feels like his tummy is rotting. I'm hoping/praying that it's just the cumulative affects of all of the treatments. Only 2 more weeks and then we are done until surgery. I still worry that it has spread or is worse than they have told us. The ct scan looked clean and to this day his bloodwork is good. The doctors tell me they won't get a "true" picture of what's going on until pathology reports come back after surgery. They won't do a pet scan until before surgery as well. They said they are being as aggressive as they can be right now anyways.
I've been trying to stay busy with the kids, and the house...my husband has pretty much shut down, which makes it hard. He said it hurts to talk so he pretty much just sleeps and watches tv.
I'm looking forward to this part of the treatment to end. Only 2 more weeks.
Praying for all of you,
Tonya
