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  • Has my 9 year old daughter got scizophrenia?

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    Old 01-18-2009, 02:30 PM   #76
    Strawberry Girl
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    Re: Has my 9 year old daughter got scizophrenia?

    Dreams, Iwould be horrified by the attitude of anyone who would regard deafblindness as a 'punishment' from god, but sadly there probably are those out there with this perspective on life! May I ask if there is a reason why you have not shared your bi-polar illness or PTSD with the members of your church?

    It is understandable that the loss of your parents would have such an impact on your emotional stability. I was also very close to my mum - in fact she was my best friend. There is not a day which passes when I do not miss her. When your parents die it leaves a void in your life, which is very hard to fill. Although time is a great healer.

     
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    Old 01-18-2009, 02:48 PM   #77
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    Re: Has my 9 year old daughter got scizophrenia?

    Quote:
    Originally Posted by Strawberry Girl View Post
    Dreams, Iwould be horrified by the attitude of anyone who would regard deafblindness as a 'punishment' from god, but sadly there probably are those out there with this perspective on life! May I ask if there is a reason why you have not shared your bi-polar illness or PTSD with the members of your church?

    It is understandable that the loss of your parents would have such an impact on your emotional stability. I was also very close to my mum - in fact she was my best friend. There is not a day which passes when I do not miss her. When your parents die it leaves a void in your life, which is very hard to fill. Although time is a great healer.
    I agree with Strawberry girl about the strange notion that god would 'punish' in such a way. Dreams I am guessing that you would agree that your deafblindness is who you are, not a punishment. Which makes me think - bipolar, depression, schizophrenia....whatever it may be, it is part of who we are, we have to accept this situation and just do the best we can to address what we can. To make the most of the treatments that are avalible and to try to focus on the positive aspects - the insight, the empathy it allows us toward others, the strength and appriciation we take from good days...

    I am sorry, Dreams, to hear of your parents passing. A close relationship with parents is such a blessing. I am not so close to my mum, we have a tense relationship although it is improving with time...

    And if it is any comfort, I too have had several increadibly stressful events in my life that have caused a degree of PTSD and I recognise the need to keep them to oneself...sometimes discussing them is enough just to trigger a flashback. But with time my flashbacks have lessened in their intensity and their frequency.

    Strawberry - how is your daughter today?


    j

    Last edited by jsfai; 01-18-2009 at 02:48 PM.

     
    Old 01-18-2009, 02:59 PM   #78
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    Re: Has my 9 year old daughter got scizophrenia?

    Hi J

    It was nice to hear from you again.

    I am glad to hear you are well at the moment. I do hope your forthcoming appointment with the pych. goes well. I am pleased that it is a safe forum in which you can let your guard down and acknowledge what may be bubbling beneath the surface. As mothers I think we often learn to repress our own feelings in favour of our children's needs. The only negative I would be concerned by is if an issue arose that was distressing for you and the session ends without the problem being resolved - if it is not well managed I would imagine it is possible for it escalate beyond the safety of the psych's office. All said, you also sound as if you have an excellent insight into your illness too, so maybe you have developed techniques to prevent this. How often do you see your psych.?

    I know my daughter may benefit by an admission to hospital. My head says, 'maybe?', but my heart says 'no way!'.

    How did you find the transition between persuing your career and becoming a full time mother? Would you consider the option of becoming a working mother at a future date - guarranteed to incur guilt in most if us!

    How old are your children J? I gather they are very young. Do you have anyone to care for them for you so you can have a well needed break/time alone without little ones at your ankles?

    Take care J and enjoy your day.

     
    Old 01-18-2009, 03:08 PM   #79
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    Re: Has my 9 year old daughter got scizophrenia?

    J

    Do you think your relationship with your own mother has affected your parenting of your own children in either a postive or negative way? I was fortunate to have a very close relationship with my own mother and it is one I have sought to create with my own daughters. I am sorry to hear that your own relationship with your mother has been 'tense'. I know I was very fortunate to have the mother I did.

    My daughter has had a reasonable day today. She has head voices and had visual halucinations but to a lesser degree than yesterday. I am concerned that her meds are giving her negative side effects e.g headaches, dizziness and vomiting. Even so I will continue to persevere for now!

     
    Old 01-18-2009, 03:39 PM   #80
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    Re: Has my 9 year old daughter got scizophrenia?

    Quote:
    Originally Posted by Strawberry Girl View Post
    I know my daughter may benefit by an admission to hospital. My head says, 'maybe?', but my heart says 'no way!'.
    The heart is a powerful thing....

    Yes I think that my relationship with my mum has affected the way I parent. I am very aware of listening to my children (5 1/2, 4 and 20 months) and allowing them to express themselves. I am careful not to poo poo or dismiss their fears and I am very conscious of when they are upset or anxious. I try not to overprotect them but I try to let them know that it's OK that they have feelings and emotions whatever they are, I 'TRY' to help them understand and make sense of the world. On the negative I find it hard to trust my mother with my children. there is no doubting that she loves them but I cannot trust her to respect the way my husband I parent...

    I was terribly sad when I had our first and I realised that my mother wasent all that I thought. When I was faced with the intense love that I had for my new baby, I realised that mum didnt have the same care for her own children...

    DO you think that you would be a differnt sort of parent if both your daughters were well?

    J

     
    Old 01-18-2009, 04:06 PM   #81
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    Re: Has my 9 year old daughter got scizophrenia?

    J

    You sound as if you are doing a fabulous job of being a parent and have turned around your the experiences of your own childhood. You are giving to your own children what your inner child did not receive. Often people repeat the patterns we learnt from our own parents.

    DO you think that you would be a differnt sort of parent if both your daughters were well?

    Yes, my daughter's illness has undoubtedly had a huge impact upon my parenting. It has consumed me as a mother and other things have fallen by the wayside - causing more guilt! Before her illness I was working and supporting the girls, but now we are dependent on benefits and I am no longer able to give them the things I want to or pay for my youngest to join the out of school activities as her friends do. The girls education was also a number one priority, but this to has been neglected - alas more guilt! On a positive note the girls and I have very open communication and they know that they can approach me with anything. Despite the chaos surrounding us, the girls do know that their mummy loves them and will always love them whatever.

     
    Old 01-18-2009, 05:13 PM   #82
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    Re: Has my 9 year old daughter got scizophrenia?

    Strawberry Girl- has your daughter started the abilify? How is she doing?

     
    Old 01-18-2009, 05:30 PM   #83
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    Re: Has my 9 year old daughter got scizophrenia?

    Hi MSD
    How are you? It is nice to hear from you again.

    Thank you for asking how my daughter is. She is on Day 5 of the Abilify - still hearing voices and hallucinating but there is an improvment in her mood. Sadly she is experiencing some unpleasant side effects such as headaches, dizziness and vomiting.

    Did you have a nice weekend MSD?

     
    Old 01-18-2009, 07:10 PM   #84
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    Re: Has my 9 year old daughter got scizophrenia?

    HI Strawberry.
    I didnt answer your question about the transition from work to motherhood. It wasent easy, I always made a point of telling people of my job before I had a baby. It took a while to accept that motherhood was a valuable role too. Now I write 'mum' on forms that require me to write my employment and as for employer - I write 'the kids!'
    I hadnt realsied how much my job was tied in with my identity and how career plans effected so many aspects of my life. Having children has refocused my values and wants and I think to a healthier, happy point.
    Now I could not imagine going back to my role, I can see how much it took from my life and how it gave so little. I have gone back to university to plan for a new career for when I do eventually reenter the work force
    (saying all the above, I couldnt stay at home for ever I do need to use another level of my knowledge and skills. But I am content to wait until our children are less dependent...even though it means a financial sacrifice...)
    How are you feeling about being dismissed from your job? Is the transition from employed to unemployed worrying you (other than the financial aspects). Are you missing the adult stimulation that working gives?

    J

     
    Old 01-18-2009, 08:51 PM   #85
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    Re: Has my 9 year old daughter got scizophrenia?

    Strawberry Girl and jsfai,

    I'm not sure why I haven't confided in my church members about my bipolar and PTSD, but I guess it's because I'm concerned about them and don't want to talk about myself even though they always ask how I'm doing.

    Paranoia and flasbacks continue to be a real problem for me on a daily basis. I'm hoping to ask my psychiatrist if he can switch me from Risperidone to Geodon since I did really well on the latter when I was hospitalized. In fact, it eliminated all of my symptoms completely. The only reason why I hesitate to do that right now is because I haven't rapid cycled in 7 days and I want to keep the streak going. LOL! I'd like to wait until I've been stable for 1-2 months before changing meds.
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    Old 01-19-2009, 03:53 AM   #86
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    Re: Has my 9 year old daughter got scizophrenia?

    Hi Dreams

    It sounds as if you and the psych. have some important decisions to make regarding your medication - it cannnot be easy. I hope your psych. will be able to guide you in finding a solution. I seem to recall that her planned to introduce you to lithium in the near future (?). Would Geodon combined with lithium be an option to consider?

    May I ask if you think one of the reasons you have not confided in your church members is also due to a concern of how a minority will react if they knew? I am often warey of discussing my daughter's symptoms with people as I worry how they will respond e.g. scare mongering that she is a danger to their children or ridiculing her behind her back. People are often afraid of the unknown. There is also the concern that people will dismiss it to be down to inadequate or even abusive parenting. When I first reported my daughter's problems to the school, they said that they had no concerns - even though she was very quiet at school. Only recently have the school acknowledged that she is in fact unwell. My youngest daughter also developed kidney/urological problems which meant she wet every day (this has since been resolved with daily medication). The school decided to refer the children to social services, who concerned by the children's symptoms implemented a Child Protection Enquiry. I was devastated by the fact anyone could think there was a possibility I was harming my children. Fortunately we had a fabulous Social Worker, who concluded that she has absolutely no concerns regarding the care of the children and the case was closed. The process has left me with a mistrust of the school, since much was said that was completely untrue or taken out of context. We also had a negative experience with her previous mental health team. Fortunately, we are now under a clinic where I do feel we are listened to. I have requested that she is referred to a National specialist Centre (which is with no disrespect to her current team), as they are more expereinced in managing children who present with psychosis. Unfortunately this has been rejected on the basis of funding. Sadly my daughter is responding badly to the meds. She has been vomiting again today and complaining of a tummy ache. She continues to hallucinate and hear voices, but overall her mood is positive.

    Take care Dreams.

     
    Old 01-19-2009, 04:09 AM   #87
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    Re: Has my 9 year old daughter got scizophrenia?

    [QUOTE=jsfai;3854195]HI Strawberry.
    How are you feeling about being dismissed from your job? Is the transition from employed to unemployed worrying you (other than the financial aspects). Are you missing the adult stimulation that working gives?

    Lol...I love the concept of your kids being your 'employer'! Despite your illness and three little ones to care for you have retained your sense of humour! You are also striving forwards with plans for a new career. I am impressed by your motivation and focus. What new career do you hope to persue?

    Yes the transisition from employed to unemployed is worrying me. The most overwhelming worry is the financial aspect e.g. unpaid bills, huge debts ect. Prior to giving birth to my eldest, my job was very much my focus and I was very commited, confident and enjoyed what I was doing. When I had my children everything else paled in to insignificance and I loved motherhood. I was, however, fortunate to be given a career break to enable me to return when the children were older, which I did when they were 3 and 5 years old. I am being dismissed with a disciplinary on my record for being absent without permission. For me it the worse possible scenario in terms of how future employment prospects are concerned. Financially we are going under fast and at the moment I do not see the light at the end of the tunnel.

     
    Old 01-19-2009, 04:15 AM   #88
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    Re: Has my 9 year old daughter got scizophrenia?

    Taralee,

    Thank you for your post. I am intrigued to hear from a mother whose daughter is also hearing voices, as I have yet to meet anyone whose child is experiencing similar symptoms. I was interested to hear that you are trying other methods to alleviate her symptoms. Has your daughter seen a psychiatrist or therapist? What type of voices does your child hear and how frequent are they? Has she ever had visual hallucinations? Does she become distressed by her voices?

    I will look forward to receiving your response.

     
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