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    Old 01-13-2009, 03:13 PM   #31
    Strawberry Girl
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    Re: Has my 9 year old daughter got scizophrenia?

    Thank you jsfai. You are very kind. I will try to find this information.

    May I ask why you are on this board? Do you or someone close to you suffer with Schizophrenia?

    Take care
    M

     
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    Old 01-13-2009, 03:30 PM   #32
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    Re: Has my 9 year old daughter got scizophrenia?

    MSD: Yes, I'm also intrigued by the fact that our symptoms are so similar. As you may know, in 2006 I was misdiagnosed with schizoaffective disorder which is a subtype of schizophrenia. However, after starting to experience rapid cycling in addition to auditory hallucinations, delusions and paranoia, my diagnosis was changed to atypical bipolar I disorder with rapid cycling.

    Strawberry Girl: My auditory hallucinations never really affected my university studies -- although to be honest, I've been having a great deal of trouble last semester. I've been having difficulty with rapid cycling, racing thoughts, auditory hallucinations, delusions and 7 different types of paranoia. My symptoms became so severe that I ended up withdrawing because I could not concentrate or focus on my school work. I've decided to take time off until I can get my rapid cycling, auditory hallucinations and delusions under control. Once I maintain some degree of stability (over the span of at least 1-2 months), I will return to school.

    In case you are wondering, I'm on 4 different meds for my bipolar which address my manic and depressive episodes, auditory hallucinations, delusions and paranoia -- 1 mood stabilizer, 1 anti-depressant, 1 antipsychotic and 1 sleep med. My pdoc wants to add a second mood stabilizer soon, so that will make 5 meds total.
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    Last edited by dreams in neon; 01-13-2009 at 03:35 PM.

     
    Old 01-13-2009, 04:57 PM   #33
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    Re: Has my 9 year old daughter got scizophrenia?

    Hi Strawberry girl.
    No I don't have schizophrenia but I have been treated for depression for nearly two years (although I now know that I have suffered for many years - I just thought I was dull!) I had an episode before christmas where I hit an all time low and had suicidal thoughts. My psych wanted me to take an anti psychotic (zyprexa) which I did during the crisis period but I am very reluctant to take for various reasons.
    Which leads me to answer your question. While researching the drug, I came across a lot of information about it's use for schizophrenia, so I had a look at this board hoping to find some experiences with the med and I came across your thread...
    I cont have a specific diagnosis although I do have rapid cycling and can go from normal to complete misery and despair in a matter of hours. Words such as bipolar have been mentioned but nothing set in concrete...but as other people have said already, and as you know, it can be extremely difficult to diagnose mental health.
    I have three kids, all little and I was feeling for you. I had your thread in the back of my mind when I came across that statement...I was also struck by the openness of the others posting here and how much I realized I didn't know or understand about schizophrenia. A brother of a dear friend of mine has schizophrenia and while I have always found him to be lovely and sweet and know that his family cope extremely well with his condition, I guess I have always been a little wary....this thread has been enlightening, a healthy education you could say.
    J

     
    Old 01-13-2009, 04:59 PM   #34
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    Re: Has my 9 year old daughter got scizophrenia?

    Aw, it's cute that your daughter loves High School Musical so much! When the first one came out on TV I was in 10th grade and EVERYONE in my school was obsessed with it.

    I do hear voices when I'm at school, and it can be very difficult to pay attention to my professors when I'm experiencing such symptoms during class. What I do is email the professors and ask them to send me the lesson plan a few days before class, so I can go through it before I actually go to class. In high school it was difficult to do that because I find students are not as close with their teachers in high school as they might be (or is found appropriate) in college. Also, many high school teachers don't do their lesson plans on the computer...but I did very well in high school just by studying and being open with my teachers about my illness, and some teachers in high school photocopied their plans, so it worked out.

     
    Old 01-14-2009, 07:58 AM   #35
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    Post Re: Has my 9 year old daughter got scizophrenia?

    Thank you again everyone for your responses.

    MSD: My two daughters are also both osessed with HSM as are many of their friends. It is reassuring to know that despite your illness you have still been able to continue with your education. I think it is also due to your inner determination and motivation. From what I can gather Paranoid schiziphrenia is the least disabling form in terms of it effecting your personality and IQ. Your posts have been very educational and enlightening. My daughter begun her new meds today, so I will keep my fingers crossed that her symptoms will improve over the next few weeks. Take care MSD and continue to find strength and comfort where you can.


    jsfai: I am so sorry to hear about your depression. This must be particularly hard with three little ones to look after - as I know only too well, children can be very demanding. YOur symptoms so seem similar to Bi-polar - although I am far from being an expert. Mental illness is a very misunderstood illness - many are afraid of it or ignorant to the realities of it - choosing to believe the stereotyping of mental illness. Do you have regular therapy to help you manage your symptoms? I wish you well, as I am sure each day must be a struggle for you. Hopefully you will find something or someone which will bring comfort to you.

    Dreams: Thank you again for your response. It sounds as if you have learnt to manage your illness well, despite the pain it must cause you. Anyone who is afraid of mental illness should come on to this site and read the postings as they are very enlightening. The postings on here from all of you are helping me come to terms with the fact that my own child may have a serious mental illness - but I can see despite the cruelty of the situation you are all facing, there is hope. She can still be educated and I am not going to 'lose' my daughter to this illness. She will still be the same little girl/young woman I gave birth to, even if she does have this illness - whatever this illness may be. I hope you will continue to find the inner strength and detemination you demonstrate when you write on this board. We can all learn from you and MSD.

    Take care everyone and stay in touch.

     
    Old 01-14-2009, 01:33 PM   #36
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    Re: Has my 9 year old daughter got scizophrenia?

    HI Strawberry,
    Yes I have a fantastic doctor who has been very kind but also very confronting and honest. It has been hard work at time but I can see that it is worth it in the long term. My husband has also sort support so that he can support me. Do you get help and support for yourself? I know that you're a single mum (hats off to you!!! BIG respect) but do you get counselling?

    I have also found these boards (particularly depression) to be extremely helpful.

    Take care of yourself, otherwise taking care of your children will be harder...


    J

     
    Old 01-14-2009, 02:45 PM   #37
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    Re: Has my 9 year old daughter got scizophrenia?

    Hi jsfai

    I am glad you have the support around you - that is so important, particularly when you have children. Our children need us, however we may be feeling. I am pleased you have a fantastic doctor, who provides you with support. How long have you experienced depression for? Are you aware of whether there are reasons why you are suceptibile to depressive illness or is it due to an chemical imbalance in the brain? I guess we all have 'demons' in our past and sometimes, for a variety of reasons, we are not equiped to deal with them and this can mean we become vulernable towards depression. Equally so, depression can be caused by a physical imbalance or indeed a combination of all these factors.

    No I do not have counselling. I did in the past, but for me at least, sometimes our experiences are best to remain in the past. This is not to say that I do not think counselling can be invaluable for many individuals, as I know of many who have benefited. Support is thin on the ground, as we do not have any close family (my parents passed away before my children were born and I was an only child). I do have some good friends, but everyone has their own lives to lead and I do not think many people can relate to what my child is experiencing. She has been out of school for several months and is with me for 24 hours a day, 7 days a week. In fact I have never had a day or night off since she was born (except when I went into hospital for one night). It can be very tough, as she is often awake until midnight and then I am up again the next day at 6:30 as my youngest daughter needs to go to school. Support is also poor, if not non-existent, for children who suffer with a mental illness - or at least it is in the UK. There are many agencies providing support for children who have autism in London, but nothing for children who experience psychosis as my child does. I have been told that if I am concerned or worried for her safety or the safety of others then I must take her to Accident and Emergency. However, when we did they told me that there was nothing they could do as they do not have a child psychiatrist on call. Her psychiatrist also has no experience of treating children as young as 9 for these symptoms and the school do not know what to do either.

    I woud be interested to find another parent/carer on this board whose child is going through similar experiences or even someone who had a child who experienced this during childhood and is now an adult.

    Take care jsfai and be strong - continue to seek the support you need from those around you.

     
    Old 01-14-2009, 06:24 PM   #38
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    Re: Has my 9 year old daughter got scizophrenia?

    Strawberry Girl,

    Here in the U.S. we have pediatric psychiatrists who are specifically trained to work with children. Do you know if there is anything similar like that in the UK?
    __________________
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    Trazodone 100mg or 200mg PRN

     
    Old 01-15-2009, 01:10 AM   #39
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    Re: Has my 9 year old daughter got scizophrenia?

    MSD: Once you return to college will you still have access to this board, as we would like to to know how you are managing/that you are well?

    Dreams: Yes there are psychiatrists who specialise in children in the UK, but I am told my daughter is presenting with symptoms, which would not normally occur in a child of her age, which is why they are puzzled. They have been searchig for an organic cause but so far nothing has been identified. This morning she has complained of a headache/dizziness and has been vomiting. I am not sure whether this is due to the new meds or not, as she experienced these symtoms when she was on risperidal.

     
    Old 01-15-2009, 03:11 AM   #40
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    Re: Has my 9 year old daughter got scizophrenia?

    Strawberry Girl,

    There is something called childhood schizophrenia (or childhood onset schizophrenia abbreviated COS) that is a valid mental illness. You might want to do an internet search to find more information and perhaps print out any documentation you can find and bring it to your daughter's psychiatrist.
    __________________
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    Prozac 40mg
    Risperdal 1mg titrating to 6mg/day
    Klonopin .5mg (2x/day)
    Trazodone 100mg or 200mg PRN

     
    Old 01-15-2009, 05:43 AM   #41
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    Re: Has my 9 year old daughter got scizophrenia?

    Thanks dreams. I have heard of this illness and the psych. has mentioned the possiblity of this being COS, but she does not experience all the symptoms. The psych. told me this morning that the Neurologist does not think there is a physical cause for her symptoms, which means we are once again considering a mental illness. They are once again asking me about an admission, but it would be very distressing for her. This morning she has been complaining of a headache, dizziness and has been vomiting - I amnot sure whether it is a reaction to the new meds as she experienced these symptoms (but more severely) while she was on an increased dose of risperidone. It does seem too soon for there to be such a reaction, but who knows. She was also telling me that her head feels 'large and very light'. Do you mind asking whether you have or have had any side effects from any of your meds? When is your doctor planning on giving you your fifth medication?

    Take care

     
    Old 01-15-2009, 12:25 PM   #42
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    Re: Has my 9 year old daughter got scizophrenia?

    When I started taking my meds, some of the side effects I experiened included feeling extremely tired, a dry mouth and lightheadedness.

    Fortunately, all of these symptoms disappeared by the second week I took my meds.

    My pdoc plans to add a small dose of Lithium later this month if I continue to rapid cycle and/or experience depression.

    So far though, I haven't rapid cycled in a few days and I feel much calmer than usual, so I think my anti-depressant (Fluoxetine) is starting to work. I should know for certain in another 3-5 weeks since I only started taking this med 3 weeks ago.
    __________________
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    Meds:
    Depakote 1500mg
    Prozac 40mg
    Risperdal 1mg titrating to 6mg/day
    Klonopin .5mg (2x/day)
    Trazodone 100mg or 200mg PRN

    Last edited by dreams in neon; 01-15-2009 at 12:26 PM.

     
    Old 01-15-2009, 01:19 PM   #43
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    Re: Has my 9 year old daughter got scizophrenia?

    Quote:
    Originally Posted by Strawberry Girl View Post
    They have been searchig for an organic cause but so far nothing has been identified. This morning she has complained of a headache/dizziness and has been vomiting. I am not sure whether this is due to the new meds or not, as she experienced these symtoms when she was on risperidal.
    Hi Strawberry Girl,
    Has your daughter had CT/MRI to look for tumors?
    J

     
    Old 01-15-2009, 04:17 PM   #44
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    Re: Has my 9 year old daughter got scizophrenia?

    Dreams: It sounds as if you have so many meds, but I suppose they have to do some very fine tuning, as your needs are very complex.I am pleased that you are feelng calmer now and I hope these meds, will bring some long term relief for you.

    jsfai: My daughter has had a brain scan - approx 12 months ago. I woud like her to have a second - just in case. How are you jsfai?

    Today she has been hearing voices a lot. She was also distressed as she said she could hear a clicking noise indoors and thought they were trying to come in through the walls to get her. While out later, the voices were telling her that people were going to harm her and she became quite agitated. She also told me that her 'voices' had been on TV commenting on the characters in the programme!

    Despite her being ill earlier, I did give her another dose of Abulify today. If she continues to complain of headaches, dizziness and vomiting then I will have to assume it is a side effect of the medication.

     
    Old 01-15-2009, 05:26 PM   #45
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    Re: Has my 9 year old daughter got scizophrenia?

    I'm good at the moment, just the tired mummy stuff LOL!!!

    I have been thinking of you. I am listerning to my children play; happy, loud (very), messy (very) and reliasie that despite my derpession I am a very lucky person. I hope that you can get your daughters health under control soon and that she will learn to manage it well, just like the others on this thread.

    We are lucky, you too even though you are faced with this situation. Your daughter is talking to you, sharing her experiences and that is helping you to help her. That is something lucky as I expect that others in your situation may have a child that has completely withdrawn...

    I think you should still do counselling for yourself. You sound as though you are coping extremely well but it is good to have somewhere safe to vent every now and then. I see a psych every couple of weeks even when I am feeling well. As he said and I agree, that it is important to do something for yourself, even just having a conversation with someone who will not judge. That is often I can make the most postiive insights into myself...do you ever get time to yourself. I think you said that she shares a bed with you. Are you ever alone, a relaxing bath, reading a book, staring into space?

    How is your other daughter doing through all this? Do you ever get to spend one on one time with her?
    J

    Last edited by jsfai; 01-15-2009 at 05:32 PM. Reason: add

     
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